• Did anyone get Lymphadema from Radiation??

    Asked by DianaDancer29 on Sunday, September 29, 2019

    Did anyone get Lymphadema from Radiation??

    12 Answers from the Community

    12 answers
    • beachbum5817's Avatar
      beachbum5817

      I had lymphedema, but mine showed up following my double mastectomy and removal of 16 lymph nodes. I was getting physical therapy to help regain full motion in my arm, and my therapist noticed it. I had noticed that my watch was tight, but I just thought it was from gaining weight. I did see her 3 times a week until I was done chemo and radiation. Fortunately, I have never had it come back. If you have lymphedema, I hope you are able to find a knowledgeable therapist to help you. Good luck. Take care.

      24 days ago
    • Mlaq's Avatar
      Mlaq

      Beachbum5817: Thank you got your encouraging comment. I am dealing with lymphedema now. I’m in the middle of radiation treatments. I’ve been very discouraged

      24 days ago
    • CherieF's Avatar
      CherieF

      I too developed it during radiation. The radiologist did not seem concerned but when I went to the oncologist he sent back to the surgeon. Fluid had built up and they removed 100 cc. I am now scheduled to see someone for therapy. I pray yours is resolved soon

      24 days ago
    • GregP_WN's Avatar
      GregP_WN

      I was lucky enough to not have any of that through two different diagnoses where I had radiation. I probably had about every other side effect though, I'm still dealing with several of those. We hope you get relief from it.

      24 days ago
    • MLT's Avatar
      MLT

      I had lymphedema before radiation, but it flared up during radiation and returning to work after surgeries and chemo. Physical therapy should help, plus I had to wrap my arm. Wishing you some relief.

      24 days ago
    • sarasmash's Avatar
      sarasmash

      I actually got lymphedema in my left leg. I had alot of lymph nodes taken out though and they believe that's the cause.

      22 days ago
    • sheri56's Avatar
      sheri56

      I've been dealing with lymphedema for 9 years now. Began after lymph node removal and I believe aggravated by radiation. Seen lymphedema therapist 4 different times over 9 years. Started using compression pump about 6 weeks ago, twice a day for hour each time. Sadly, I haven't noticed much change since I started using pump. The swelling in my arm occurs most when I am doing something physical ie gardening, cleaning, golfing. Compression garments help the most. I know this is something I will deal with the rest of my life. On the bright side, I am a 9 year cancer survivor.

      22 days ago
    • Abendintheroad's Avatar
      Abendintheroad

      I developed lymphedema 5 months after my final radiation treatment. I had 9 nodes removed during surgery and maybe more were damaged during radiation but had no problems until we went to a state park and drove to an altitude of around 8,000 ft. My hand started swelling a couple of days after we got home. I went to a lymphedema PT and got it resolved but now it's in my breast and around my ribcage and back. I've been doing massage on my own and wear a compression bra (so attractive! :) and that helps a lot. Cancer seems to be a gift that keeps on giving!

      22 days ago
    • Ashera's Avatar
      Ashera

      I had a lumpectomy and 21 nodes removed - axilla disection - and developed chording - hard wirey areas in upper arm and under arm which I began going to an OT for massage right before I started radiation. Radiation probably didn't help. I wear compression sleeve on my R arm and once/twice a week, I have a Bio-Compression full R chest/arm pump that runs for an hour. It has helped keep the fluid managed that develops under my arm/side and breast. Yep! This was all a free gift with purchase, Abendintheroad!

      21 days ago
    • Crimson's Avatar
      Crimson

      I developed lymphedema 5 years after surgery, chemo, and radiation. I started to feel that the skin on my arm no longer fit properly and it hurt to fully extend my arm, especially up. Heavy lifting while gardening seemed to trigger it. I saw a lymphedema therapist and learned how to self-massage, got a sleeve and was prescribed a pump.
      It still flares up, but it is now manageable.

      21 days ago
    • msndrstood's Avatar
      msndrstood

      Mine started within days of surgery after a bilateral mastectomy last October. I also had 16 lymph nodes dissected. I went to massage therapy at OT for several months, got a sleeve and a pump. I use the pump every night but that sleeve, ugh, I use it on the weekends when my husband can help me get it on correctly, otherwise I depend on the pump to do its job. Some days it's worse than others, but it's not painful, l just heavy at times. My doc told me I'd have it for life, that most likely it won't go away.

      14 days ago
    • msndrstood's Avatar
      msndrstood

      Mine started within days of surgery after a bilateral mastectomy last October. I also had 16 lymph nodes dissected. I went to massage therapy at OT for several months, got a sleeve and a pump. I use the pump every night but that sleeve, ugh, I use it on the weekends when my husband can help me get it on correctly, otherwise I depend on the pump to do its job. Some days it's worse than others, but it's not painful, l just heavy at times. My doc told me I'd have it for life, that most likely it won't go away.

      14 days ago

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