• Biochemotherapy has just been recommended for my SIL. I would like to hear from anyone who has had it.

    Asked by lovegoldens on Wednesday, November 12, 2014

    Biochemotherapy has just been recommended for my SIL. I would like to hear from anyone who has had it.

    My sister in law and I are at MD Anderson right now. She saw the doctor yesterday and was offered a choice of inpatient biochemotherapy or just watching closely and having scans every three months. They said it would have to be done here and we live in Alabama so aside from all the side effects and the hospitalizations, there would be a lot of travel. She is struggling with the decision. I would like to hear of anyone's experience with this treatment and where they had it done. Thank you.

    8 Answers from the Community

    8 answers
    • barryboomer's Avatar
      barryboomer

      I never heard of it. What stage is it and maybe NOT doing toxic treatments YET would be the best. Change her diet, special supplements and Juicing/Powdered Green drinks are some things she can do on her own. The distance sometimes is a problem.

      over 5 years ago
    • Terri's Avatar
      Terri

      I went on Biochemotherapy in 2010. I only lasted 2 sessions and I am still dealing with side effects. It is a brutal treatment. I ended up in ICU with an extremely low B/P. I blew up like a cherry tomato and hallucinated. sorry, you need to know.

      over 5 years ago
    • lovegoldens' Avatar
      lovegoldens

      Terri, That is awful! She is set to start it Tuesday. She will have four sessions. What kind of side effects are you still having? How long the side effects last is something I have not been able to find information on. Have you had a recurrence since treatment? I am so sorry you had such a rough time.

      over 5 years ago
    • StrongSteph's Avatar
      StrongSteph

      I did 5 rounds of biochemo in 2011.... it was necessary to save my life as i was progressed to stage IV and fighting for my life. It depends on the stage of your sister in law.... It is brutal, but I know others who have had it and again, it saved my life.

      over 5 years ago
    • lovegoldens' Avatar
      lovegoldens

      I am glad to hear you had a positive outcome! She is stage III, but she had 13 positive lymph nodes. The number of positive lymph nodes is what is most concerning to the doctors. They feel it is very likely to come back in an organ. The side effects are very scary! Have you had any long term effects from the treatment?

      over 5 years ago
    • StrongSteph's Avatar
      StrongSteph

      lovegoldens, It took me about 2 years to really recover from the biochemo. It was extemely toxic and hard.

      about 5 years ago
    • Terri's Avatar
      Terri

      I have had several recurrences since treatment. I just got off Yervoy .

      about 5 years ago
    • lovegoldens' Avatar
      lovegoldens

      Thank you so much for your input, StrongSteph and Terri. It is good to know what others experiences have been. I am sorry about the length of time it took to recover and the recurrences. My sister in law has had two rounds and will have two more. While it has not been easy at all, I think she is probably having it better than most. From what I have read I was really expecting her side effects to be much worse. She is having it at MD Anderson and they are doing a good job of managing the side effects. She will go back in on December 30 for round three.

      about 5 years ago

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