• Cancer recurrence?

    Asked by KB2013 on Thursday, September 12, 2019

    Cancer recurrence?

    Re: lung cancer (4) and sx of recurrence. Would some of those be: all over eczema like rash and itching including upper back, thinning hair, cough with mucous, severe fatigue and sudden dozing off, aching in shoulder, new ab pains (sharp, cramping), all over body chills even on very hot days?
    I’m asking here because my family doctor says maybe I’m feeling these things because I’m depressed but, I never have before. Any lc pts have any ideas in these sx possibly being cancer? I’m really embarrassed asking but, I am worried.

    13 Answers from the Community

    13 answers
    • cards7up's Avatar
      cards7up

      Not sure how long ago you went through treatment, but when was your last scan? I'd ask for a low dose CT scan at least of the chest, just to be on the safe side if it's been a while since you've had one.

      7 months ago
    • KB2013's Avatar
      KB2013

      Last scan was May. I was told it was okay. Next is Nov.

      7 months ago
    • GregP_WN's Avatar
      GregP_WN

      It's common to be worried and panicked even. I've been 32 years out from my first diagnosis and 11 out from my last. I get worried every time I feel something odd I start freaking. Ask questions and get answers. Peace of mind is invaluable!

      7 months ago
    • meyati's Avatar
      meyati

      KB, I'm leaving for my annual scan in a few minutes. I have many of your symptoms, and I've been to the ER several times, just about moved into the nearest Urgent Care, and saw my hematology oncologist. I see my radiology oncologist Thurs. then my dermatologist Oct. 9.
      This has been going on since mid-June. I've lost weight because my lips-cancer site is the focus. I've lost lots of weight too. I wish you well, as I probably have an idea of how you feel.

      7 months ago
    • meyati's Avatar
      meyati

      And, I've been haunting my primary care doc.

      7 months ago
    • wmsavs' Avatar
      wmsavs

      @KB2013, it's human nature as others have pointed out to be concerned. To allay any of those concerns reach out to the doctor who requested the November scan you mentioned, describe your symptoms and concerns and ask if they may want to push the scan up for you? Please keep us updated.

      @meyati, I haven't seen you in a while and concerned now about all you're going through. It does sound like you're on-top of it and with wonderful, effective doctors. You also please keep us updated.

      7 months ago
    • meyati's Avatar
      meyati

      I don't know what my scan said. The radiologist that reads the scans and makes the reports was out for lunch. I have to wait til Thursday. I wasn't able to take my benadryl on time, so my face is an itching mass.

      I just wish that I didn't have to wait months and months to get doctors interested.

      One good thing is that I have a disk from today with my scan for my radiologist, and I didn't have to pay for it. .. It's like the 1940s, me having to carry my records from doctor to doctor. I wish they didn't make that new HIPAA rule, where doctor offices can't share information.

      7 months ago
    • Dawsonsmom's Avatar
      Dawsonsmom

      Meyati, my reports are all shared with my PCP without me having to do anything other than sign a release of information. All my cancer treatments/scans are done in one cancer center, so all the oncology providers have access to the record. You might ask about signing releases so reports are automatically sent to all your providers.

      7 months ago
    • meyati's Avatar
      meyati

      @ Dawson--I guess I'm sounding defensive--but I am 77 years old and I've been around the block a few times. #1--my HMO network has facilities in several counties, and yesterday I had my scan in another county. .All medical centers aren't run the sameway. We seem to have the New Mexico model, because we are in New Mexico. I hope that you believe me when I go to an X-Ray, scan or laboratory. I demand to know what doctors will get the results. I insist on signing releases, then I follow up with complaints--I keep saying that I'm in the position of a patient in the 1940s that has to go to office after office to get records for the other doctors.

      Next, my ENT Is in the same building as that scan, yet he only gets the written report not the actual scan view, which they say should have him get the actual views, but he doesn't get them. . This happened last year-so I made sure that he gets the real digitized real deal. I have the disk to give to him. After last year's snafu, I did call my insurance rep and the scan company- and they both said it was a new HIPAA reg to protect my privacy. I told them that I wanted to sign off this reg, so my doctors know what another doctor is doing.

