• Chemo Brain on Folfox

    Asked by abrub on Saturday, July 19, 2014

    Chemo Brain on Folfox

    Question: if you suffered from chemo brain while on Folfox, how soon did it start? I didn't have that issue, but that is the biggest concern of a friend who is scheduled to start chemo soon. Since she has received more than one opinion regarding the necessity of chemo in her case, and she is very concerned about her mental capabilities and her job, she'd like to have some idea how soon the first signs of chemo brain start to be felt.

    Thank you for your input.

    11 Answers from the Community

    11 answers
    • Asanayogini's Avatar

      I had chemo brain but is not as bad as you think . The answers are there it just takes a little time to remember . Don't push yourself, it will come.. I also experienced after the chemo I'm back to normal , so hang in there it's gets better.

      about 7 years ago
    • abrub's Avatar

      The question was how soon did you notice the chemo brain? Not everyone gets past it. I'd love to give her an idea to see if it might be worth starting chemo and doing a few cycles.

      about 7 years ago
    • IKickedIt's Avatar

      Just as you never have chemo brain, who says your friend will have it? And as you know, everyone has it to a different degree and I'm sure it starts at different times for each person. I have it and it has greatly affected my life. You're right, it doesn't always come back for everyone. No, the answers aren't always there. As frustrating as it is, I still wouldn't jeopardize NOT doing chemo for something that might not happen.

      Honestly, I don't remember when I started noticing it (and I'm not being a smart-aleck with that answer).

      about 7 years ago
    • abrub's Avatar

      @IKickedIt - thank you for your answer. In her case, if chemo is of questionable benefit, she may choose to slip it. I quit chemo early because the show effects made its uncertain benefits in my case not worth it. (My on was very up front worth me in telling me that for my particular cancer, they would never know if chemo had affected anything, so it really want worth it to me.

      about 7 years ago
    • CrazyHarry's Avatar

      After 3 weeks of FOLFOX and about 4 weeks of Xeloda with radiation.

      Fully recovered, I think.

      I had terrible side effects from both chemo treatments. But there are others who had none.

      about 7 years ago
    • azsuper's Avatar

      HI Abrub

      My chemo brain started around chemo #7 or #8 treatments of 12.
      You don't loos your mind so don't worry so much

      about 7 years ago
    • zubsha's Avatar

      I was never convinced chemo brain was a chemical response It is more of an emotional response When I needed to be on my game I was but there were times when I just didn't feel like exerting the energy and so I didn't It isn't anything that keeping a list of things to do can't fix Also, if ANYONE on her team thinks chemo is a good idea she should stop thinking about it and do it I have seen too many people who didn't do chemo turn up with stage IV a couple of years later. Even if that doesn't happen the "what if's" are way worse than chemo brain and last at least 5 years!

      about 7 years ago
    • glam's Avatar

      I still have chemo brain so I can't remember when it started!!!! hahahah!!!! no, seriously, I do suffer from chemo brain till now but say your friend you learn how to manage it......there are several good websites and techniques you can follow to improve your ability to deal with it and to exercise your brain to avoid and/or minimize this side effects.....I personally like very much www.lumosity.com and I also adopt some habits such as try different paths to go to same place, keep a list of to do list....exercise, meditation, yoga and change my routine as much as I can......I definitely found easier to manage with chemo brain than with cancer....I would suggest your friend first and main objective.....killing this stupid disease from her body....not give any room for it to go further.....I am a stage IV B survivor....9 scars a year of chemo lots of side effects but I don't regret any step I had to give to kill it and I am very happy and I am cancer free now.....wishing you and her all the best....God bless her and give her the necessary wisdom and serenity to make the right choices....God continue blessing all of us

      about 7 years ago
    • AmyJo's Avatar

      I think it depends on what type of cancer you have and what kind of chemo you're on as to how it will effect your body. I've been on chemo for 4 years now and honestly I can't tell you when it started. I would never refuse treatment because of the possibility of chemo brain. It's something we all have to deal with, some less, some more.

      I try to laugh at it. If I didn't, I'd make myself miserable. The other day my son was opening a fortune cookie. I asked him what his steam roller said. Of course I meant to say fortune cookie. They all laughed, including me. Laughter, especially at myself, as gotten me through a lot of the stress cancer can cause. I can't afford to take everything so seriously. I'm stage IV colon cancer with mets to liver and lungs, active in lungs. I'm living each day as a gift and I try to make each day a wonderful gift.

      My blessings to you and your friend. Remember ~Never Lose Hope~

      about 7 years ago
    • RobbieFlores' Avatar

      Wow. I can't remember either...(joke)...for me it was after 6 treatments. It wasn't really bad but it does happen. It's really short term memory and ability to concentrate. It's also a great excuse when you can't remember someone's name. ;0)

      about 7 years ago
    • Andrew's Avatar

      It has been one year since I finished FOLFOX and I still have chemo brain!! Very frustrating.

      almost 3 years ago

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