I was going over my advanced directive booklet this morning. It says "Anyone can register. Do not rule yourself out. Whether or not you can be a donor is not determined until time of death, ad criteria for donation continue to change". Based on that, I would continue to sign up for organ donation.

i will totally continue to sign up to be an organ donor. as long as the medical care team knows my health history, the best possible decisions can be made. if i never have a recurrence, then the vast majority of my bits could be useful to someone.... if i needed, say, a kidney, and there only one decent match for me -- from a cancer survivor who had... say stage one colon cancer or something like that. i would not hesitate to say yes please.

i did get kicked out of the bone marrow registry. i notified them of my cancer diagnosis, and they wrote me back saying that the safety of their patients was the number one priority. i kind of felt like i should have been kept in the registry, but perhaps as a tier two donor, which could be a last resort donor or something like that. if i had two choices... die or have a chance with a cancer survivor's marrow, i'd probably go for the cancer survivor's marrow.

anyway, those are my two cents. it's an interesting question - worth thinking about. if i had metastatic disease, i would definitely NOT sign the card....

Whether and which of you innards can be used is a medical decision that can only be made after you are dead, whether you are a cancer survivor or not. I would continue checking the box on your licence.

Thanks for your advice. I did take it. Renewed my license yesterday (a couple months earlier, so I'll have hair, since I haen't started tx yet), and I did leave my designation as organ donor. The procurement team can figure it out at the appropriate time.