• Do you think the internet is an escape from reality and cancer, or has it been somewhat of a burden for you?

    Asked by GregP_WN on Wednesday, February 15, 2017

    Do you think the internet is an escape from reality and cancer, or has it been somewhat of a burden for you?

    By having instant access to all information about any subject, we can find ourselves immersed in researching and dwelling deep into our diagnosis.

    17 Answers from the Community

    17 answers
    • BuckeyeShelby's Avatar
      BuckeyeShelby

      The internet is a two-edged sword. As far as info on the disease, one must be so careful to vet where the info is coming from and if the source is reputable. And even if it is... I went through the ACS site and looked at 5 year survival rates and figured I'd be dead soon. Back in Aug 2012.

      On the other hand, I found What Next VERY early in my journey and I would probably have gone loco if I didn't have someplace to ask stupid questions, ask not so stupid questions and vent.

      5 months ago
    • Molly72's Avatar
      Molly72

      The information available about medical issues is extremely important to those of us who recieved next to nothing from our medical "team". It's like living inside a library, but of course, one needs to choose carefully which (book) site to open.
      But those who play constantly on narcisstic social media sites should get a real life!!! LOL, it's a playground for the Kartrashian generation.

      5 months ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      I am not one to dwell on my disease so I haven't spent inordinate amounts of time researching. However, on occasion, it has been a godsend.I am very careful when choosing sites and information to trust/believe.

      I love What next and would be hard-pressed to give it up.

      Am strongly considering giving up Facebook because I am so sick of the political posts. I hate to lose touch, though, with some of my friends...

      5 months ago
    • Coconut's Avatar
      Coconut

      Sometimes, the wealth of information creates confusion and turmoil that effects our judgment especially when we Relate the acquired knowledge to the situation we are facing. The internet has opened a new horizon for us to explore, but with many challenges to cope with. It is really amazing how we are connected through this medium without actually knowing each other on personal level. Is it really an escape from reality??

      5 months ago
    • DeniseD's Avatar
      DeniseD

      I agree with Molly72, my first doctor gave me very little helpful information. After lots of research on the internet from reputable sites, I gained the power of knowledge. I made 2 decissions, I needed a new doctor and I could live with this. The best part was finding this site and feeling inspired and supported in my journey.

      5 months ago
    • cards7up's Avatar
      cards7up

      I enjoy my time on the Internet whether it be on my cancer support sites, FB or just checking emails. I'm a researcher at heart and have found sites that I trust for info and have found many to avoid as well. I like helping others and feel I've been able to do so while on my own LC journey.

      5 months ago
    • Carool's Avatar
      Carool

      When I was diagnosed with my breast cancer, 17 years ago, Facebook hadn't yet come into existence (I just googled this and found out that FB was created in February of 2004). I almost never used the Internet then. Now, I couldn't live happily without it.

      I love WN, FB, and love googling. I love being able to connect on Facebook with other Trump-resistors, and I think social media is helping us fight to keep our democracy alive.

      5 months ago
    • 2bbcontinued's Avatar
      2bbcontinued

      It is a welcome escape. But also a source of knowledge and comfort.

      5 months ago
    • beachbum5817's Avatar
      beachbum5817

      As with most things, it is both good and bad. I love having information at my fingertips, and I don't mean just information about cancer. It still amazes me that it is possible. Sure beats pulling out the encyclopedias. I try not to spend too much time on the social sites, but some days it is harder than others. This site proves what good social media can do for us. Thank you all for being here.

      5 months ago
    • Lindyver's Avatar
      Lindyver

      My go to has always been the internet to research. I love having information literally right at my fingertips. However, when I was diagnosed with CLL I was very, very careful at what I looked at. My Dr. has been extremely informative on my disease. I love this board but I have really taken a step back from being on the internet and social sites as FB. Everyone is different but I am finding peace in reading books, projects, my animals and taking time and really enjoying my friends and family in real time. It was a burden to me that and I spent way to much time on it. I definitely look at things differently now. I do find comfort in this board.

