• Does anyone know if there is something else to take with or besides nexavar for people wit hcc?

    Asked by Cancersuxs on Thursday, March 29, 2012

    Does anyone know if there is something else to take with or besides nexavar for people wit hcc?

    My dad doesn't have hepatitis nor is he a drinker. He can only take a half a dose. If he takes 2 in the afternoon he gets real sick. Any suggestions on that as well?

    5 Answers from the Community

    5 answers
    • nancyjac's Avatar
      nancyjac

      He needs to detail any and all side effects to his doctor. Not just that he gets sick, but how he gets sick, specific side effects. Also any other medications, supplements, herbs that he is taking as it can interact with many of them. His doctor may be able to prescribe solutions for the side effects and the timing of doses to minimize the side effects.

      over 5 years ago
    • nancyjac's Avatar
      nancyjac

      Meant to add, there are other multikinase inhibitors, but they all have side effects, so switching to another one may not be of any benefit.

      over 5 years ago
    • Cancersuxs' Avatar
      Cancersuxs

      Thanks I have told the doctor the way my dad tells me. He says it feels like an explosion in his stomach for 1, he says he cant eat and starts running a fever, he mainly has real bad stomach pains and problems. He only takes a vitamin d pill. Which is what his Dr told him to take to help his bones. I am not to sure of his Dr. There is so many questions we ask and it is almost like he ignores them. We have recently found out that he has A spot on his lung now. They kept saying he has COPD. I just wish he can get the strength up to fight this. Thanks again! If u have anything else to help me help him it would be appreciated!

      Shay

      over 5 years ago
    • steve70x7's Avatar
      steve70x7

      I sure know what it is like to have a doctor that doesn't seem to listen! I recently got a new oncologist and she is awesome! She spent an hour with my wife and I. It didn't change my cancer, but it sure changed my attitude. It is a blessing to know that anyone cares, especially the one who seems to hold your future in their hands.

      Is it possible for your Dad to get another doctor? A friend shared with me a unique way to check out doctors. She goes to the office and sits in the waiting room and just talks to the patients that come in. If they aren't really enthusiastic, as I am about my oncologist, she goes to another office. She actually found a great doctor to replace the one she had that sounds like your Dad's doctor.

      I'll be praying for you and your dad.
      Steve

      over 5 years ago
    • steve70x7's Avatar
      steve70x7

      The commercial site for Nexavar has a lot of good information. I'm still skeptical about starting it, but it helps to be informed. I hope this might help.
      http://www.nexavar-us.com/scripts/pages/en/patient/index.php

      BTW: half of my doctors think Nexavar is a waste and the other half think I should already be on it. ???

      over 5 years ago

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