• Diagnosed with CLL almost two years now. No active treatment, just playing the waiting game. Any suggestions to overcome tiredness?

    Asked by Gcuervo65 on Thursday, September 20, 2012

    Diagnosed with CLL almost two years now. No active treatment, just playing the waiting game. Any suggestions to overcome tiredness?

    3 Answers from the Community

    • Tracy's Avatar

      Waiting is so hard. Give yourself permission to be in this war and take care of yourself. Others who don't know what you are going through may say things like "get over it etc." but you are living with extreme stress very much like PTDS. If you can get out in nature, watch movies that will help you laugh. You have made the first step with finding us. Once you are diagnosed you have entered a different reality of living with Cancer. The stress needs to be managed, watch out for depression it is a big problem and may be part of your tiredness. Take care of yourself, Tracy

      over 8 years ago
    • diannemonroe's Avatar

      The ENT that did the biopsy to diagnose the problem gave me the best advice: Listen to your body. I have been in remission for six years this month, and I still get tired easily. When that happens, I rest. I am able to work and live my life, but fatigue is an issue. My house is not as clean, but that is something I can live with. I nap for around 30 minutes every day and try to exercise at least 3 times a week. Have you tried Naked juice? I try to drink that when I feel run down. You get it in the produce section, and there is a pound of fruit in each bottle. I also drank a lot of it during chemo. The doctor tried chlorambusol ( I don't know if I spelled that correctly), a pill to try to reduce the white count, but that didn't work for me. After about two years of watch and wait, then the pills, I had chemo. The diagnosis was actually SLL because the disease presented itself in the lymph nodes. I know it is tough--everyone has always said to me, "But you don't look sick!", and I have really fought to not make illness a huge deal in how I think about myself.

      over 8 years ago
    • cjs7159's Avatar

      When your body tells you to rest-rest. If I let myself get over tired, that is when I end up getting ill in some way, usually a respiratory infection. Also, check with your doctor to see if you are anemic. Medication can help to increase your hemoglobin & hematocrit. I was diagnosed in 1997 at the age of 38. I did not have chemo until 2008. As others have said, it can be very stressful and people do say that you do not look sick. I was never in remission, but responded well to the chemo ( I did FCR ). The nausea was extreme during my second round when the cytoxin was added, but I was given better antinausea medication that controlled it during my remaining treatments. I may need to have chemo again in the near future. I see my hem-onc later this month. Would like to put it off as long as possible.

      over 8 years ago

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