Oh my gosh - I am so sorry for your diagnosis. I wish had I ideas. Are there any clinical trials you could consider?
You can narrow down your search to locations near you, your diagnosis, your gender, and more...
Does anyone know someone with colon cancer that spread to brain that survived more than 1 year or just know someone in the same situation?
Any help? we can share treatment ideas: my prognosis is XXX poor it would be nice to know if anyone in my situation has survived more than a few months
Here is a video on an interesting new treatment. Seems to be that brain cancer was their first focus. Not sure if metastases to the brain is in the works, but it's worth an inquiry.
My wife was diagnosed with Stage IV colon cancer with KRAZ mutation almost three years ago April. The mutation is not one that is conducive to a good prognosis. She has beaten the lowest odds but faces an uphill battle. The metastasis is the same as yours: liver and lungs. The current treatment you are on is what she has gone through also. In the last two weeks she had a caniotomy to remove a tumor at the base of her brain near the cerebellum which was causing dizziness, nausea, and change in behavior. They will be doing a direct laser radiation to the surgery site to reduce the re-occurrence rate.
As I have told my wife, keep moving forward. Find a great support system and doctors you feel comfortable with. They will see you through the low lights and give you great confidence at the highlights. Best of luck to you.