• Caregiver Best Practices: Your Thoughts?

    Asked by Rick1970 on Saturday, March 15, 2014

    Caregiver Best Practices: Your Thoughts?

    After 6 months of trying to "be there" during my spouse's Pancreatic cancer (Stage IV) journey, I'm realizing that not even 43 years of marriage have prepared me to be an effective caregiver. Your thoughts and/or any references for caregiver training and/or tips will be greatly appreciated.

    5 Answers from the Community

    5 answers
    • SamTed's Avatar
      SamTed

      In this case, I am the patient, who has was diagnosed with pancreatic cancer 7 months ago. I am trying to use my remaining time well and appreciate my wife's help. We have been married over 46 years, yet she still is not prepared for this, nor can anyone be.

      I have no idea how soon it will end, but I want to make all as good as it can be in the meantime. I do not need undivided attention, and I still want to be in charge of my own life.

      To me, the most important thing is honesty. Long talks, memories of pleasures and grief. In one way, I feel blessed by having a "2 minute warning" before my life is over.

      almost 6 years ago
    • MMarie's Avatar
      MMarie

      I took care of both of my parents. When I look back now, with much more clarity and knowledge, I wonder how I did it. After my mother's death, I worked as the regional director for our local chapter of the Alzheimer's Association. I was fortunate enough to be trained as a Master Trainer in a program called "Powerful Tools for Caregivers". While taking the class is optimal since it gets you out and allows you to meet others experiencing similar situations, purchasing the book is an option. It might be worth contacting the company itself to see if anyone is trained in your area. Be well.

      http://www.powerfultoolsforcaregivers.org/

      almost 6 years ago
    • Rick1970's Avatar
      Rick1970

      Thanks everyone! I really appreciate your comments! While they're consistent with what my wife's oncologist has recommended, it's great to hear the thoughts based on personal experienced. Prior to my wife's PC diagnosis, we were very active walkers, hikers and bikers. So, spending time away from her to exercise ... i.e., stay fit, is the most difficult thing for me.

      almost 6 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more adenocarcinoma, pancreatic cancer questions.  Also, don't forget to check out our Adenocarcinoma, Pancreatic Cancer page.