• Doctor seems to not think my case is important.

    Asked by MelMom on Thursday, May 30, 2013

    Doctor seems to not think my case is important.

    So my doctor is telling me that my case isn't as bad as I think it is. And that I am going to be fine with out more treatment.
    Have you had a doctor just seem like they wanted to get rid of you? I am looking for another one, but this is crazy I think.

    6 Answers from the Community

    6 answers
    • Peroll's Avatar

      MelMom, it sounds to me like you are having some communication problems with your Dr. That is not really that unusual as Drs are not often well trained in communication. I have had to train a few in my 9 year journey. To each of us that are patients no matter how well or bad things are going right now our cases are serious and it can hurt to have a Dr blow you off. While they may not mean it to sound or be that way it happens much more than it should

      I would start by talking to the Dr and letting him know about how he made you feel. He may not be aware of that. Looking for a new Dr or at least a 2nd opinion is also a reasonable step. It can start out as a 2nd opinion but if you "click" with the new Dr then it might be worth switching. From my experience the relationship you have with your DRs is very important. You need to be able to trust them with your life, literally. And you want one that you can communicate within a way that you can understand everything they tell you. You can start by doing some research on Drs in your area. I see your from Ann Arbor so that probably means U of M med school is a place to start. Look for Drs that specialize in your cancer and research it as they will now the most about the latest treatments, but also look for ones that treat a lot of patients and try and emphasize patient care. You might ask a couple of the people here on WhatNext that are associated with U of M or are from your area to make a recommendation as that can always help to find the right kind of Dr. Good Luck and let us know if there is anything else we can help with.

      over 3 years ago
    • GregP_WN's Avatar

      I stopped a Doctor in the doorway once, wouldn't let him get past me, until he answered my questions, he was kind of shocked.

      over 3 years ago
    • AlizaMLS's Avatar

      Dear MelMom,

      Hi, I'm Aliza, a BC patient and the site's unofficial resident Medical Librarian. Med Librarians usually make it a practice not to respond to medical questions as that constitutes practicing medicine sans license-against our Code of Ethics and also a bit illegal...;). We often refer folks to doctors, hospitals, institutions, agencies, books, media, etc and research when required or requested (we're most often the ones who've taught your physicians how to do their computer searches as well).

      After all that, I am however permitted to speak from my own experience as a Cancer patient as well as those of my family and friends who've had Cancer (we number too many!)

      My late father had CLL - Chronic Lymphocytic Leukemia. You don't say what type of Leukemia with which you've been diagnosed by this oncologist (?) There are many different kinds. You are absolutely entitled to know and understand what type you have and why (underline why) he/she's telling you that you don't need treatment now. If you cannot get her/him to give you another appointment to explain this, a complaint to the administrator of your treating hospital is certainly warranted as is your going for a second opinion to another oncologist and seeking out a new oncologist.

      Not only my dad but my late uncle (they were brothers-in-law [no blood relation] had CLL as well. My Dad had CL for about 6 years; my Uncle who was younger had it for about 15. For many years, they did nothing for my uncle but monitor him. He moved from NYC to Florida where he was very active, played golf, swam, etc. His difficulty with the disease sprang up because after about 13 years he developed crohn's disease so they had to treat both-he became really debilitated. My uncle died at 75 because of complications due to crohn's disease.

      My Dad was pretty good for 4 of his 6 years with the disease. He never felt really ill just very tired. He did have chemo from time to time in the beginning-became more frequent later on. He was a month short of 87 when he died. You may want to contact the leukema llymphoma society for more information once you have a diagnosis. CLL folks often can go for years without treatment with very few symptoms and lead mostly normal lives as long as they're monitored (i'm not saying that that's what you have and if you do, then this oncologist should have given you that as a diagnosis. It was irresponsible of him not to tell you which type of leukemia you have). The acute leukemias require more immediate and constant treatment more often generally; the chronic ones, less so (this is a generalization).

      I hope this offers you a little bit of information, but remember, it's not a substitute for a diagnosis and do not assume you have CLL from reading this without checking with your doctor or getting a second opinion.

      I'm keeping my fingers crossed for the best possible outcome for you!!...;)

      Warmest Wishes,

      over 3 years ago
    • Lirasgirl33's Avatar

      I agree with what Peroll has said. I also reached a point with my doctor where I was having doubts about his level of knowledge and whether or not I was receiving the best possible treatment for my type and stage of cancer. My doctor didn't communicate that well with me and left many things out when he talked to me. I had to ask to sit down with him and told him how he was making me feel. That I trusted him but that the lack of information he was giving me was making me have doubts. He apologized and asked me how much information I wanted to know, that he has had patients that don't want to know too much. I told him I wanted to know everything. I also asked him if I was getting the best treatment possible and he said yes. I asked about a 2nd opinion and he said he would send my case and file to be reviewed by a colleague at UCLA medical. I stuck with him and our communication is so much better. I trust him and he explains things to me more thoroughly.

      But again, if after speaking with your doctor things don't improve or you simply feel you need another opinion, that is your right as a patient and I say go for it. We all want to trust and feel that we are being the best treatment possible. All the best to you. Keep us posted. Sending hugs your way.

      over 3 years ago
    • BoiseB's Avatar

      You must have the Twin of my Dr., whom I refer to as Dr. Doom. The first words out of his mouth at my follow-up were " There is a 100% probablity that your cancer will return. " Well I only had to threaten to go out of the system and at my last appointment he talking about all sorts new therapies that he is investigating. He took my case before the "Tumor Board" Sometimes just getting a second opinion is enough to kick start your Dr.

      over 3 years ago
    • geekling's Avatar

      Doctor seems to be an ardent donkey with a large evacuation canal.

      If you intend to speak with Doctor again, you are entitled to force the issue and have him speak to you in lay terms and answer your freaking questions and concerns. He may not understand it, but that is his job!

      No one would hardly ever know from how most of them act these days but, directly from the Latin, the word "doctor" means "teacher".

      I had doctors act that way prior to my getting a diagnosis of what was so fricking definitely a classic squamous cell carcinoma tumor no matter that numerous fools called it a "wart" or a "hemmorhoid".They couldn't even learn, nevermind teach, when I kept saying "Something is wrong. What is that? It is growing. Can you freeze it? Can you rubberband it so it get no blood flow?"

      To tell you the truth, my opinion of much of the medical community is very poor. I was unable to speak for four months last year. I got an infection for the zillionth time and STILL no one took a tissue culture. They insisted I take what was in the Big Pharma book despite my insistence that I am allergic. "Only for a few days." they insisted. Within 3 days of taking the allergen, my vocal chords were so swollen I was unable to speak.

      It took FOUR MONTHS of daily herbal teas and concoctions before I had my voice back. The docs kept offering me more drugs to which I am allergic.

      I honestly believe that it is de riguer these days to have, at least, two independent opinions. Lately, I want a third opinion from a shaman, herbalist, or homeopathic physician or nurse.

      over 3 years ago

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