• Caring Bridge

    Asked by MarS676 on Saturday, April 13, 2013

    Caring Bridge

    I was wondering how many of you have used caringbridge.com? I started an account to keep my family and friends updated on my condition and am so glad I did. I now have a journal of my cancer experience and reading through my entries shows me how much I've changed in the last 9 months. I can't believe how much cancer changed my life, how scared I was in the beginning and how strong I've become.

    I highly recommend the site to anyone starting their journey, writing things down really helped me deal with all my emotions.

    6 Answers from the Community

    6 answers
    • Kathy's Avatar

      I used caring bridge and loved it. It was a great way to get an instant message out to my loved ones especially when something significant was happening that day. And then they could know what was going on without having to call. And yes, it is like a journal. I recommend it.

      over 3 years ago
    • leepenn's Avatar

      caring bridge is awesome... so is just keeping your own blog... i chose the latter. i wanted control over how it looks and so on. so, it just depends on what you're looking for. caring bridge does a fantastic job, and i have several friends on it. when they post, i receive notifications, which is excellent because then i know right away when something's been updated.

      the most awesome thing is that it gives the blogger a bit of control over WHEN we talk about our diagnoses. so often, people would come to my office wanting me to drop what i was working on so that i could talk about cancer on their terms. i found this enormously frustrating because the time spent on cancer-thoughts would basically extend for quite a long time after the visitor left my office... or maybe i encountered a friend at the food coop... or at the library... rather than having to tell the same story over and over and over... i could simply say that i'm keeping a blog and would be happy to send the link ... etc... that way, i had a lot more control over when conversation turned to cancer. that made a HUGE DIFFERENCE!

      also, i included quite a lot of detail - in hopes of making it a bit easier for other people dealing with cancer.... and in hopes of deflecting detailed questions about blood tests and scan results and so on. people could find out as much as they wished... or not.

      also, it's super interesting to go back and read.... and remember... how i've gone through phases of strength and phases of anxiety and fear and phases of ... well... joy.

      rleepenn.wordpress.com -- in case you'd like to check it out.

      may you all have a lovely day!

      over 3 years ago
    • Nancebeth's Avatar

      I dont use caring bridge but know lots who do. I started blogging which definitely helped to keep my friends updated but was therapeutic for me as well.

      over 3 years ago
    • Nancebeth's Avatar
      over 3 years ago
    • Jaimebrie's Avatar

      Hi MarS676,

      I totally agree with you! Caringbridge is absolutely amazing. I used it and still do now. It is wonderful to have a place to write everything so your family and friends can stay updated on how you are doing, plus they can write to you and give you encouragement. Plus, you don't have to repeat the same things over and over, which would be so exhausting. Writing is very therapeutic and I have always kept a journal, and even more so during my treatment and surgeries. I highly recommend it as well. It is also how I stay in touch with the wonderful people I met during treatment. Writing really helped me deal with everything I was going through.

      over 3 years ago
    • bethmac3s' Avatar

      Caring bridge was phenomenal! I loved it!

      over 3 years ago

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