• Best advice for undergoing chemo (cysplatin)? I have cervical cancer, stage 2B Any support would be amazing! Thank you all!!

    Asked by KimG5577 on Monday, August 20, 2012

    Best advice for undergoing chemo (cysplatin)? I have cervical cancer, stage 2B
    Any support would be amazing! Thank you all!!

    I'm nervous about not eating enough which seems so important.
    I'm so scared about becoming so ill on this chemo. I love my friends,
    but none of them have gone thru this so when they say 'it'll be okay'
    I don't always believe them.

    18 Answers from the Community

    18 answers
    • GregP_WN's Avatar

      First, try not to worry about what will or wont' be. Hard to do, I know. But, it will be ok, the chemo is tough, sometimes. For some, they take it and never miss a beat, don't get sick, no nausea. It just depends on you, your treatment type and how your body handles it. I went through being treated 3 different times that I was diagnosed. Two of them were tough, one was not so bad. I had hodgkins and squamous cell carcinoma, not the same as you and not the same treatment. Someone will answer you that has had exactly what you are going through. Keep your mind positive, it will be over before you know it, and you can get on with your life.

      Best of luck to you, I hope it's a smooth and easy process for you!

      about 5 years ago
    • TheEvilyn8's Avatar

      My advice from personal experience with 12 rounds of ABVD chemo, take each session individually. You will feel bad sometimes and perhaps great others. Since Chemo is cumulative, the symptoms usually get worse by the middle to end of chemo, at least it was that way for me. My attitude always a positive one, no matter how crappy I felt, I put on a smiley face for the world. I can honestly tell you that if you have access to it, group therapy from the very beginning will help you through this. If you can do individual therapy, do that too. Cancer sets us all aside from the world and those around us, the one thing we have in common, we all need to vent out feelings. Most times our families are not the VENUE...Good luck. FIGHTS ON!

      about 5 years ago
    • leepenn's Avatar

      Hi there -
      I have three very specific bits of advice....
      I had carboplatin with taxol for my chemotherapy. THe carboplatin was every third week... with taxol every week. cisplatin is pretty similar to carboplatin, I believe. So, here goes...
      1) MOVE!!!! If you exercise now, GREAT. Keep it up as much as you can. Don't exercise to exhaustion... but if you currently walk a few miles every day... Keep doing that. If you are currently a triathlete, keep up on your training. You'll slow down. You'll have a bit less endurance. But that is okay. I consistently hear that couch potatoes suffer more than active people. I rode my bike every single day of chemo, and I feel like it made a huge huge difference. If you don't currently exercise, start! Start small with a little walking or biking or swimming or whatever a couple of times per day, and build as you are able.
      2) Consider taking glutamine. Buy this as a powder and add about 10 g to water - swirl - chug: three times each day during the first several days after each treatment. This will help with mouth sores and eating and just about everything under the sun, or so it seems from the scientific literature (this supplement has been through clinical trial). Ask your health care team about it to be sure that there will be no problems with adding it to your routine. It made a huge difference for me. I slacked off the glutamine twice - after two of my treatments - and I paid the price - horrid horrid little mouth sores.
      3) Tell your health care team about every single symptom - they can make a lot of things less crappy - but only if they know about it....

      I get being worried about weight. But weight seems to be inconsistent. Some people gain, some people lose, and some people don't gain or lose. So, try to put your mind at ease with that one, and face it if it actually emerges as a problem.... It might not!

      Good luck. Sucks that you have to do this.

      about 5 years ago
    • Lirasgirl33's Avatar

      Hey there Kim,

      I went through 8 weeks of Cisplatin (Once a week on Mondays) and radiation (Mon through Fri). I can say that the side effect that hit me the most was nausea. Towards the beginning I would take my anti nausea meds only as needed....meaning when I was feeling crappy. That wasn't a very good idea. Then I changed it up and started taking them every 8 hours and things went better. I would sometimes get "break through" nausea even when I had taken my anti nausea meds, so I told the doc, and he prescribed me an additional med, which helped. So I can say that it's very important that you communicate what you're feeling with your doctor. Side effects vary from person to person so hopefully you won't get it as bad. For me, even having nausea, there wasn't a single day that I went without eating something. I always had Ensure around for times when I couldn't get myself to eat a meal. Not eating actually made the nausea worse for me. Fruit and veggies were my friends during all this. Cream of wheat was my usual breakfast. I usually ate what my body could take since the thought of some types of food made my stomach turn.

      Issues with my digestive system, like diarrhea and constipation came and went. I usually changed up my diet depending on what side effect I was experiencing. There is just so much I could tell you about my experience.:) It's good to ask questions and research since knowledge is power. There is less of the fear of the unknown. A couple of websites I recommend are: cancer.gov and chemocare.com . Useful sites with lots of useful info.

