• Bone marrow transplants for CLL

    Asked by legofeel on Monday, April 2, 2012

    Bone marrow transplants for CLL

    Early stage but aggressive

    6 Answers from the Community

    6 answers
    • GailB's Avatar
      GailB

      This was also the course suggested to me. They have told me that the mortality rate is about 15%. I have already done 1 round of Chemo and the CLL is in remission but after only 6 months SLL showed up and it has been growing very slowly. I have been told that I have only about 5 yrs if I choose to continue with the Chemo and my only chance for more time is with the stem cell transplant. I have not made any final decision yet, just going thru the steps to see if my brothers and sisters are a match. I am not in any hurry but I understand if the CLL comes back it will reduce my chances. I am willing to do the chemo and have more time now because I feel the risks are to high but my children want me to do the SCT and have more time in the long run.

      over 8 years ago
    • LMW's Avatar
      LMW

      BMTinfonet.org has a lot of good information and resources.

      over 8 years ago
    • valedav's Avatar
      valedav

      I was diagnosed with CLL/SLL in November of 2011. A complicating factor is the fact that I have a chromosome mutation (del 17p), which indicates aggressive cancer and a poor prognosis. My doctor told me upfront that chemo would only have a temporary effect. I am in partial remission now after 6 rounds of FCR chemo. I feel fine and it's hard to believe that I have a potentially deadly cancer. I was referred to the transplant center at LDS Hosp in Salt Lake City and have started the preliminary steps. My transplant doctor has said that my cancer will definitely return, the question is when. His recommendation for me is to wait until the cancer returns to do a nonmyleoblative peripheral blood stem transplant because of the risk involved.

      about 8 years ago

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