• Dare I ask?

    Asked by KB2013 on Friday, February 7, 2020

    Dare I ask?

    Today, my family doctor advised me he just read my scan reports I had done two months ago which were ordered by my oncologist. He asked if I know I have two neoplasms with one that’s been growing as shown on the past four scans! I told him I was told there’s nothing new. I read the report he was holding and it clearly states progression was noted with each new scan. Is it possible the other dr, knowing I’m stage IV, just chooses not to tell me because they don’t do surgery on stage IVs? My oncologist is nationally recognized in his field so this makes me reluctant to question him but, WHY tell me ‘all is well’? I’m worried! I have four more months before the next scan. Anyone else experience this?

    9 Answers from the Community

    9 answers
    • JaneA's Avatar
      JaneA

      This is our body and our disease and our fight. I find this reprehensible on your oncologist's part.

      First of all, we should ask for a copy of their scan report before they leave the office so that we know for ourselves what the scan report says. We need to know where our nodules are, their size and how they have grown or shrunk over the period of our treatment.

      Yes, you should ask. Stage IV patients have the same rights as every patient. And some of live long and productive lives with stable disease.

      Once you ask him, if you're not satisfied with his explanation, then it's time to get a second opinion. I'm so sorry that you're in the dilemma.

      4 months ago
    • GregP_WN's Avatar
      GregP_WN

      Yes, you need answers and quick. Doctors are all just people, some good, some great, some not so good, but in the end, they are just employees of ours. Some of them just go through the motions, some slip-up and don't do what they should be doing. We never really know, but I would want an explanation about this and where exactly you are and your scan is.

      4 months ago
    • Bengal's Avatar
      Bengal

      I would be all over this. If your oncologist is trying to protect you from bad news that's not his call!

      4 months ago
    • Created07's Avatar
      Created07

      I totally agree with all of the above. You have lost trust, and without trust it is awfully hard to hope. This doctor has no idea what damage he has done. You need to tell him, not just for yourself, but for his other patients as well.

      4 months ago
    • meyati's Avatar
      meyati

      OK- Greg- I had the opposite problem, and this could be a factor with you. One radiologist kept saying that I had pre-cancer and cancer in my tonsils, the right side of my throat, the roof of my mouth, etc. First, I went to my ENT who did multiple biopsies. They were negative. He picked a different part of my mouth and throat each time.

      My oncology radiologist went to him and complained.. Would you believe that the next scan was reported as unreadable, because my doctor didn't write up the order correctly? I went to the head manager and went female John Wick on him. I tried to be reasonable. They kept that reader on.

      That's part of the reason that I drive to a different county to get a scan with a decent reading radiologist. Whoever read your scans might be a dip like the one I had or at least a similar reputation. They don't want to stress you at all, and they want to check your old readings.

      I went to an allergist Wed. She asked if any pics were taken of my face. I requested my records from May 1 to now, and I listed the ER, Urgent Care, and Primary WITH the PICS. There weren't any pics, no labs, nothing-and I had to pay for them. My allergist is requesting pics from the dermatologist. I picked up those records too, and there weren't any pics either. I am just plain frustrated. My coonhounds say that it's bed time so

      4 months ago
    • 2943's Avatar
      2943

      I had to add...’Dare I ask’. Many of us do not want to offend, etc. I am one of those involved patients. I have all my tests, scans, even operating room notes. I asked for a second opinion, my primary said no problem and off I went to a major teaching hospital. Very personalized care that saved my life. You do not dare not to.

      4 months ago
    • wmsavs' Avatar
      wmsavs

      Hi @KB2013, it is really remarkable that some of these doctors have the right to even practice, let alone confer with patients. We are, at the least, entitled to a second opinion. I would use that tactic to see another doctor to allay any concerns you may have. Please keep us posted...

      4 months ago
    • Paperpusher's Avatar
      Paperpusher

      Please get another opinion. My husband's first scan after his RL lobectomy showed something suspicious that the radiologist recommended being investigated further. The surgeon who deemed hi cured after the surgery said it was just artifacts from the surgery. Well 6 months later we're being told his cancer is back with a vengeance in his RUL. Inoperable, incurable but treatable. Then rushed to chemo and radiation. We wish we had gotten a second opinion at 6 months. Hindsight is 20/20.

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer (Best Answer!)

      I've never experienced anything like that at all, but I wouldn't hesitate one single solitary moment in questioning the oncologist, whether he's nationally recognized or not. My oncologist, too, goes all over the world doing presentations, etc. about lung cancer, particularly immunotherapy and targeted therapies, but I ask him the most minute questions ... and I expect him to answer honestly and thoroughly, even if they seem like they are not very intelligent questions. Not only that, when I had progression, he wanted me to wait around to get into another promising clinical trial, but I went against his wishes and had radiation therapy to that spot. I have never regretted that decision. It took a while for our relationship to get back to as close as it was before I went against his choice, but you're the one with the cancer and you should be given the options for treatment, in my opinion.i

      4 months ago

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