• Does anyone have experience with sarcomas? More specifically, malignant nerve sheath tumors?

    Asked by packerbacker on Saturday, December 22, 2012

    Does anyone have experience with sarcomas? More specifically, malignant nerve sheath tumors?

    Biopsy results showed the MNST, and says that treatment can include surgery, radiation, chemo, or a combination. My PET scan showed 6 new lesions a few weeks ago: 3 in my lung, 1 on my tongue, where it all started last year, 1 on my adrenal gland, and 1 in one of my lymph nodes. They took out the lymph node last week. Anyone have experience with this kind of cancer or chemos like Adriamycin or Taxol? My diagnosis is no longer "lung cancer." I guess.

    3 Answers from the Community

    • nancyjac's Avatar

      I think I kinda lost track of what the question is you are asking. Are you looking of info on MPNST, head&neck/throat cancer, lung cancer, or adriamycin and taxol?

      almost 4 years ago
    • SuzieTampa's Avatar

      Hi, please join us at the Sarcoma Alliance, where you'll find others with MPNST, and people who have had Adria and Taxol. https://www.facebook.com/groups/9628193967/

      almost 4 years ago
    • carm's Avatar

      Packerbacker, They seem to have so many names for these diseases but I recall this one as being a malignant Schwannoma, or MPNST (P=Peripheral). Sarcomas are usually graded the same way except that beside the TNM staging, they also add G to the mix to address the histologic (tissue) grade determined by how these cells look under a microscope. a GX denotes cells that cannot be assessed and from there it goes all the way to a G4 which denotes poorly differentiated cells. That you have this in the lung is not suprizing, they seem to metastasize to the lungs. I'm going to attach a link so that you can get the answers you seek. I can tell you from experience working as an oncology nurse, you don't see these too often, only often enough to recognize the name when you hear it (at least one of the names). Here is the link, and best of luck to you. If you have any questions, you know where to find me, Carm.


      almost 4 years ago

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