• chemo

    Asked by RitaP on Friday, May 24, 2013


    Who has any experience with Taxotere, Carboplatin, Herceptin?

    11 Answers from the Community

    11 answers
    • SueRae1's Avatar

      I was on Carboplatin from July 2012-Dec 2012. I had issues with blood counts, and needed to self inject Nupergen to prevent my white blood count from getting too low, and needed a whole blood transfusion and a shot of arsept because i had chemo related anemia right before Thanksgiving. I stop taking the drug because my platelets plummeted and did not recover. My cocktail also included Gemzar, which i am told is also damaging to bone marrow, and Avastian. i had one Ciscplatin infusion in early Jan, when my count when my platelet count went above 75. The week after that treatment, they were back down in the 50s where they remained until late March. Though my count is above 75 it still has not gone above 100.

      about 5 years ago
    • Ydnar2xer's Avatar

      I just finished 5 months of "TCH" the end of January. I'm still getting Herceptin every 3 weeks. I see that both of us are Her2+...you know, they say that Herceptin is WONDERFUL for our type of cancer. Of course, I love it because it causes absolutely NO side effects! Wish I could say the same about the TC!

      I had 6 "cycles" of TCH--Week 1 TCH, Week 2 TH, Week 3 TH = one cycle. The weeks of TH weren't too bad. I had icky side effects from the taxotere--bloody nose, mouth sores, painful finger and toe nails. But those were yucky inconveniences, not too terrible.

      The carboplatin weeks I got to hating. I got my chemo on Tuesday, then was ok Wed & Thurs, but then felt like I had the flu Fri-Sun or even Monday. I hurt all over; I was incredibly sleepy and generally felt ICKY. You may react quite differently-- it might be a good idea for you to keep track of how you feel every day during chemo for the first 3 weeks or so. Then you'll figure out what days you feel ok--so you can plan things for those days and get on with life!

      Are you getting steroids, too, to keep you from getting sick? I did, and was so WIRED afterwards, I finally asked if my dose could be cut down. My onc cut it in HALF and I felt so much better.Good luck, Rita. This trip isn't easy, but you can do it! Contact me if I can be of further help. :-)

      about 5 years ago
    • Joachima's Avatar

      I had 6 cycles of Taxotere (and Gemzar). In addition to pre-medication on the day of infusion, I was prescribed Decadron (steroid) a day or 2 before and 2 days after infusion. My doctor is not sure if it was the Taxotere or the Decadron, but, I had a side effect of tachycardia and heart palpitations. My team thinks it could have been reacting to coming off the Decadron too fast, so they slowed it down. I still had the symptoms, though not as strong. I also had severe muscle /bone pain - especially in my legs, diarrhea & other G.I. issues. I found that if I stayed away from lactose and wheat products, and raw veggies then I felt better. My blood counts were low as well. These are the side effects that I remember - there may be others that are not as significant. BUT, we are all different and you may react differently to Taxotere. I prayed alot and asked my friends & family to do the same. I found that my faith really helped me to get through. No matter how bad I felt, I stayed focused upon the light at the end of the tunnel. Today, I am one year out of chemo and 9 months out of radiation ... and cancer-free. So grateful. God bless you along your journey.

      about 5 years ago
    • kjd's Avatar

      taxotere is rather nasty.take pleanty of rest

      about 5 years ago
    • Myungclas' Avatar

      It sounds like I had an easier time with TCH than some others. I did have to get the Neulasta shot, but it didn't hurt much and I didn't get achy from it. If you need the shot, ask the nurse to warm it (mine put the wrapped syringe under her arm for a few minutes) and push it slowly. As for fingernails, I put mine in a bowl of ice during the Taxotere infusion, and I had no trouble at all with them. Never got mouth sores either, but I kept water bottles filled with the soda and salt solution all over the house so I'd remember to gargle often. Do what you can to take care of yourself. Best of luck and keep us posted if you have questions once you start.