      I used Whatnext as a diary, not just about cancer but also my day to day life. If you get a chance, read through some of my entries, hopefully some of them help or answer some questions for you. For each entry I entered an actual date since the website doesn't do it. It helped me keep track of when certain things happened during my treatment. It has actually come in handy. Well, it's time for me to get some sleep. Have a good night.

      PS: I know all of this is overwhelming....just take it one day at a time. You can do this, kick cancers butt! :)

      about 5 years ago
    • Mollie's Avatar

      Ok so the thing that works for us is eating every 2-21/2 hrs but small easy meals. She had no nausea with the chemo, although it could be because she took the nausea meds as directed. Definitely tell your doctor or team about all of your symptoms. For my grandma the mouth sores are the worst...do she uses Magic Mouthwash, it's a prescription and yes that's what it's called :))). You'll do great just communicate every little thing and your doctor should have a prescription to fix it!!!

      about 5 years ago
    • SunnyCloud's Avatar

      I had CC 2B and the same chemo. What I did was set up my room with all that I would need. I remained relaxed..just went with the flow. One of the main things I did was drink ensure. Always eat non greasy, non dairy, light meals. I would also advice..just in case, to go to a thrift store and buy a portable toilet..the kind you see at hospitals or nursing homes. Usually they are sold for 10 dollars in good condition. You are probably saying "eeew no way," but if you get diarrhea or cant hold your urine as a side effect..you will appreciate having one by your bed. I thank God my mom was thoughtful enough to get one for me, as I did not appreciate having to mop my floors each time. That's all I can think of. :D God bless

      about 5 years ago
    • SunnyCloud's Avatar

      P.S. Im somewhat of a couch potato and breezed through my entire therapy and still doing well a year later. So if you can't exercise or you are a couch potato...dont worry. Everyone reacts differently to all cancers and all cancer therapies. :)

      about 5 years ago
    • Carol-Charlie's Avatar

      I always shared my concerns with my doctor or his nurse. They would give me accurate information AND share hints, etc. with how to deal with things. I remember once thinking I had lost my mind. Why would my fingernails hurt??? Well, I shared this with the oncologist's nurse. and yes that was another side effect. I trimmed my nails short and straight across like a man's... (Painted them pink) got on with life with chemo. There are weird and strange things that sometimes happen. We had a class "Chemo Class"... very informative andhelpful. I didn't have any taste when first starting chemo. Everything tasted like mush. I lived on French Toast and Chicken Noodle Soup (Cambel's) I never once got sick... never once! They have a treatment for everything. I was hoping a massive weight loss.... my oncologist saId... I won't let you lose a pound... Dang it... I didn't till later. Trust me... trust your oncologist ans TRUST GOD!!!!

      about 5 years ago
    • Carol-Charlie's Avatar

      I west through chemo with the cysplatin, taxol, etc. I was tired a lot (was told to sleep) They do have a fix for everything. I received six 28 day cycles of I/V infusion and I/P infusion I/P in directly into abdomine to 'slosh' around and find the little cancer cells trying to run...(Well that's how I thought of it)... Then I had 12 months of Paxil I/V infusions once a month. I never thought Bald was beautiful on a woman (well rarely) BUT Paula Young Wigs... Inexpensive, great styles and I love them. Stopped chemo in 2008.... Been cancer free for almost seven years. I was 62 when I started... You're younger and stronger and will do great. Your friends want you to fight... fight. Next year I'm turning 70 and I'm having a BIG party.... Last Saturday, I danced and danced at my grandson's wedding... Life is good keep fighting...

      about 5 years ago
    • Janet's Avatar

      Hi and welcome to the community. I am currently going through my second round of chemo (TAXOL & CARBOPLATNIUM.) Forgive me if I missed spelled Carbo.... I had Cysplatin coupled with internal and external radiation.
      It is not horrible but I didn't jump for Joy when its Tuesday Chemo Day. I did not loose my hair, it just thinned. I was rarely sick and lead a full life, well as full as iI drank a lot of protein shakes and The Naturopath Doctor at my oncologist office. She put me on a high dose of Mel- e- Tone-an (phonetic pronunciation cause i can't spell it) hehehe. Speak to your naturopath and be honest about how you feel. They can help you. :) Pleas message me privately with your # if you have other question. Your in my prayers. Janet

      about 5 years ago
    • Moonflay's Avatar

      My chemo has not been fun but it has not been bad either. I've had no nausea and missed no work outside the actual chemo day. After the first session I basically knew what to expect for each one. With mine, I have a few days of tight stomach and a "feel good" driven by the 5 days of Prednisone. Constipation controlled with a dose of Milk of Magnesia is the worst part. Days 7-10 are the worst and those are simply days of not sleeping very well and feeling achy with some headaches. Antihistamine daily and some pain reliever (Tramadol) helps those days pass. Following that stage it's relatively easy, no particular body aches or pains, I do sleep a lot which is therapy in itself, lol.

