• WhatNextEmails' Avatar

    Do you have a cancer facility or hospital near you that offers "survivorship" programs?

    Asked by WhatNextEmails on Saturday, June 15, 2019

    Do you have a cancer facility or hospital near you that offers "survivorship" programs?

    Here is one at Wake Forrest Baptist Health Cancer Survivorship Clinic. Click this link to watch a news clip about it. https://www.wxii12.com/article/wfbmc-cancer-survivorship-clinic-opens/28007396

    13 Answers from the Community

    13 answers
    • Carool's Avatar
      Carool

      Yes, MSKCC. Nineteen years ago, in their post-treatment group for women, I met three women there with whom I’m still friends. MSK has many groups for survivors of many different kinds of cancer.

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am on some kind of advisory board at my clinic. They were talking about how we have to have a survivorship program ... I can't remember the details right now, but it sounded like they were being forced by regulations to get something going (which is, for once, a good thing (said she who is generally not in favor of regulations for much of anything))

      4 months ago
    • GregP_WN's Avatar
      GregP_WN

      In 32 years of treatments and everything that goes with cancer, not once have I been asked about my survivorship needs, or have I been given a brochure about anything. It is needed.

      4 months ago
    • meyati's Avatar
      meyati

      I was forced into a Survivorship program at a new cancer clinic. First---our state cancer clinic at the main state medical center is always being sued for lots of unimaginable things. Like systematically using old- out-dated chemo at too high of a dose-really--and on down the line-especially in the children's cancer clinic.

      So the new cancer clinic has almost the same name--and to trick people into going to the state clinics-they have names that are slightly different-almost like the state name-like knee surgery--back pain--.neurology--etc. So, I refused to go to the new clinic-- I had been tricked by the state before.

      I was so unhappy with my regular clinic--the staff continued to be rude-- then the hematology oncologist became interested in my non-existent sex life. He even contacted my primary care--both Presbyterian-NM- about my sex life. My lip hurts a lot, I can't stand it to be touched-for several years-during a lip exam by my dentist, ENT, Urgent Care, Primary care, ER, and the TREATING Radiologist, I'd let out a scream from lip pain. I have other physical reasons where I don't want to date or be romantic.

      My Primary Care told me that I needed to go to the new clinic, and she had talked to the doctor in charge of the survivorship program.

      So, I went. At first- the doctor was negative aggressive. He said that I had a bad rep with men and I was a trouble maker. The only reason I did well with primary Care is that my doctor is a female immigrant. That he do the visit, but I wouldn't be accepted.

      I was astounded. I told him that I had the same dentist for 25 years. I gave the name and phone number. I had the same ENT since the cancer diagnosis. That I'd been the GI clinic since 2010- and the only reason that I changed doctors, was because I got the older doctors that retired-I wasn't a problem. He called my dentist-ENT-Primary Care. Then he said that he'd accept me.

      Since then- the powers that be say that I don't need to be monitored so closely. My ENT and Survivorship doctor are taking over from the radiologist. Last summer, Pres said that I was diabetic-- they said it before-but they were trying to force this down my throat-wanted me to take insulin. Part of that is I vomit if I don't eat well--Cream of Wheat, bacon eggs and toast, sausage eggs and hash browns, fajitas, huevos rancheros. When my stomach bothers me--Cream of Wheat without milk or sugar-- boiled white rice-more probiotics-Pepto Bismol-.

      Anyway, my Survivorship doctor-saw the write up. He asked me if I actually was fasting about 1:30 pm-- I told him -NO--I throw up if I don't eat. He asked me what I ate that day---it was hearty high protein meal. He explained that many hematologists are concerned that the new health standards and practice of good medicine is making people dependent on insulin- when they normally - would not need insulin for awhile or forever and not have diabetes. He pointed out that I had the normal and healthy glucose level of a 30 year old.

      One would think that when an afternoon glucose is run-- that the lab wouldn't label it as fasting, especially when somebody like me said they ate eggs, toast with margarine and a hearty protein---My glucose is usually in the same range-only a few points off.

      So, a good survivor ship doctor can help you with other health issues and keep you healthy.

      4 months ago
    • Kp2018's Avatar
      Kp2018

      I am very fortunate to have a satellite of Michigan's Karmanos Cancer Institute near me which offers extensive survivorship services. There is a multiweek class offered for survivors and their families. There are also numerous support groups for survivors, for patients undergoing treatment, and for caregivers. There recently was an ice cream social to celebrate National Cancer Survivors Day.

      4 months ago
    • BugsBunny's Avatar
      BugsBunny

      My area is small and rural where I get treatments. They are not advanced enough like some of the larger facilities to have anything like this. They don't even talk about what you should do after treatments are over or offer any suggestions.

      4 months ago
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      Nada. Even the support groups around here meet between 9 & 5. So incredibly helpful for those of us who worked through treatment.

      4 months ago
    • meyati's Avatar
      meyati

      Or they are where there isn't any parking, and in a bad part of the city-where there are lots of muggings-etc.

      4 months ago
    • CancerChicky's Avatar
      CancerChicky

      Mine didn't give me any information or orientation or anything like that, but they did direct me to a website that has some "Survivorship Plans" that you can follow. But I saw more information than that about survivorship plans in a blog post here on WhatNext a while back.

      4 months ago
    • buckhunter's Avatar
      buckhunter

      I just hope that I make it to the point where I can be concerned about such a program.

      4 months ago
    • Created07's Avatar
      Created07

      Ours is in the cancer center and meetings are posted all over the center for our convenience. My quarrel is with under-educated primaries who have no idea how to handle the PTSD caused by cancer.

      4 months ago
    • GregP_WN's Avatar
      GregP_WN

      I was just reading about the Penn State "Oncolink" website. It has lots of information about cancer diagnoses of all types and an extensive section on survivorship programs. Here is a link to the article
      https://www.pennmedicine.org/news/internal-newsletters/hupdate/2019/june/oncolink-25-years-and-millions-of-hits-later

      4 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      https://oncolife.oncolink.org/

      The above site helps you develop your own survivorship plan. I didn't look at it today, but I have looked at it a lot in months (years) past. Take a look if you're wishing you had a survivorship plan and don't.

      4 months ago

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