      This keeps my Primary Care doctor from being in the loop, as her office is a half mile from my house. My hematologist is in the network as a contractor that Presbyterian pays, but nothing is shared. He did give me my lab results on paper, and I mailed them to my primary care doctor. maybe she can enter them in my Presbyterian chart-maybe she can't.

      I won't get any type of scan at my neighboring hospital that my Primary Care doctor is in. I find those techs to be rude and abusive. I have a head scan---If I don't eat, I do throw up-so I don't fast. At the local Pres facility-scans--I was told they couldn't do the scan because I didn't fast- and they kept berating me like I'm an idiot. I think that I picked up my phone to call my doctor---Hello. I'm Mary DeForest, DOB: 01/27/1942 and I'm having trouble getting my----I was also walking out with my purse. I was scanned-but called a trouble maker. I took my son with me for when I said that I ate a big breakfast so I wouldn't throw up.. Tech was real nice. When we got to the room, where my son couldn't observe she began abusing me verbally. My son came to the door and asked if there was a problem....So darn straight--I'll drive to a different county where I'm treated like an adult. I went to the local place for a bone density. I told the tech that a knee was bothering me, please give me time to place my legs. She smiled and said OK-- then she proceeded to treat me like a dairy cow-just grabbing and twisting. I lim. ped out of there. I complained-and the tech said that I was non-compliant head cancer patient. . So, I go to a different facility, even if I have to drive to another county.

      7 months ago
    • Dawsonsmom's Avatar
      Dawsonsmom

      Meyati, what a nightmare!!! You have been treated beyond poorly. I am a retired clinical social worker and heard these kind of stories from patients getting care at our local facility and that drove my decision to go out of town. I can certainly appreciate what you are going through and am sending a shout out to you for being such a good advocate for yourself. It’s just that shouldn’t have this burden on top of trying to manage your treatment!! I am so sorry you are having this awful experience. Virtual hug to you!

      7 months ago
    • KB2013's Avatar
      KB2013

      meyati, hope your scan is good. The doc I saw yesterday said my dermatitis might be my cancer manifesting so is sending me to dermatologist. What next?

      7 months ago
    • meyati's Avatar
      meyati

      @Dawson----I worry about my family handling this regulation and Pres translation of the reg, if I'm down. Honestly, I went in for my annual thyroid scan. The lab says that it's impossible but they had to have crossed my files with somebody else. It started that I needed to fast-and my doctor keeps swearing that she doesn't list me fasting. My Dr has even put it in writing. Then the tests that the hematologist ordered were put under my PCP's name. Meaning my doctor that ordered those would not get the lab results. I got hold of my primary care- about fasting and if she had asked for any of those tests. Meanwhile the lab tech started gossiping about me right in front of me. I didn't file with the FEDS, but I made calls to administration and those got fired. I wouldn't get any blood drawn until they'd tell me who the ordering doctor is. Well my hematologist and primary care had fits with the lab. I had some tests that nobody ordered.

      I really hate this new fed reg about not sharing lab results. In reality it means that I'm also getting the same test over and over. Ouch--

      7 months ago
    • meyati's Avatar
      meyati

      @ KB I'll find out for sure what my scan says on Thurs, unless they post it before the visit. I will see my radiologist on Thursday.

      Because I had skin cancer, my dermatologist told me they now have chemo creams for cancer on the skin. My radiologist said those are bad because they drive the cancer down. Since then, I read a report last year the creams do take care of the cancer, work good. I also know they have chemo pills too for some skin cancers. I worry about the initial biopsy, because it would take the upper and lower lip off..

      My ENT told me that my cancer returns as "granular". I don't know if that means the skin or the flesh under the skin. My skin is becoming like sand paper. Oct 9, I see my dermatologist---Oct 10, I see my ENT. This Thurs radiologist.

      So far, 3 doctors think that it could be cancer. One that it was an allergy, and another one that thinks it is a bacteria skin infection that's around the mouth-it swells the lips up too.

      Meanwhile, pass the Benadryl.

      Hang in there--our time will come to get answers. I hope that you don't have anything bad.

      7 months ago

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