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    Brain cancer, what online resources did you find the most helpful?

    Asked by WhatNextEmails on Tuesday, March 26, 2013

    Brain cancer, what online resources did you find the most helpful?

    We need your help again. We're working to improve our resources page and want to know, What online resources did you find the most helpful? For example, did you google your diagnoses? What cancer sites did you find? Did you look for financial resources, help with prescriptions, help with treatment expenses? Travel expenses, or a treatment center? Give us the run down of the first 48 hrs after you were diagnosed that you spent online. What did you want to know? And did you find it?

    With this information we can develop more resources for our fellow WhatNexters to help them find the help they are looking for, as quickly as possible. Give your tips and resources you found helpful and we may use your information in our articles to help others in the future.

    1 Answer from the Community

    • jREINHARDT's Avatar

      The first 48 hours i was home from the hospital from an emergency craniotomy, I spent most of it completing my taxes (It was that time of year)...lol. I had an accident, ended up in someone's living room while driving, and found out I had a huge tomor that should of rendered me diagnosed/ incapacitated months earlier if i wasnt so stubborn.

      After that I was most concerned with getting everything in order "just in case" since I had two small children and a wife that would have been left without their primary bread winner. My family had some great resources and I was not alone in getting anything done from the will, trust, etc.

      After all of that was settled, beyond worrying about a pending divorce, I spent most of my time looking for stories of survivors and seeking out a mentor who had been through what i was going through. In between treatments I think i spent about 90% of my time awake on the internet reading and doing research. I reached out to immermanangels.com for a mentor, and was linked up with Greg who had been through the same things i was going through, including the divorce at almost the same time i was going through it.

      I also searched out alternative therapies, diets, etc that would help me along the way, including making it through the initial treatment and also long term quality of life. So far it has been over 1 year and my scans keep coming back stable, and the latest one came back at the worst stable, and possibly improving. Never thought that was possible, but I am happy with that news.

      over 7 years ago

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