• Breast Cancer: Has anyone had the Oncotype DX test done???? If so, what was your score?

    Asked by krogers on Thursday, September 20, 2012

    Breast Cancer: Has anyone had the Oncotype DX test done???? If so, what was your score?

    21 Answers from the Community

    21 answers
    • RMR's Avatar

      Mine was 21 and chemo was optional. I ultimately decided to throw everything I could at my breast cancer and opted for chemo. What was your score?

      about 5 years ago
    • Nancebeth's Avatar

      Mine was 24 and chemo was optional but strongly recommended. I did the six sessions of CMF and finished in August. I will start the Tamoxifen next week, as I was ER+ and PR+. I wanted to have the best chance of living with NED the rest of my life so I am doing everything I can.
      I have a blog at nancebeth.blogspot.com and I talk about everything related to my cancer and all of my decisions.

      almost 5 years ago
    • busymom0413's Avatar

      Mine was 16 no chemo and had bilateral mastectomy so no rads either. Best of luck to you

      almost 5 years ago
    • MarnieC's Avatar

      The test wasn't available to me when I was going through breast cancer, but I recently wrote an article about it that might help you: http://marnieclark.com/the-oncotype-dx-test-and-some-controversy/ If I can assist, please let me know.

      almost 5 years ago
    • SandiD's Avatar

      I suggest www.breastcancer.org for reliable info. My score was 19. Because I had early colon cancer the year before, I needed chemo and radiation after my lumpectomy. I was Stage I Grade II ER & PR +. I am now 3 years out from diagnosis and showing no evidence of disease! Good luck to you!

      almost 5 years ago
    • oskygirl's Avatar

      I had the Oncotype DX test done after I had my mastectomy. My score was 12. Chemo was not recommended for me.

      almost 5 years ago
    • Lafflady's Avatar

      my score was 35,,, meaning I had to have chemo.. Everything else was so good... in situ... sooo small. etc,,, I now wish I had asked for more opinions,. The side effects of chemo have been so bad, Without the oncotype test, I may have only had radiation... we won't until the end.

      almost 5 years ago
    • krogers' Avatar

      Thanks - I was just wondering. I didn't know about this until the oncologist had the test ordered. I'm suppost to start chemo monday - I haven't got the results back, maybe will know before monday.

      almost 5 years ago
    • Femthumper's Avatar

      hi my oncotype dx test score was 37. they suggested chemo and radiation to keep the cancer from other parts of my body. i had stage 1 breast cancer fran

      almost 5 years ago
    • debsweb18's Avatar

      My score was 9. Although I had a very small tumor on 1 lymph node, I was told chemo would not benefit me. I had 28 +6 radiation treatments after my mastectomy. If my score was in the questionable range, I would have opted for chemo.

      almost 5 years ago
    • teddyfuzz's Avatar

      Mine was also 21. Chemo optional but strongly recommended. Multifocal Invasive Lobular Carcinoma, Stage I, grade II. I opted for a bilateral mastectomy and had 4 rounds of chemo. Not fun but I wanted to know that if the cancer came back I did everything I could to kick its a$$ the first time.

      almost 5 years ago
    • Laurie's Avatar

      Mine was 34. Because I had double mastectomy (was 3rd occurance) and tumor was very small (.0.8 cm), I got to go without chemo. Any larger and I would have had to have it. Suppose I could have done it anyway, but really really really really didn't want to.
      Oncotype is done on fixed tissue (meaning can be done after pathologist has done his work). So, your onco doc can ask for it after reading the path report.
      Mammaprint does more genes, but has to be fresh, unfixed, so you have to specifically ask for it ahead of surgery.

      almost 5 years ago
    • GetMyLifeBack's Avatar

      mine was 14 and chemo was optional...i opted against chemo

      almost 5 years ago
    • sjjohnson1's Avatar

      My score was 31. Just into the high category. So, chemo and radiation. I want to know that I have done everything I possibly can do.

      almost 5 years ago
    • Nellie's Avatar

      My score was 19 and I have done two rounds of chemo and two more to go with 6 weeks of radiation after chemo completed. I was ER+, PR+.

      almost 5 years ago
    • Nellie's Avatar

      My score was 19. Onco suggested chemo before he knew score because of my young age (47). I have had two rounds of TC regimen and two more to go, six weeks of radiation and tamoxifen.

      almost 5 years ago
    • Elle's Avatar

      Oncotype DX is not an option if you are Triple Negative, like me. I'm in week 6 of an aggressive 26 weeks of chemo, then I'll have radiation. What's scary is there's no way to tell if the chemo I'm having is even effective on the type of cancer I was diagnosed with, IDC. Hormone therapy isn't an option either for Triple Negative. I'm on board to do anything and everything I can to rid my body of cancer! My thoughts are if you have options for treatment, no matter how slight, why would anyone not do all they could?

      almost 5 years ago
    • Lafflady's Avatar

      mine was 25 or more and I was told I had to have chemo even though my breast tumor was tiny, in situ, and hadn't spread anywhere. The side effects of chemo after treatment have been life changing. I am now wishing I had thought about it more... the old quality versus quantity.
      fyi My cancer was estrogen dependent. I had just been through 9 years of therapy to find the only relief from my life-long depression was high doses of estrogen. I found normalcy. They had to stop the estrogen. The double depression of cancer and no estrogen and vagaries of being a single senior has made life a bit tough. I hope I take some action soon to beat my depressions.

      almost 5 years ago
    • bbrown's Avatar

      I was diagnosed in '95 with early stage ICDU and had no lymph involvement. At that time I had a lumpectomy and did several months of radiation but no chemo. In May of this year I was diagnosed again after 18 years if being breast cancer free. We decided to do undergo a radical double mastectomy even though the cancer was in the opposite breast. This was not a good summer since I chose to try reconstruction and was not able to tolerate the expanders, so they had to be removed. I am just now beginning to feel better and now my oncologist has sent off the tissure for the Oncotype test. Depending on the result he will decide if I need to have chemo. I don't really understand why this would be necessary since I have no breast tissue left. We have not decided which way we will go if he does recommend chemo. I won't do it for a while in any case. I don't think my mental state would allow it!

      about 4 years ago
    • TheProf's Avatar

      I am struggling with the decision as my score was 19... kind of like getting a D-
      "The Prof"

      almost 4 years ago
    • DLL's Avatar

      My double mastectomy was don exactly 31 days ago. Is is too late to get an Onco DX TEST?

      over 3 years ago

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