• Diagnosis

    Asked by aedwards on Monday, April 13, 2015

    Diagnosis

    My husband was just diagnosed with inoperable bile duct cancer. His only symptoms were pain on the right side and profuse vomiting. He was misdiagnosed and they removed his gall bladder. I don't understand how they didn't see the 6 cm mass on his liver, which unfortunately has invaded the portal vein, thus making it unable to be resected. My concern now is what treatment path do we take? I've been reviewing many websites and forums and this diagnosis seems dismal, at best. We are in the Cleveland area, but Cleveland Clinic is not on our insurance, so we have chosen University Hospitals, at least for now.

    5 Answers from the Community

    5 answers
    • TXHills' Avatar
      TXHills

      I'm very sorry you and your husband have to go through this, but welcome to the community here. Other peole with knowledge in that type of cancer will likely have some answers for you, before too long.

      over 4 years ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am so sorry. Please don't give up yet! I don't know anything about his particular cancer ... but put your efforts toward fighting!!!

      What treatment path is recommended by his oncologist? Do you feel comfortable with him or her? If not, or even if you do, it might be worth seeking a second opinion so that you have confidence in the plan.

      I am a huge proponent of clinical trials. I went through traditional chemo for my lung cancer. I have never been as sick as I was during that time ... I would do it again, but it was not pleasant. When that treatment quit working, my oncologist told me I could start a different drug that wasn't as effective and made people even sicker, or I could try a clinical trial. It was a no-brainer for me. I have been in the trial since 7/2013 and am doing so well. There might be some miracle drug out there being tested that would work similarly for your husband.

      Best of luck to you both.

      over 4 years ago
    • paintmare's Avatar
      paintmare

      I would definitely look into clinical trials. Good advice from LiveWithCancer.

      over 4 years ago
    • aedwards' Avatar
      aedwards

      How do you pay for clinical trials? Do you have to travel to them? Would my husband stay there for months? Our insurance isn't the best and we don't have much money. I would have to stay to work. I am the only source of money. I've read that clinical trials #3 is where the best treatments are because they're proven but not FDA approved yet, so I don't think insurance covers them. I am so happy to see that you're winning the battle LiveWithCancer!

      over 4 years ago
    • mataylor11's Avatar
      mataylor11

      I am 37 and was just diagnosed with bile duct cancer. It was only found cause I had a baby and thought the pain I was having was caused by my c section, when they did an ultrasound they found four masses on my liver, one being the size of a lemon. They quickly removed 65% of my liver, which did remove all the tumors. I guess because it had ashtray spread to my liver it is considered stage four. I start chemo next week. I had two of my veins in my liver removed also, so maybe a second opinion to see if that would be an option. I am under the understanding that I will never be cancer free or even in remission, that this type will only lay dormant until it grows again. I can't seem to find too much info on this though. Looking for clinical trials as a back up and I am also starting on cannibas oil, I am not normally a pot smoker but am willing to try anything to beat this. I was lucky enough to find a distributor who was willing to donate the oil since we are also struggling financially due to missed work, extra money on getting to treatment, etc. Look up the oil though, all research I can find is positive. Its called rso. Good luck and hang in there

      over 4 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy


    Read and answer more bile duct (cholangiocarcinoma) cancer questions.  Also, don't forget to check out our Bile Duct (Cholangiocarcinoma) Cancer page.