• Bone marrow transplants for CLL

    Asked by legofeel on Monday, April 2, 2012

    Bone marrow transplants for CLL

    Early stage but aggressive

    6 Answers from the Community

    6 answers
    • GregP_WN's Avatar

      I can't help you with your type of cancer, but I'm sure there is someone on here that has answers. I would suggest to edit your question and add more detail. It's hard to tell what your question is from what you have posted so far. Lot's of great people here to help, just ask away! Good luck in your treatments!

      over 4 years ago
    • KimF's Avatar

      My husband has a CLL that is quite aggressive. His oncologist told us that a bone marrow transplant is typically riskier than the cancer (25% mortality rate, I’ve been told). That’s why it is rarely considered for CLL patients and only as a last resort. My husband just finished a round of chemo (Fludarabine and Cytoxan) with the monoclonal antibody Rituxan. This is typically a very effective treatment. And in our case it has been as well. Treatment hasn’t been fun, but studies show it produces the best quality of life after (or between) treatments.

      I’ve also read about few cases where stem cell transplants have been performed to treat extremely aggressive CLL. But I think this is still a relatively new treatment for CLL.

      Hope this is somewhat helpful.

      Good luck and stay strong!

      over 4 years ago
    • WVgirl2424's Avatar

      I have Agressive AML, or had. On July 5,2011 my brother donated stem cells, without them I was told the longest I would have is 1 year. It has been 10 months and I am 100% donor cells. I have had many things that upset me but I'm alive. I lost my hair, eyebrows, eye lashes, went completely through menopause, and now have had to have all my teeth surgically removed and get dentures. I remember last year when diagnosed the doctor did the bone marrow test and told me he would call me Thursday, I would have chemo starting that Monday but he would call that Thursday before to tell me if I had ClLL or AML. He gave me 2units of blood my hemoglobin was 8 then. He called that Thursday and I asked which I had, he said the cells had doubled in less than a week I was at 29% blasts, I could not wait till Monday morning, he wanted me at hospital 3 hours from home the next day, I had AML and would have 30 days chemo 24 hours a day. I got there Monday and tests showed hemoglobin of 6.4! He said if he had said Monday, my husband would have foundme dead by Sunday morning. I am very lucky that this hospital dumped me after Chemo and WVU Ruby Memorial took me, then my doc was Dr Craig, he is the best Dr. He took me and told me the truth, the staff was wonderful, they have message therapist right there in transplant unit. My anti rejection meds really caused joint pain, was supposed to be there after transplant for 100 days, only stayed 42. It was a miracle! Ny brother was perfect match, Dr was genius and God was with me. I look forward to being able to do what I want, I do have limited access to the public, it will be over soon. Keep thinking positive, I try to. Yes, sometimes I just sit and cry, for what I've been through but also happy tears for what I have, my family, my grandkids and I am an RN, I wanna work, not with patients though, I want to help from the background. I pray for everyone daily!

      over 4 years ago
    • GailB's Avatar

      This was also the course suggested to me. They have told me that the mortality rate is about 15%. I have already done 1 round of Chemo and the CLL is in remission but after only 6 months SLL showed up and it has been growing very slowly. I have been told that I have only about 5 yrs if I choose to continue with the Chemo and my only chance for more time is with the stem cell transplant. I have not made any final decision yet, just going thru the steps to see if my brothers and sisters are a match. I am not in any hurry but I understand if the CLL comes back it will reduce my chances. I am willing to do the chemo and have more time now because I feel the risks are to high but my children want me to do the SCT and have more time in the long run.

      about 4 years ago
    • LMW's Avatar

      BMTinfonet.org has a lot of good information and resources.

      about 4 years ago
    • valedav's Avatar

      I was diagnosed with CLL/SLL in November of 2011. A complicating factor is the fact that I have a chromosome mutation (del 17p), which indicates aggressive cancer and a poor prognosis. My doctor told me upfront that chemo would only have a temporary effect. I am in partial remission now after 6 rounds of FCR chemo. I feel fine and it's hard to believe that I have a potentially deadly cancer. I was referred to the transplant center at LDS Hosp in Salt Lake City and have started the preliminary steps. My transplant doctor has said that my cancer will definitely return, the question is when. His recommendation for me is to wait until the cancer returns to do a nonmyleoblative peripheral blood stem transplant because of the risk involved.

      about 4 years ago

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