• dedeffrinated liposarcoma

    Asked by christabell413 on Monday, April 15, 2013

    dedeffrinated liposarcoma

    Had my surgery March 20 2013 tumor resection going into surgery the bx showed a desmoid tumor, after 14 days post op pathology report came back dedeffrinated liposarcoma, blind slided with the diagnosis....going for ct scan lung hoping it didnt spread to lungs April 16 ...dr reports no need for chemo/radiation.Margins clear. Sending my slides to MD Anderson to review my slides for second option. Any information on real life experiences I would appreciate. Feeling extremely overwhelmed,scared. Chrsitine

    2 Answers from the Community

    • carm's Avatar

      I am an oncology nurse and I am always here to help you with any questions you may have. I have attached a link to help you get some answers you seek. Best of luck to to, Carm RN.


      over 3 years ago
    • Hopegirl's Avatar

      I have had a number of liposarcomas of differing sizes in my thigh and groin and my lung. It's been a long journey (18 years), but I'm still here and living my life.

      I had radiation before my first surgery to shrink the tumor as it was so large. I was cancer free for 10 years, and then it came back in my groin.

      To treat my lung, I've had Cyberknife, which has worked very well. I've had various other treatments to my thigh (chemo, RFA, Crioblation). There is a new procedure called NanoKnife that has had success, altho it's in just a few hospitals for now.

      Let me know what questions you have, and I'll try to answer them. Please keep this in mind - altho liposarcomas are rare, there are new treatments being developed. All the best to you.

      over 3 years ago

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