      about 5 years ago
    • Msreje's Avatar

      Good morning RitaP, I had six rounds of TCH- started last July-, one every three weeks and in the in between weeks herceptin. Once the six TCH ended I stayed on herceptin every three weeks. My full treatment from start to end will be one full year. What can I say? It is challenging but doable. The doctor gave me a bag full of meds to take before treatment: steroides and anti- nausea pills. The steroides made me feel like jumping out of my skin and the energy of a six year old child. All I can say is that my house was so so clean during the time of steroideds, also my family ate like kings, I baked and cooked like crazy. The chemo at the beginning was not bad but as the weeks passed I was very very tired. I slept a lot and felt like I could not move. I listened to my body, I rested when I needed to rest. I moved into my spare bedroom to allow my husband to rest during the night, my timing was off most of the time, I read at 2 am, baked at 4 and went to sleep at 8 am. During these difficult times everything goes. whatever makes you feel good you do. You do what you can and what you cannot do it just doesn't get done. I was told to drink plenty of fluids after treatment to flush everything out. This is a MUST!!! After treatment the chemo brain was annoying, it did not last the whole three weeks but I would say about a week and a half, I felt "out of it". My taste buds went wild, nothing tasted the same, whatever I had liked before I hated during treatment, all I ate were carbs, not good for my weight but I did not care. My hair started to fall after the second round and I chose to shave it off, my skull was very sensitive and I could not stand it. This was the hardest part of all, loosing my hair, but it has come back!!!! I ended TCH in November and in March for my 50th birthday I went out without a wig, very short hair but MY HAIR!!!! My nails stained badly and they look like fungus nails but are not. Thanks to stick on nails I have been covering them. I have only one nail left that needs to grow out and then I am done with stick ons. I also developed neuropathy on my hands and feet, not fun but reflexology has helped. I have a little tingling left. I do not know if it will go away.
      As you can see I was honest about everything to expect, it was not easy, time helps us to forget. All I did was think this is going to make me better, I will be strong and fight!!!! I am fighting and will continue to do so. Be strong, be a fighter and all my best wishes for you. Marisa

      about 5 years ago
    • mhc's Avatar

      I used Taxotere and Carboplatin. Very important: if you need to get a Neulasta shot, start taking Claritin every day. One of the side effects of the Neulasta shot can be bone pain and the Claritin will prevent that. Doctors are starting to tell their patients about this, even though very few studies have been done about it.

      about 5 years ago
    • Kossmore's Avatar

      I had Taxotere and Herceptin, other than being tired that was the only real problem.

      about 5 years ago
    • SMeridith's Avatar

      I also had TCH for six treatments and then Herception every three weeks. I was scheduled to take Herception for a year but after 8 months developed heart problems (ejection fraction) so had to stop treatments. I also had Nuelasta shot after each TCH treatment.....I think it made me feel worse than chemo!!
      Fatigue was my biggest issue. I did, of course, lose my hair but not my nails. My skin blistered on my hands, arms and face...just like I had a bad sunburn. Even a year after the last Herceptin treatment my face still gets beet read from time to time which never happened before chemo.
      My taste buds suffered...everything tasted the same...like wet cardboard. I did have some digestive issues but meds really helped. Take them faithfully as directed and you will be better.
      It was not an easy time or pleasant, but it passed and there truly is a rainbow at the end. You can do it just knowing that you are fighting and you will win.
      Be good to yourself, rest, stay the course and keep the faith!!
      Good luck.

      about 5 years ago
    • Chrissy's Avatar

      Just finished my last Taxotere (#6) on May 17th. For me it was the toughest chemo as far as side effects! Had ACT in '09 and Carbo/Gem last summer, which was not effective and had to skip many treatments due to low blood counts and cancer kept growing. Depending on my CT scan the first week of June,(i pray its good news because dont think i or my body can take another cycle of Taxotere) we will see what step is next! My oncologist says we will probably take a break but my PA thought we would continue if it was doing its job. I talk them both after the scan. They felt so bad for me, I was constantly calling with a new symptom. They said I literally got every symptom the lovely Taxotere had to offer, including a rash that occurs in about 2% of patients. I do need a break! I'm so thankful it's summer, it definitely lifts your mood! Good luck with your journey and what helps is to stay positive even when you dont feel it yourself. This isnt your forever, just another bump in the road and an experience to make you stronger!

      about 5 years ago
    • laurie2025's Avatar

      I just finished a 6 dose regimen of TCH. I am ER+ PR+ & HER+. It really messed with my taste buds; everything tasted awful. Also still have lingering neuropathy in my fingers. DId not lose my nails though. Lots of fatigue. And, I had my mastectomy after the chemo, and there was still cancer; it did not kill it all. Luckily the surgeon was able to remove it.

      about 5 years ago

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