• Does anyone have experience with the following drugs; sunitinib or everolimus

    Asked by kelley_gleason on Wednesday, January 9, 2013

    Does anyone have experience with the following drugs; sunitinib or everolimus

    2 Answers from the Community

    • FreeBird's Avatar

      That's an interesting combination. Is that part of a clinical trial?

      over 7 years ago
    • SueRae1's Avatar

      I you taking both? I started with suntnib in Sept 09 - and my first set of scans showed great results, my 2nd set in April 10, the largest lesion grew a bit so I was switched to Afinitor (everolimus) - this got rid of 3 of my 5 small kidney cancer lesions, and stabilized the 2 two larger ones (both under 1 CM) for two years. The only reason I'm no longer on it, is that my breast cancer metalized in April of this year and I was switch to infusion therapy to treat both cancers.
      You take sunitnib every day for 4 weeks, then have two weeks off. Afintor is taken every day, no weeks off.

      Side effects - killer -mouth sores. I got them every 4-6 weeks. Both meds, enhanced the effect of my beta blocker (taken for High BP) - but the afintor was worse - at one point my heart rate dropped to 29 - i was asymptomatic. Both meds increased my triglycerides and cholesterol. levels. Decrease in energy - I was at about 85-99% of normal most days. Increased chance of yeast infections - I had a supply of liquid and cream nystain on hand to help with that.

      over 7 years ago

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