• bilateral mastecomies in Jan 2011. surgeon says that theres no more breast tissue. How come every month when I get my period I am sore?

    Asked by Kelli on Friday, September 14, 2012

    bilateral mastecomies in Jan 2011. surgeon says that theres no more breast tissue. How come every month when I get my period I am sore?

    IT can't be all in my mind.

    4 Answers from the Community

    4 answers
    • lynn1950's Avatar
      lynn1950

      Over the years I have experienced pain and tightness in the area of my mastectomy scar (probably from scarring), but I am post-menopausal. Breast cancer.org has a forum for pain. You may get an answer from that site.

      over 4 years ago
    • lynn1950's Avatar
      lynn1950

      Oh! It's not in your mind. Many of us feel pain after mastectomies!

      over 4 years ago
    • NanciHersh's Avatar
      NanciHersh

      There is always residual tissue, they can't get all of it. I had a bilateral mastectomy in 2003, and new cancer was found in residual tissue under my arm. Thankfully, I am thin so I felt it and got it early. However, it is rare and my oncologist who is extremely bright, thorough and wonderful did not think it was anything because it did not feel like a node and I had had a bilateral mastectomy. It wasn't until I felt another small bump that my gyn said "with your history why don't you get an MRI" and sure enough... now that is extremely rare and may or may not have anything to do with soreness during your period.
      The point is that you need to trust you intuition about anything. It is NOT all in your mind. I am surprised that you still get your period. Is your BC not estrogen positive?

      over 4 years ago
    • Laurie's Avatar
      Laurie

      Kind of surprised they would say NO tissue left. That is next to impossible. There could be just enough cells left to repsond to hormones. You might even be able to feel a small spot during your period that goes away after, just like with full breast (except really tiny spot). Mastectomy might get 99-99.9% of breast cells, but not 100. MRI would show a tumor starting on the chest wall or a lymph node if you found a lump that didn't go away. Are you a candidate for tamoxifen (anti-estrogen)? That might help. I didn't feel any worse during my period, but my scarring is still tight to this day, which does bother me.

      over 4 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more breast cancer questions.  Also, don't forget to check out our Breast Cancer page.