• Does anyone have tripple negative Inflammatory Breast Cancer?

    Asked by maxi on Saturday, July 7, 2012

    Does anyone have tripple negative Inflammatory Breast Cancer?

    Can you tell me about your Journey?

    8 Answers from the Community

    8 answers
    • nancyjac's Avatar
      nancyjac

      I have IBC but I am triple positive. You can see the milestones of my journey (or anybody here) by clicking on my name and going to my home page. If you have any particular questions we would be happy to help if we can.

      almost 5 years ago
    • maxi's Avatar
      maxi

      I have been following you and you are doing great. I have heard that having tripple negative breast cancer is a death sentance. I don't want to be sick having Chemo if I am going to die soon anyway. Would rather spend that time with my Grandchildren.
      Thanks for writing back. God Bless you.

      almost 5 years ago
    • nancyjac's Avatar
      nancyjac

      Maxi, Maxi, Maxi.....IBC is not a death sentence whether trip neg or not. Hundreds of thousands of people with tripple negative breast cancer have been treated and have subsequently been cancer free for the rest of their lives. IBC is an agressive form of breast cancer, whether trip neg or not, so an equally aggressive form of treatment, including chemo is necessary. The primary difference between trip neg and trip pos is that your cancer is not aided and abetted by estrogen, progesterone, or HER2, while mine is fueled by all three. Each case has its pros and cons. In my case, there are treatments available that help in preventing recurrence due to excess hormones and protein enzymes. The down side is that I have to take these additional treatments long term and they have side effects. In your case, those treatments aren't useful because your are negative, but on the other hand, you have a lower risk of recurrence due to over production of hormones and protein enzymes since they don't encourage the growth of your cancer.

      Please don't allow yourself to fall prey to the "death sentence" BS. It is far less frequently a death sentence that getting run over by a truck and that can happen to anybody at any time. But that doesn't mean we shouldn't still look both ways before we cross the street. With aggressive treatment, you are more likely to die of old age than die of cancer.

      almost 5 years ago
    • maxi's Avatar
      maxi

      Thank you so much Nancyjac. I may get some sleep tonight. Haven't slept since my Diagnosis mid June. I am starting Chemo on Monday. Was going to forget it all until I got your response. Thank you so much. I guess I will try my best to fight the fight now. God Bless you as you are one of his Angels.

      almost 5 years ago
    • nancyjac's Avatar
      nancyjac

      Hang in there Maxi. Chemo is certainly no fun but it sure beats the alternative. The first is probably the hardest because you don't know what to expect, but it does become a routine you can live with. Let me know how it goes on Monday.

      almost 5 years ago
    • AbbysMom's Avatar
      AbbysMom

      Hi Maxi!

      I "had" triple negative invasive breast cancer. It is a more aggressive form of breast cancer than the rest. We are one with Robin Roberts and we are survivors. She's a great example of surviving. Though she is now going through a bad possible side effect of chemo, it's very rare! And she's fighting! I'm fighting 'cause I want to see those grandkids grow up. It'll be worth the fight!! The surgery, chemo and radiation were not a picnic but I'm not going to lie here and let this nasty stuff get me down.

      Hang in there and know you are not alone - the fear and waiting is the hardest part. Being an active participant, in my opinion, is the only way I could go. I wish the best for you and I believe you can do it!

      At this point, it's hard for you to rest - believe me I was there and I'm on the other side now. I finished all active treatment in March, 2012 and I'm feeling pretty good. I am now best friends with all those medical professionals that are going to help me stay that way! You will too!

      Hugs to you!

      almost 5 years ago
    • MarnieC's Avatar
      MarnieC

      Your concern is understandable and it prompted me to write an article about Triple Negative Breast Cancer - here's the link: http://marnieclark.com/effectively-dealing-with-triple-negative-breast-cancer/ . I really hope that this helps you. You are stronger than you think, just need to find your fighting spirit, Maxi. Love and hugs to you today.

      almost 5 years ago
    • survivor1's Avatar
      survivor1

      Hi Maxi, I too am triple neg, IBC. I was dx in Jan 2012, with recurrence in November of 2013. I hope all is well with you and you have found comfort with your dx. We are still looking for that magic combo of meds to control mine. I wake up each day thanking the Lord for my family and my life. I will live each day to the fullest, and try to stay out of the "dark Zone" Hugs to you

      over 3 years ago

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