• BRCA 1??

    Asked by CrazyHarry on Wednesday, July 29, 2015

    BRCA 1??

    During my work up for my cancer de A**, it was discovered that I had the BRCA 1 gene mutation. So I have had the follow up mammogram and ultrasound.

    My 28 year old daughter just had the genetic tests run on her and she was "lucky" enough to have the BRCA 1 mutation. Anyone out there in cancer land have the same and decided to do prophylactic surgery like Angelina Jolie?

    Both my mom and my grandmother got fatal breast cancer at about age 35.

    My daughter has had a very tough 28 years with spina bifida and related ailments and has 100+ surgeries and is not looking forward to anymore surgery.

    Anyone want to weigh in on this?

    4 Answers from the Community

    4 answers
    • cam32505's Avatar

      Having a genetic predisposition doesn't mean 100% that you will get cancer, but the odds are greater than the general population. So, you can do the watchful waiting approach, getting regular screenings or preventative. Neither is a great option, but a personal decision. If she's had a lot of surgery, she might rather monitor and hope for the best.

      almost 4 years ago
    • LiveWithCancer's Avatar

      No real suggestion ... but I am sorry. With the gene and the family history, I would really have to weigh the options carefully. Definitely sounds like she's been through enough in her young life!!

      almost 4 years ago
    • joyce1979's Avatar

      I'm so sorry about all this. It is good to know that there is a possibility of getting cancer. I'd suggest regular screenings and be watchful. She really must be a strong person to have gone through all of this in her short life. Give her a hug from me.

      almost 4 years ago
    • spdsgrl's Avatar


      My girlfriend just had mastectomies as a preventative measure because of the gene. She is a single mom in her 40's with adult/ teen children. She didn't want to risk breast cancer and leaving them parent less. She couldn't be happier with her decision and said she would do it again. She recovered fairly quickly. You have ny email if you want me to put your daughter in contact with my friend ( who also happens to be a nurse and lost her mom and husband to Cancer)

      Hope all else is well with you, yours and Stanley!

      almost 4 years ago

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