• ca 19 9

    Asked by country on Thursday, May 23, 2013

    ca 19 9

    Husband is due 6th folfox tx and ca19 9 went from 11.1 to 15.2 does this mean the treatment is failing, next step is clinical trials parp inhibitors in Arizona, But was hoping to complete 12 folfox tx with good results and now this slight rise.Anyone had this happen and then go down? Thank-you
    Country

    5 Answers from the Community

    5 answers
    • FreeBird's Avatar
      FreeBird

      No it does not. That number is still very low, and it looks to me like there was almost no change at all. CA19-9 is a poor indicator, especially when it's so low like that. It's just one small clue as to what's going on in there. Not all pancreatic cancer patients even have an elevated CA19-9.

      The normal range for CA19-9 is 0-37 U/ml. In my research on pancreatic cancer, I have seen people with a CA19-9 up as high as 15,000. My dad's CA19-9 hasn't been tested since late last year. It never went above a few hundred. I really wouldn't be concerned about it unless you see a big jump.

      The best way to tell what's happening in there is the PET scan.

      over 4 years ago
    • FreeBird's Avatar
      FreeBird

      no change at all in the CA19-9 levels, that is.

      over 4 years ago
    • FreeBird's Avatar
      FreeBird

      Here's some additional information from the Pancreatic Cancer Action Network http://www.pancan.org/section_facing_pancreatic_cancer/learn_about_pan_cancer/diagnosis/CA19_9.php

      over 4 years ago
    • JMS's Avatar
      JMS

      I am about to start on the regime of Folfirinox (as of next Wednesday), but am a bit confused about the CA-19-9 numbers you cite. Mine have shown a steady increase since I completed my initial 12 months of treatments (from 2300 in late March to now just under 8000) and this is one of the reasons I have to get back on chemo. But your numbers and mine are so completely different that I'm confused as to how they might correlate. Are you dealing in thousands?
      I would also be interested in any information you could provide about the clinical trials you mention.
      Meanwhile, as I move through my own experiences with Folfirinox, I'd be glad to share information or respond to questions. JMS

      over 4 years ago
    • FreeBird's Avatar
      FreeBird

      If they are listed in thousands, that would be something different, and that would be a significant difference from 11,000 to 15,000. What does it say on the paperwork? I am sorry if I misunderstood that you're saying thousands.

      For my dad, it started with something like 50, and only went up into the hundreds during the time that they were measuring it. I was going crazy trying to figure out what it meant, and was told that for some people it goes into the thousands.

      over 4 years ago

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