• Did anyone get Lymphadema from Radiation??

    Asked by DianaDancer29 on Sunday, September 29, 2019

    Did anyone get Lymphadema from Radiation??

    15 Answers from the Community

    15 answers
    • beachbum5817's Avatar
      beachbum5817

      I had lymphedema, but mine showed up following my double mastectomy and removal of 16 lymph nodes. I was getting physical therapy to help regain full motion in my arm, and my therapist noticed it. I had noticed that my watch was tight, but I just thought it was from gaining weight. I did see her 3 times a week until I was done chemo and radiation. Fortunately, I have never had it come back. If you have lymphedema, I hope you are able to find a knowledgeable therapist to help you. Good luck. Take care.

      5 months ago
    • Mlaq's Avatar
      Mlaq

      Beachbum5817: Thank you got your encouraging comment. I am dealing with lymphedema now. I’m in the middle of radiation treatments. I’ve been very discouraged

      5 months ago
    • CherieF's Avatar
      CherieF

      I too developed it during radiation. The radiologist did not seem concerned but when I went to the oncologist he sent back to the surgeon. Fluid had built up and they removed 100 cc. I am now scheduled to see someone for therapy. I pray yours is resolved soon

      5 months ago
    • GregP_WN's Avatar
      GregP_WN

      I was lucky enough to not have any of that through two different diagnoses where I had radiation. I probably had about every other side effect though, I'm still dealing with several of those. We hope you get relief from it.

      5 months ago
    • MLT's Avatar
      MLT

      I had lymphedema before radiation, but it flared up during radiation and returning to work after surgeries and chemo. Physical therapy should help, plus I had to wrap my arm. Wishing you some relief.

      5 months ago
    • sarasmash's Avatar
      sarasmash

      I actually got lymphedema in my left leg. I had alot of lymph nodes taken out though and they believe that's the cause.

      5 months ago
    • sheri56's Avatar
      sheri56

      I've been dealing with lymphedema for 9 years now. Began after lymph node removal and I believe aggravated by radiation. Seen lymphedema therapist 4 different times over 9 years. Started using compression pump about 6 weeks ago, twice a day for hour each time. Sadly, I haven't noticed much change since I started using pump. The swelling in my arm occurs most when I am doing something physical ie gardening, cleaning, golfing. Compression garments help the most. I know this is something I will deal with the rest of my life. On the bright side, I am a 9 year cancer survivor.

      5 months ago
    • Abendintheroad's Avatar
      Abendintheroad

      I developed lymphedema 5 months after my final radiation treatment. I had 9 nodes removed during surgery and maybe more were damaged during radiation but had no problems until we went to a state park and drove to an altitude of around 8,000 ft. My hand started swelling a couple of days after we got home. I went to a lymphedema PT and got it resolved but now it's in my breast and around my ribcage and back. I've been doing massage on my own and wear a compression bra (so attractive! :) and that helps a lot. Cancer seems to be a gift that keeps on giving!

      5 months ago
    • Ashera's Avatar
      Ashera

      I had a lumpectomy and 21 nodes removed - axilla disection - and developed chording - hard wirey areas in upper arm and under arm which I began going to an OT for massage right before I started radiation. Radiation probably didn't help. I wear compression sleeve on my R arm and once/twice a week, I have a Bio-Compression full R chest/arm pump that runs for an hour. It has helped keep the fluid managed that develops under my arm/side and breast. Yep! This was all a free gift with purchase, Abendintheroad!

      5 months ago
    • Crimson's Avatar
      Crimson

      I developed lymphedema 5 years after surgery, chemo, and radiation. I started to feel that the skin on my arm no longer fit properly and it hurt to fully extend my arm, especially up. Heavy lifting while gardening seemed to trigger it. I saw a lymphedema therapist and learned how to self-massage, got a sleeve and was prescribed a pump.
      It still flares up, but it is now manageable.

      5 months ago
    • msndrstood's Avatar
      msndrstood

      Mine started within days of surgery after a bilateral mastectomy last October. I also had 16 lymph nodes dissected. I went to massage therapy at OT for several months, got a sleeve and a pump. I use the pump every night but that sleeve, ugh, I use it on the weekends when my husband can help me get it on correctly, otherwise I depend on the pump to do its job. Some days it's worse than others, but it's not painful, l just heavy at times. My doc told me I'd have it for life, that most likely it won't go away.

      4 months ago
    • msndrstood's Avatar
      msndrstood

      Mine started within days of surgery after a bilateral mastectomy last October. I also had 16 lymph nodes dissected. I went to massage therapy at OT for several months, got a sleeve and a pump. I use the pump every night but that sleeve, ugh, I use it on the weekends when my husband can help me get it on correctly, otherwise I depend on the pump to do its job. Some days it's worse than others, but it's not painful, l just heavy at times. My doc told me I'd have it for life, that most likely it won't go away.

      4 months ago
    • robynr's Avatar
      robynr

      I have a machine from Tactile Medical called Flexitouch plus. My lymphodema it in my neck so I have a vest and head piece that straps under neath the chin these are hooked to air hoses. The machjne inflates and deflates the vest and head piece as to act like a lymphe massage. It helps to keep the inflammation down. Makes it easier to swallow and talk. I can really tell the difference when I neglect to use it as I should

      4 months ago
    • robynr's Avatar
      robynr

      https://www.tactilemedical.com/products/flexitouch-system/
      Above is a link for the flexitouch. They have gear that goes on pretty much the entire body. Also I think it feels awesome... relaxing!! My insurance company paid for it too.

      4 months ago
    • petieagnor's Avatar
      petieagnor

      I have slight lymphedema since surgery in '06. I have the exercises to do & wear a sleeve when I'm puffy. Summer for me is the worse as I hold water anyway. Water pills are great, but they can be dangerous. I follow my check sheet so I don't get into trouble.

      3 months ago

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