      I've lost my hair (scalp only so far), which isn't bad, lots of new hats and scarves :) I have neither lost nor gained weight with chemo (held steady at 110) but I do try and eat healthy and drink lots and lots of fluids. Even before therapy began I drank a Carnation instant breakfast drink every morning and ate a banana and a bowl of oatmeal. Since therapy, I have continued with the drink and eating 3-5 meals a day (small at times). I crave protein and give in to that. I have GERDS which is exacerbated by chemo so I don't miss a Prilosec, lol. I eats lots of cottage cheese and fruit and drink lots of milk shakes...whatever works.

      Everyone is different, worry comes with the territory but my guess is ..you will be fine :) Remember...you have cancer, cancer does NOT have you!


      about 5 years ago
    • Beaner54's Avatar

      I had 3 cycles of Paraplatin and Taxol...28 external beam radiation treatments......2 internal radition treatments...then 3 more cycles of chemo. The only side effect I experienced with chemo was extreme fatigue. Oh, I also lost ALL of my hair. I ate several small meals throughout the day and drank lots of fluids.
      Never had any diarrhea or nausea until radiation started. I lost 10 pounds during that 28 day treatment.
      I think you will find that chemo is tolerable once you get into the routine.
      Hopefully all will go well.

      about 5 years ago
    • Pappenstance's Avatar

      Hi Kim,
      I just finished my last Cisplatin on Friday and have two more external radiations then two internal to go. The best advice I ever got was from my nurse, when I asked her when I could expect side effects. "Why plan on them?" she said. "You're young. Everyone reacts differently. Just deal with them when they come." Cisplatin is a tough chemo. Stay on your anti nausea meds all the time. I take mine like clockwork, every 8 hours. Like others, I've had some breakthrough nausea, but I know it's because I didn't eat enough. Listen to your body and don't get hung up on whether you're eating the 'right stuff.' Food is going to taste and sound gross sometimes. Find what you like (it might vary week to week!) and make sure you're eating every 3 hours when you're awake. Drink plenty of fluids! At least 64 oz. of non-caffeinated fluids, preferably water, but sometimes (for me) water would taste gnarly so I'd cut it 1/2 and 1/2 with Gatorade-like drinks. After getting chemo on Friday, my worst day was Monday, so maybe prepare to lay low 72 hours after chemo day.

      Everyone's right, we're all so different and respond differently based on our lives prior to our diagnosis. The best advice I can give is to take it day by day, accept help when offered, lay low if you need to, eat and drink regularly, and listen to your body. I was told that by week 3 I would feel like I couldn't handle it anymore. But truthfully, these last 5 weeks went so fast and it was never so bad that I wanted to give up. You totally got this!

      about 5 years ago
    • JenB's Avatar

      I also had CC, stage 2B, last summer. I had 5 cisplatin treatments, as well as internal, and external radiation. The main problem I had from the chemo was nausea. The first nausea medication that I had made me feel even worse, so don't be afraid to ask for something else!

      Of course nutrition and exercise are important; however, I didn't manage very well at either of these because I felt so sick. My advice - eat what you can, I definitely did not eat enough, but I managed some I ate bread, fruit, and pasta. Also, some whey protein can give you a little extra protein without too horrible of a taste. Another amazing thing (although I never really want it ever again) is Gatorade. I drank 2 to 3 bottles a day because I couldn't stay hydrated.

      Hope this helps! It sucks, but it's worth it!
      Feel free to contact me anytime!

      about 5 years ago
    • vizslagirl's Avatar

      if you find that you are too nauseous to eat or too upset, DO NOT UNDERESTIMATE THE POWER OF "ORGANIC MEDICINE" if you have access to it. my family was generally against such a thing until they saw how much it helped me. something to consider....otherwise Zofran was a great anti-nausea drug for me. i still recommend the other though.

      about 5 years ago
    • trufren's Avatar

      To KIMG5577,I Know exactly how you felt coz ive been there done that and ofcourse its not ok .I had cervical cancer 2 yrs ago and it felt like I have the world on my shoulder but i was wrong sometimes we tend to be grumpy upon struggling but then again we have to think God will never give us things we cannot handle ,He knows you are strong individual and that you are capable of everything your heart desire ,Step up coz you are bigger than cancer,It is normal to be nervous and its part of the ritual process of getting better.Cysplatin will just pass through your port and will help you get better but it wont kill you i promise, but you will kill yourself by not eating so if i were you ,eat fruits chocolates and drink a lot of fluids like SPRITE it will help you the way it helps me 2 yrs ago. I know you can do it I believe in you,,,,,,,,,TRUFREN

      about 5 years ago
    • trufren's Avatar

      KIMG5577,agewise you are a lot younger than I am so i know you can do it,,Ive done CHEMO(cysplatin),INTERNAL RADIATION not to mention surgery Lymphnode removal I was in stage II.Look at me now im tellin you my friend you would never believe I am married and presently working 2 jobs.

      about 5 years ago
    • DaveWaz's Avatar

      I hope all is well. Thank you for sharing your situation.

      Your question reminded me of our Beginner's Guide on Chemotherapy.


      about 4 years ago

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