      5 months ago
    • Erik1059's Avatar
      Erik1059

      I went through a lot of treatment in the late 80's and early 90's. It felt like I was in the stone age with no one to communicate with, no one but my doctor to ask questions, or look up drug interactions or side effects or to commiserate with. People are better off with more information than less.

      5 months ago
    • GregP_WN's Avatar
      GregP_WN

      One of the funny, but somewhat true quotes I laugh at says, "the surest way to convince yourself that you're dying, is to Google your symptoms".

      5 months ago
    • Ejourneys' Avatar
      Ejourneys

      The Internet is a crucial component of my day.

      1. I'm a home-based freelancer. My work comes to me via the web. Sometimes my pay does, too. Without internet access, I would not have moved here.

      2. I curate my news. I have happily lived without a TV since May 2011. Instead of being glued to pundits on a screen I scroll through headlines from all sorts of news sources based all over the world. This probably saves me time that I would otherwise spend being glued to the idiot box.

      3. I rely on a few vetted sources for health care info. On the day I was diagnosed I called the ACS (whose contact info I got off the web), which emailed me excellent info (on the web). I also called the facilitator of my breast cancer support group, whose contact info I got off my hospital's website. I chose my surgeon based on research I did on the web. Support groups like WhatNext and #BCSM (breast cancer social media) are instrumental for keeping me well-informed. I have a terrific cheering section on Facebook.

      4. My current activism is largely web-based, since I make many phone calls and have gotten the numbers I need off the web. That said, I have some questions to ask at my local library, like whether there's a map available for a Congressional district that was redrawn at the beginning of this year, that also incorporates ZIP codes. I can find that info online for what is now an outdated map, but I don't see an updated one with ZIPs. Rather than spend time cobbling one together, I want to see if one already exists. The Web is also the way I connect with members of my local activist group in addition to meeting with them IRL.

      5. Between cancer treatment and aftermath, caregiving, and home-based work, I do the bulk of my socializing on the web. I also do much info-sharing and coordinate with various organizations.

      6. I do not feed the trolls. That saves me scads of time.

      7. When I need to unwind I can find great music on the web along with other entertainment -- not only US based programs but international ones as well.

      8. Free ebooks! And when I'm not on the web, I am reading them.

      5 months ago
    • pattiep's Avatar
      pattiep

      I used the internet as little as possible once my diagnosis sunk in. I did google some meds and chemo info since that was an unexpected treat lol. I stopped really quickly.
      I did come to this website for support.
      When I was feeling ok I shopped online (xmas, books for kindle, presents to me for being brave lol) I used email to communicate with employer and coworkers since I was on 6 mo. leave.
      My daughter decided to change her major (long story there lol) so I researched for her and that made me feel like a useful mom again (making me cry here)
      The sicker the chemo made me - the more I did nothing but sleep or watch a little tv
      Really the internet was mostly a positive for me and I would have to put it in the escape category.

      5 months ago
    • gonewest's Avatar
      gonewest

      I am glad for all the information available online. I think it's important to understand how to research. I stick to academic sites, scholarly journals, FDA, and clinical trial information from NCI.
      I love that I can download books as reading is one of my big loves. Funny videos of animals on utube is often a go-to when I'm feeling blue. Not on fb or Twitter or any other social media sites. What Next has been a pleasure to be part of. Greg runs a good ship. People here have been lovely to me. I will never be able to thank the people here enough for your acceptance, information and encouragement.

      5 months ago
    • Carool's Avatar
      Carool

      gonewest, I feel compelled to thank you for all the support you've given us here. Glad you're back online!

      5 months ago
    • gonewest's Avatar
      gonewest

      Carol, I.have decent days and bad days. Most of the time, due to my terminal disease and the amazing amount of meds I take, I don't feel well enough to formulate a cogent thought. Thank you for being my friend. Love, as always, Chris

      5 months ago

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