• CT & PT Scans

    Asked by lolu on Sunday, March 25, 2018

    CT & PT Scans

    Hi, this is lolu, I have a question, does anyone know who is responsible for telling the patient what is on his or her PT & CT Scans?I have an oncologists that only treats Lymphoma, a primary dr. who gets copies but thinks that the other drs are taking care of the problems and ENT. I recently had two scans and a MRI requested by two different DRs. This information on these scans in not given to the patient. You have to request copies. When I requested to have copies of theses scans I was shocked to find out that their was information on them that was never told to me and never tested. The reading Dr. of the PT scans requested that an ultra sound on my thyroid because of nodules found and on another scan a request to see a heart dr. When I questioned my oncologist, he said he only deals with Lymphoma. The ENT said your primary dr. should call you if there is further testing should be done.They are all shifting the blame and no one has taken responsibility to notified me.

    13 Answers from the Community

    13 answers
    • SandiA's Avatar
      SandiA

      I am so sorry you are going through this. It has to be so frustrating. When I have the scans I always get the report from the ordering doctor. I know my scan reports always list the ordering doctor. Is there a nurse you trust that you can talk to and she if she can help you straighten it all out. I really feel for you I hope they straighten it all out.

      over 1 year ago
    • geekling's Avatar
      geekling

      You need to be responsible for your own health despite what doctors tell you.

      You need a complete list of your meds. You need to be doubly sure they do not contraindicate each other. Also double check with a pharmacist.

      You need to request and keep copies of ALL of your health records and tests and reports. A best scenario is to already have copies by the time you next see your doctor so that you can discuss the results with him and bring up any and everything which niggles at your brain.

      Im sorry but this is your 'welcome' to modern medicine. You are your own overseer.

      Best wishes for soon recovered good health.

      over 1 year ago
    • GregP_WN's Avatar
      GregP_WN

      Whoever told you that you needed the PET Scan, is the one who will have the results for you. You do not have to get a copy to find out the results. You wouldn't be able to read the scan anyway, there's nothing wrong with having a copy, but you don't have to do squat to get the results. Call the doctor who ordered the tests, simply ask what the results were. As far as the oncologist only treating your lymphoma, my oncologist says the same thing. I had a problem with my back I wanted looked at. She said, our area is only above the neck. (head and neck cancer) it's a liability/specialist thing. One specialist doctor isn't going to even look at other issues you may have. As far as the "reading doctor" ordering an ultrasound, I'm not sure it was him, are you? He is a radiologist. His sole job is to read the scan and tell the results. Maybe your primary care physician ordered it, or your oncologist may have ordered it. Just ask them who ordered it. It's not a secret, it will be in your file, and who wanted it done. Speak up for yourself and ask questions until you get all the answers you need. Then let us know what you find out. I'm curious now how this is going to play out. We wish you the best with it.

      over 1 year ago
    • carm's Avatar
      carm

      Hello Lolu,
      I make all my patients ask for the hard copy when they take these tests. I have taught many patients how to read a PET because it is not a radiological test...it is nuclear medicine. I can tell you that whatever M.D. ordered the test should be explaining the results...although as an oncology nurse I am asked often for a more in depth explanation.

      over 1 year ago
    • barryboomer's Avatar
      barryboomer

      This should NOT happen and is awful.
      There is no excuse....

      over 1 year ago
    • lolu's Avatar
      lolu

      My oncologist orders a PT Scan of the entire body. When he gets the report he only looks at and tells me what pertains to Lymphoma. If their is something else on the scan that he doesn't handle like my thyroid or lungs he doesn't tell me to see another Dr. He completely ignores it. Even when the reading DR. suggest that I have an ultra sound done on my thyroid. Not until I requested a copy of the PT that I read it. This is about 2 months ago and now I have a nodule on the thyroid. My primary Dr. gets a copy also and I guess he thinks my oncologist is handling it. What do I do?

      over 1 year ago
    • SandiA's Avatar
      SandiA

      I don’t know that is awful. My oncologist looks at stuff pertaining to the cancer but he reads the full report and mentions other issues and will make suggestions in fact sometimes his office will actually make me an appointment with the doctor I need to see to follow up. He will say such and such showed up and we will need to get some help in that area. I am not usually one to say change doctors because I know that’s not always easy, but that’s not right. Do you have a good relationship with his nurse. I developed one with mine and she was the best resource to get stuff done and help with work the system. I am so sorry you have to deal with this.

      over 1 year ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      When I first start treatment, I had my gynecologic surgical oncologist and my medical oncologist. I asked them both, who is steering this ship. My surgeon was. Mostly because he was the head of oncology at my hospital.... And I was good w/that, at least until he semi-retired and left the practice. Now I just have my medical oncologist....

      over 1 year ago
    • JaneA's Avatar
      JaneA

      I always ask my oncologist for a copy of the scan results at the end of the visit. At first, reading the scan results may "freak" you out a bit. The radiologist always errs on the side of caution by saying something "might" represent a recurrence or is "suggestive of" residual disease. Or they suggest continued follow up. I believe that most cancer patients should be proactive and keep all of their scan reports and get to know the size and location of all of their nodules. But you also need to realize that the size of these nodules can vary a bit from scan to scan because of where the slice of the CT scan hits - imagine a nodule that is oval in shape - if the scan slices at the very of the oval, it appears smaller - if the slice is at the middle of the oval, it appears larger. So most oncologists aren't worried unless there is about a 30% increase.

      over 1 year ago
    • lolu's Avatar
      lolu

      I want to Thank everyone who answered my question and for their help. I have an appointment with my oncologist at the end of this week. Maybe he can clear this up for me. I will let you know what he says to me. Thank You Lolu

      over 1 year ago
    • carm's Avatar
      carm

      Lolu, keep in mind that if the PET scan demonstrated an SUV score under 2.5 then that nodule could be anything from a cyst, a polyp, even scar tissue. If your oncologist didn't mention it then in all probability...it didn't rise to the level of concern and has a low SUV score.

      over 1 year ago
    • Cookie48's Avatar
      Cookie48

      I have been going thru this same problem so I saw the add for Cancer Center of America where they say beside the onocologist-they have the nutritionist,multiple advisors and people checking on all aspects of your well being---very appealing! my father went there in 1980's and they used vitamins along with traditional. But even though I pay extra $200.00 monthly for medicare supplement -they seem not to be returning my calls. Sounded so good -going try Univ of Houston MDAnderson next which actually deals with this type of lymphoma-mantle cell. We do not need the extra stress of uncaring,rigid doctoring.

      over 1 year ago
    • carm's Avatar
      carm

      Cookie48...I have to say you described CTCA to a tee. I wish I could have warned you but I am glad you are seeking M.D. Anderson.

      over 1 year ago

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