• Did anyone do FCR chemo for CLL/SLL?

    Asked by Taagbu on Monday, October 1, 2012

    Did anyone do FCR chemo for CLL/SLL?

    6 Answers from the Community

    6 answers
    • GregP_WN's Avatar

      Be patient, someone on the site will answer soon. Another way to find information on the condition is to us the filter on the right side to search for Leukemia, CLL. You will find matches and can talk with them directly.

      Wishing you well!

      over 8 years ago
    • cjs7159's Avatar

      I had 4 rounds of FCR for CLL in 2008. I was supposed to have 6 rounds but I responded so well that I did not need the last 2 rounds. I had to delay some of my chemo becaue my white count became too low. I had neupogen infections to increase the white count. The cytoxin caused a lot of nausea. Make sure you get good antiemetic medication and some for at home to use if you need it. My hair became thin, but did not fall out completely which surprised my Dr. What other questions do you have?

      over 8 years ago
    • diannemonroe's Avatar
      diannemonroe (Best Answer!)

      I had 5 months of FCR 6 years ago. I was stage III. The doctor had me on pneumonia medication, an anti-viral medication, and lots of nausea medications. I also had to take 40 mg of steroids every chemo day (3 consecutive days) each month. The steroids were tough--I didn't sleep well for about 10 days straight beginning with day 1 of chemo treatment. I did respond well to treatment, but it took a lot out of me for a while afterwards.

      over 8 years ago
    • Kaz's Avatar

      I had FCR in 2006 for CLL. I was in Stage 4 when starting the treatments. I had 6 rounds of FCR each 4 weeks apart. My fatigue levels did improve after the 4th treatment. I did have some nausea and thinning of the hair. My WBC did go too low once ( I was required to be hospitalized for a few days) during the cycles which required me to delay one treatment for about a week. The treatment resulted in a complete response. Unfortunately, CLL came back after two years. This is not unusual. I believe at the time the normal recurrence rate was about 6 years ( I don't know what it is now). I am currently on another drug PCI-32765 which is working great. PCI-32765 along with one called CAL-101 are newer drugs ( both in trial stages) that have been showing great promise.

      FCR is a well known and effective treatment for CLL. All the best.

      over 8 years ago
    • still_fighting's Avatar

      On my 1st round of chemo I had FCR for my CLL. I became anemic and had to have 4 blood transfusions and iron IV's and blood building shots. This treatment didn't work well for me and after 3 treatments we had to stop and try something else. I was told that I can never take these treatments again...it was a one-shot thing. My oncologist then put me on a general cancer chemo they called 'Red Devil' and that seemed to work very well. It cured my Non-Hodgkins Lymphoma and put me into remission. I went into remission for a year and a half before I had to take chemo again. I'm not sure what the treatment was called but it is supposed to be 'the thing' in CLL treatment. It made me feel so very bad that after 5 of the 6 treatments with 20% cancer cells remaining my ongologist stopped the treatment and put me on just the Ruxtin. I am currently in semi-remission and taking the Ruxtin treatments every 6 mths for 2 yrs. I start them up again on the 25th providing everything goes well with my blood tests. I hope the FCR helps you more than it did me, some people don't have any trouble with it. I never lost my hair, but I had dry mouth, nausea, anemia, weakness and mouth sores with it. I hope all goes well for you.

      over 8 years ago
    • Banrambo's Avatar

      I have b cell SLL/CLL and mite begin chemo in the near future. Am curious as to what symptoms and/or blood counts triggered the need for treatment. Are y'all in remission, or what is current status? Thx

      over 7 years ago

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