• Does being diagnosed with a Glioblastoma mean certain death?

    Asked by DeanaBeana on Monday, December 31, 2012

    Does being diagnosed with a Glioblastoma mean certain death?

    8 Answers from the Community

    8 answers
    • Harry's Avatar

      Being alive means certain death. Life always ends with death.

      Glioblastoma appears to be an aggressive cancer according to this web site http://www.abta.org/understanding-brain-tumors/types-of-tumors/glioblastoma.html?gclid=CJ3d56eIxbQCFYVFMgodGiQAXw but that's not the same thing as "certain death." I note that they cite a 2009 study showing a 5 year survival rate of 10%. That means that the data are based on treatments 8 or 9 years ago. This is a problem with published survival data. And, there's nothing that tells you how long you have. Your oncologist may have a better estimate--but I'd want to see what progress treatment makes before taking that as more than an educated guess.

      Several people here have beaten 5% survival rates. Everyone is an individual and everyone responds differently to treatment. Fight this thing and see how it goes.

      Also, a second opinion from a major cancer research hospital might be in order.

      almost 4 years ago
    • po18guy's Avatar

      Not in every case. In July, 2008, I was handed a poor prognosis with an aggressive T-Cell Lymphoma of an unknown sub-type. Treatment had to be guessed at. It responded to the eight drugs used, but relapsed immediately after chemo, when there was no hope for a second remission. My prognosis dropped to very poor and I was given a few months. Yet, cancer treatment is rapidly evolving and just when there was no hope, a clinical trial appeared. That was almost four years ago, when I was not originally expected to survive 2008.

      But, in total agreement with Harry, life on this earth is completed with what we call death. But, is it really death? This all depends on your world view. I see it as the entry into eternal life, and so do not fear it. I have had to face death twice now, and each time, some of its power is taken away. I realize that I have at least some time left on this earth, and so I try to help provide hope for others on the same journey. If you have a faith life of any sort, dive into it! As I see it, our existence cannot be for just the fleeting time that we have on this earth.

      As well, one of the nurses at my cancer treatment center was killed by a drunk driver on her way to work one Sunday morning. She was in perfect health right up to the point of impact, and never saw it coming. She had no time to say goodbye. We who have a diagnosis and a prognosis have the blessing of knowing ahead of time that our lives are finite. We have the chance to make amends, to reconcile with those from whom we are separated, and to begin truly enjoying each moment of day of life for the blessing that it is.

      As well, medical advancements are being made constantly, and that is the sole reason that my funeral was not in 2009. I love each day of life and give thanks before my feet hit the floor each morning. No matter how long or short, life is worth living. Consider the babies that you may have seen at treatment . The pre-schoolers. Elementary school children. Teenagers. We have already had much more cancer-free life than they have. Is that not something to be thankful for?

      almost 4 years ago
    • Peroll's Avatar

      Deana, you know what they say the only two things that are certain are death and taxes. I won't address taxes because it is not polite to talk politics in public. Harry is correct in all he says about death and survival rates. Some people have to be on the 5% side so when the 5% side is life I choose to be there. I have managed to hit the 5% side of the probablility five times in a row so it does happen and I am proof, though it has not helped my with the lottery . I also know that cancer research is progressing at a very good pace. I have had at least two chemo drugs that were not available when I was first diagnosed and will start a third new drug when it arrives in the mail in a week or so. I have also had two surgical procedures that were not available or possible when I originally diagnosed. With cancer there are no sure things either way, the obrective is to try and keep the fight going until a cure is found or the cancer just gives up. Good Luck!!!

      almost 4 years ago
    • carm's Avatar

      DeanaBeana, I am an oncology/end of life nurse and although gliomas are considered the mother of all tumors, there is options to beat them. So, it does not have to be a death sentence. Best of luck to you and I wish you a happy new year, Carm.

      almost 4 years ago
    • BoiseB's Avatar

      I am one of those who beat the 10% odds. I had the opportunity to plan my funeral. I even outlined my eulogy (no smaltzy stuff about how good a person I was because I wasn't) I was able to ask forgiveness from everyone. When I woke up from surgery my first words were. I thought I was supposed to be plea bargining with St Peter where is he? Because I got those terrible odds (5%-10%) on my birthday I now count my years from that day. I am now 2 1/2 years old. I was definately fortunate to find a Dr. who loved to beat the odds

      almost 4 years ago
    • DeanaBeana's Avatar

      Thanks everyone for your answers my friend is doing ok for now.

      almost 4 years ago
    • GregP_WN's Avatar
    • lady1's Avatar

      Never give up...there may be some clinical trials with new treatments that are not generally available yet. Get an opinion from a research institution or an NCI designated site. Go to: http://clinicalcenter.nih.gov or ask your medical team for assistance in learning about clinical trails that might be of benefit to you.

      almost 4 years ago

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