• Dose anyone have lymphedema if so please help what do i do

    Asked by tweety on Monday, January 28, 2013

    Dose anyone have lymphedema if so please help what do i do

    My lymphedema started acting up a couple weeks ago went to therpy had the compressoin bandages for a week was told to get a sleeve while having the compression bandages on i got a rash now with the sleeve it has turned into water blisters all over the upper part of my arm has anybody else had this problem if so what did you do please help

    8 Answers from the Community

    8 answers
    • gwendolyn's Avatar

      I have never heard of blisters due to lymphedema. Please let your doctor know. I'm sorry you are having this problem. Lymphedema is unpleasant enough when you aren't having skin problems due to the compression garments.

      over 3 years ago
    • JennyMiller's Avatar

      I have Lymphedema. At first, I had the compression bandages whereas I got just one sore by the thumb area but it was not a blister. After the bandages -- I went to the sleeve whereas I can get some tender red creases in the wrist area due to a fold, etc.
      It seems that when I wear my sleeve (even with the glove), my hand gets puffier. I haven't been wearing the sleeve as of lately and my hand is very puffy. I am at a loss. They are in the process of establishing a Lymphedema Clinic at our local hospital -- so I feel that the Calvary is on its way.
      Please update us on your outcome -- and I would appreciate hearing your experiences with Lymphedema and any hints, etc. Best of Luck!

      over 3 years ago
    • Bonanza's Avatar

      I have HAD lymphedema for 20 yrs.I aM presently using the fexitouch compresssion system. It seems to be working much better than the compression sleeve. Alos I have received manual lymph drainage massages fro m a certified lymphedema specialist. They helped a lot. She even trained my husband to do these massages.

      over 3 years ago
    • kamelio's Avatar

      I just found this article - maybe it could help?

      Green Ninja Juice
      by polly on September 19, 2010

      This is one of the best juices I have made recently. The pineapple masks the taste of the aniseed from the fennel (which personally I’m not a huge fan of) while the ginger gives it a nice anti-inflammatory kick!

      Fennel has a calming effect on digestion and is very good at reducing bloating. It contains naicin, calcium, iron, magnesium, phosphoris, copper, folic acid, potassium and manganese – to name a few! Pineapple also helps to reduce any bloating or swelling thanks to the bromelain and anti-inflammatory properties that it contains.

      I drank a lot of pineapple/celery/fennel juice when I developed lymphoedema (swelling) in my leg after surgey a few years ago and found it really made a difference. Infact, I managed to pretty much rid myself of the condition that I was told I would have to live with for the rest of my life. I told that nurse that I would prove her wrong using diet and other techniques - she raised her eyebrows in disbelief but I did it! Every time I went back, she would be amazed at how much my leg had reduced in size. The professionals don’t always get it right! I count on that fact!


      ½ fennel bulb
      ¼ pineapple
      Inch ginger
      1 stalk celery
      1 shot wheatgrass (optional)

      over 3 years ago
    • Paw's Avatar

      Hi tweety. I recently developed lymphedema about two months ago.I have been wearing an ace bandage on my arm. The arm went down and the hand got puffy. I'm using an ace bandage on my hand and the swelling and pain goes down but never completely away. The insurance won't pay for a compression sleeve w/hand until I have met an out of pocket expense. Really! No blisters.

      over 3 years ago
    • raven's Avatar

      I have had problems with lymphedema and I need to stay on top of it or it returns, but I have an arsenal of tricks. I do lymph drainage massage on myself daily (when it begins to get worse I have my husband do lymph drainage massage on my back), I wear an over the counter sleeve daily, and a light weight sport compression t-shirt. When it begins to get worse I use Frequency Specifix Microcurrent - this therapy has worked wonderfully for me. Therapists that use it can be hard to find. This link http://www.frequencyspecific.com/faq.php will take you to the home web page. I also use strong tea (brewed overnight) made with the herb bedstraw, massage with essential oil of grapefruit, and use kinesiology taping. I have read that rebounding, as in mini trampoline jumping, is good for stimulating lymph flow due to the split second of zero gravity at the top of the arc - so I do that, too. I will add the juicing recipe Kamelio suggested to my arsenal as well.

      over 3 years ago
    • Topazcat's Avatar

      I had double mastectomy for IBC 2 years ago. Lyphedema in left arm started 3 months ago. Saw a therapist who had me use compression bandages and then bought a sleeve. I also got blisters until I looked up sleeves and found that most companies make sensitive skin sleeves. Now I am able to wear it! Talk with your therapist or doctor, or go online to find a sensitive skin garment.

      over 3 years ago
    • Kizzy's Avatar

      I had all of my lymph nodes removed six weeks ago and because I am high risk for lymphedema was referred to the to the lymphedema clinic to which I was measured and asked all the right questions and as soon as I said that I had some pain in my arm and my left arm where I had the operation was slightly bigger than my right and was told that I had Lymphedema and a support sleeve was ordered which I have to wear all day but not at night and was shown massage techniques which I do every day with exercise for my arm and shoulder
      But It is early days as my operation was a 4 hour operation for cancer and my arm was very painful and swollen from the beginning.
      I Every time I take my support sleeve off my arm aches badly for the next 2 hours
      I have been measuring my arm every day and both arms measure the same so Im not sure if I really have lymphedema or just post op swelling and is the sleeve doing more harm than good
      Anyone else had this problem

      about 1 month ago

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