• Do you use Palliative Care?

    Asked by Songwriter on Sunday, September 23, 2018

    8 Answers from the Community

    8 answers
    • LiveWithCancer's Avatar
      LiveWithCancer

      Thanks, Barry! Great article!

      27 days ago
    • Songwriter's Avatar
      Songwriter

      I wish a Referral to a Doc like was given to every new cancer patient by the Oncologist along with one to a Mental Health Therapist and or one to a Psychiatrist also.

      27 days ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Me, too, Barry! I am on a patient advisory board at my cancer center. That is one of the things we have discussed - how to make sure that all patients know about the huge number of services, including palliative care, that are available to them when they come to the clinic. Most people are woefully unaware. Our palliative care services include mental health services.

      I have never needed palliative care (thank God), but I wonder if my oncologist recommends it to patients that could benefit? I think even within the hospital itself, there is not a good understanding of the services and their benefits (and maybe some oncologists don't want to let go of even a small part of the treatment of their patients????). If I ever remember, I will ask either my oncologist or his Nurse Practitioner if they ever recommend anyone. Palliative care services are fairly new to our facility.

      27 days ago
    • Julia468's Avatar
      Julia468

      That was a good article. I have a palliative care nurse that comes once a week. She has been very helpful. If I'm having an issue, she'll call the different doctors and try to solve it. She keeps a close eye on my pain management too.

      27 days ago
    • GregP_WN's Avatar
      GregP_WN

      We used the hospital palliative care team for my MIL when she was in the ICU for 12 days. It is a helpful service.

      27 days ago
    • andreacha's Avatar
      andreacha

      Thank you, Barry, for posting this. A lot of good info.

      27 days ago
    • BoiseB's Avatar
      BoiseB

      My medical system doesn't call it palliative care, they call it pain management. It is strange the effect of terms have on treatment. I will take pain management if offered, because it sounds like I am in control,

      27 days ago
    • Lauraandmary's Avatar
      Lauraandmary

      Requested (and had) a palliative care consult while Mom was undergoing treatment. She had issues with uncontrolled nausea and vomiting that her oncologist wanted to treat with reglan (did not work for her) along with a 2 week stay in a nursing home for "IV therapy". There are many other more effective medications for nausea with fewer side effects. The oncologist would not budge, so I asked for a palliative consult. They prescribed medication that actually worked, no nursing home stay required!
      The sad part of it all was that the oncologist was furious with the request for palliative care and was awful to us after that (thought we had undermined her authority). Many of the inpatient nurses also seemed confused that the palliative care consult was the same as hospice.

      26 days ago

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