• Dealing With Brain Mets

    Asked by GeorgeR54 on Saturday, February 2, 2019

    Dealing With Brain Mets

    How do You Deal with Brain

    6 Answers from the Community

    6 answers
    • JaneA's Avatar
      JaneA

      I've know several people who have had the Cyberknife (a type of radiation) for brain mets. Only your oncology team can evaluate your particular situation and come up with a treatment plan. Best wishes for treatment success.

      about 1 month ago
    • KB2013's Avatar
      KB2013

      I have undergone tx for a total of ten of those boogers since 2013 and we're watching a new one now. What you can expect is dependent on size and location. Make sure she is treated by a brain neurosurgeon specializing in oncology. Mine are treated using the GK.

      about 1 month ago
    • wendyp1000's Avatar
      wendyp1000

      It depends so much on which type of cancer you have and what radiation knives are available at your location. My friend's husband has mets to the brain (and all over his body - he has melanoma that has metastasized all over his body) - he had the gamma knife treatment at the Miami VA and they surgically removed 1-2 tumors. He cannot have anymore surgical removals and it is ONLY chemo that he can have from now on. The Cyberknife is another machine that can hone in on brain tumors.

      about 1 month ago
    • KB2013's Avatar
      KB2013

      wendyp1000...something isn't right with the 'he can ONLY have chemo...from now on.' I've had many GK treatments and will probably need more down the road as I've never not had brain mets; chemo doesn't cross the brain barrier so I don't get your friend being advised it would help. Your friend should consult a cancer ctr other than the VA as brain mets grow much faster than other cancer tumors and you die without intervention. Heads up, second opinion is advisable.

      about 1 month ago
    • wendyp1000's Avatar
      wendyp1000

      My friends are absolutely broke and have no other options beyond the VA. In fact, she may well be homeless after he passes away as her widow military benefits won't even cover rent here in the Fort Lauderdale area. Efficiencies go for $1000.00/month and she needs at least a 2 bedroom (around[phone number redacted]/month).

      It is possible she hasn't told me the whole story as she is going through XXX right now with 2 children under the age of 10 - one with severe autism. All I know is that he was diagnosed with over twenty tumors all over his body (she showed me his PET/ CT scan) and that he had brain surgery to remove one or two out of over a half dozen tumors in his brain. She told me he is stage IV and that they had set him up for chemotherapy (after the gamma knife and surgery) - I know he was in and out of the hospital last week because he had a swelling reaction to his chemo. Couldn't tell you what drug protocol he is undergoing. But she has been told to prepare for his passing soon. She lives day by day... often spending 6-8 hours per day at the VA with kids in tow.

      about 1 month ago
    • KB2013's Avatar
      KB2013

      There is no limit to the number of GK treatments you can have to the brain so I don't understand why they wouldn't treat the brain mets.

      Your friend can apply for SS benefits for her dependent children under her husband's account, now while he's alive or wait until he's gone but, she should begin the application process now. She can ask at her local human services office about help with medical assistance for the kids, food stamps and sign up with HUD for Section 8 housing which usually has a wait list but, there are also rental assistance programs in some states. She can check with societies that work with disabled children too, particularly autism and seek support from a support group for parents of autistic children. If she has parents, she could ask to stay with them while she gets on her feet.

      If the rent in Ft. Lauderdale is too high for her, the solution would be to relocate to a place she will be able to afford. She could benefit from a local cancer support group if there are any near her.

      Many cancer patients (and all stage 4's) are given poor prognosis but, they don't die on time, actually outlive the prognosis, some long term so, unless he's on his death bed or just throwing in the towel, only good care and time will decide his fate. I have zero advice on dealing with the VA but, I think they passed a law recently that gives vets the right to seek care outside the VA. Maybe someone else on here has more advice to help your friend or knows about Florida and it's resources under these circumstances.

      23 days ago

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