• Can anybody tell me what happens with Inflamatory Breast Cancer with No treatment?

    Asked by Wanda7 on Tuesday, December 12, 2017

    Can anybody tell me what happens with Inflamatory Breast Cancer with No treatment?

    6 Answers from the Community

    6 answers
    • Chachi's Avatar
      Chachi

      Wanda - I have IBC. When I had a “final” diagnosis after all my tests were completed, it had already spread to bone. IBC can (and does) spread very rapidly. I felt like I was fine one day - and in a matter of days / weeks, things got much worse. Much of the info in the internet is very scary esp. because there is a lot of old data out there. Those who have been treated in the past 10 years or so see much better results. In my case, I was able to be treated as an oligometastatic patient - which ultimately resulted in my cancer going away. Basically - what would have been considered a miracle. So don’t give up hope! Where do you live? There are several hospitals that specialize /do research on IBC and since IBC is so rare, you want to at least do a consult with one of these places. (For example, place in Texas, Boston, Atlanta, Chicago, etc.). I was lucky to be able to be tested in my hometown - was lucky to have a very knowledgeable radiologist - and we consulted with Mayo). There is also a great app available with very easy to read and up to dayte info on IBC that I can point you to. And there is a fantastic organizational IBC specific Facebook site that you should join where you can get great support.

      But know that if you decide not to get treatment, IBC is so quick in spreading, doing nothing will likely result in this cancer very rapidly spreading to bone and or your brain and organs. Your days would be numbered.

      11 months ago
    • Chachi's Avatar
      Chachi

      The Facebook page available to those with IBC is called “inflammatory Breast cancer support”. It is a wonderful source of information and support from those who have already walked this journey / or who are currently undergoing treatment.

      11 months ago
    • BarbarainBham's Avatar
      BarbarainBham

      Wanda, please update us and let us know how you are doing. We can guide you to financial help if you need help.

      I see you are in Panama City and want to suggest if you need other treatment that Birmingham has a large research medical center (UAB), and the American Cancer Society has a free hotel for out of town cancer patients and provides a ride to treatments. Let me know if you want more info on that.

      11 months ago

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