• dont know enough part 2

    Asked by little_fut on Thursday, February 21, 2013

    dont know enough part 2

    I have IDC BC Have not started any kind of treatment. Don't know what to expect and definitely don't know when I will be going into surgery (lumpectomy and nodes). I have been told I will be on hormone therapy and radiation by my Onc but the Surgeon says I would be better off with chemo and rad...again, I am in the dark here. Am I in for a lot of pain and misery when all does get started? I have MS as well and I am terrified it may come out of remission. UGH! life is so full of surprises.

    9 Answers from the Community

    9 answers
    • HearMeRoar's Avatar

      This is a very scary time! It takes a while for the information to come in and for the plan to come together. I found my lump on Dec 14th and just got.the final pathology today. Hang in there and know you are.not.alone. Lots of.kind people on this site. Staying positive is key... Easier said.than done!!

      over 4 years ago
    • fuzztig's Avatar

      Anxiety and fear are normal reactions to finding out you have cancer, and waiting for answers can seem intolerable. Oncologists are specifically trained to treat cancers and (hopefully) continue to follow the latest literature and research concerning the treatment of cancer so that they make the most informed decisions about treatment. I imagine your oncologist is recommending radiation because you are having a lumpectomy as oppposed to a mastectomy, and hormone therapy because your tumor is ER/PR +. Perhaps he/she has not determined the need for chemo yet. My surgeon told me she doubted I would need chemo based on the pathology report after surgery, but *surprise*, the oncotype Dx put me in the category of patients who can reduce the risk of recurrence by having chemo. There is a good reason there is a team to treat you, but always keep asking questions and get second opinions if you feel it would help.
      As for the MS, now would be a perfect time to meet with your neurologist to see if you will need to make any changes to your medication or other treatment regimen, and get them on board with the other doctors so they can be included in your treatment plan!

      over 4 years ago
    • karen1956's Avatar

      No, you are not in for a lot of pain and misery!!!! Chemo is tough but its doable.....If you are unsure and not sure what road to go down, then I would recommend a 2nd opinion. If you are ER+/PR+, then either Tamoxifen or AI's would be recommended once you finish chemo (if you go that route), but it is not dependent on whether you have lumpectomy, mastectomy, chemo or rads...it is indicated based on ER status. All the best to you....

      over 4 years ago
    • AlizaMLS's Avatar

      Dear little_fut,

      I unfortunately missed Part I of your question, but I can relate to your situation more than a little because in addition to being a Breast Cancer patient, I'm also a Lupus patient (have been diagnosed nearly 20 years [I've been kind of the well poster child for Lupus, aside from the occasional flare, some osteoarthritis and fibromyalgia]), so you see others with autoimmune disorders also get this. It's probably a good idea to speak with your Rheumatologist re the radiation therapy if you didn't just to be sure that she/he are on the same page with your Radiation Oncologist. Re chemo I can't offer advice because I don't need it (my Oncotype test turned out very well and indicated that it wouldn't improve my chances for a reoccurrence, i.e., they're the same as the average joe/jane). Reactions to chemo are very subjective and individualized-everyone reacts differently.
      I had a mastectomy. I'm 54 and engaged (my diagnosis and surgery delayed my wedding) and I have a nearly 26 yo daughter who's a Paramedic who's now in Nursing school. I think I caught a glance at your first question re pains and aches. I'm not sure when you were diagnosed, but this is an enormously horrible shock to adjust to, a lot of work to find the right docs when you're not at your best, perhaps a good deal of research when you're under the weather (I'm a [retired] trained Medical Librarian, so I have that advantage) and just a lot to contemplate and be concerned about. If the IDC designation you use indicates that your cancer is "in situ" and you're Stage I, that's very good-it was caught very early! It is possible that you're having aches and pains because you're tense and frightened, but be sure to tell your doctor everything you are feeling. This isn't a time to leave anything out. A lumpectomy is of course generally less radical than a mastectomy. Make lots of lists of everything - questions to ask your doctors, things to research, etc.

      AYou may want to look on Amazon for a good (authoritative) book on breast cancer specifically for lumpectomy patients.

      I wish you lots of good luck, and hope that some of what I said is helpful to you. Feel free to contact me if you have any questions. There are also some medical professionals on the site as well.

      Warm wishes,

      over 4 years ago
    • JennyMiller's Avatar

      You are in that "Dark Period" now which I considered the worst part of the whole journey. Once you have your surgery and embark on your Battle Plan, you will find the strength and hope to move forward. As for the Chemo, get a second opinion as to whether it should be part of your treatment plan. I was aggressive -- bilateral mastectomy, chemo, radiation and I am now on Arimidex for 5 years -- I wanted to have the peace of mind in knowing that I did all I could to eliminate this evil and elusive enemy. It was all doable -- of course, chemo has side effects -- but chemo is not the enemy -- the cancer is and chemo is a powerful weapon in chasing up any wandering cell and zapping it. So, if you don't need chemo, that is great -- but if you do, be open to it. Soon enough, it will all be behind you and the sun will shine again. Best of Luck!

      over 4 years ago
    • SusanK's Avatar

      The hardest part of this fight you are in is the waiting...for treatment, for results, for the day you feel well and whole. The doctors sometimes tell you things based on their experiences--to the best of their knowledge--until they get the whole picture of YOU. My surgeon predicted I would likely not need chemo but she was wrong, and I was devastated by that news...until I came to grips with the knowledge that chemo was my best available weapon against my triple negative cancer. Your plan will be put in place as more facts are gathered about YOU. When you finally know what you are up against, you can then focus all your energy on beating it. It will not be easy, and you have the added burden of your MS. Your doctors must work together as a team, sometimes difficult to do. You might seek out a nurse advocate or case manager, if those services are available. I wish you well as you move forward.

      over 4 years ago
    • Gena's Avatar

      am sure your surgeon means well, but I believe he is less qualified to determine your treatment. He is not a cancer specialist. I don't believe he would be as qualified as an oncologist to determine what is best for your kind of cancer. I would definitely get a second opinion for another oncologist before preceding. Most insurance companies pay for this.

      over 4 years ago
    • nancyjac's Avatar

      Just to clarify, IDC cannot be in SITU. In SITU cancers are stage 0 and are not invasive. All other breast cancers whether ductal, lobular, or inflammatory, are invasive and can be anything from stage 1 to stage 4.

      over 4 years ago
    • SandiD's Avatar

      Try looking at www.breastcancer.org it is a really good site. I had a lumpectomy, nodes removed, chemo & radiation. It IS scary! But your Oncologist is the expert. That doc will explain everything. Breast Cancer is NOT the death sentence it used to be! Life really is full of surprises! Cancer treatment is not fun, but it is doable. You will get meds to keep you comfortable. I am 3 years out from treatment and show No Evidence of Disease. You will be a Survivor too! Take it one day at at time and try not to let your imagination take over. Good luck to you!

      over 4 years ago

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