• DR still wants me to have a colonoscopy , after 1 year ,she says to do it with in 6 months ,I say no

    Asked by kathycompton on Saturday, March 23, 2013

    DR still wants me to have a colonoscopy , after 1 year ,she says to do it with in 6 months ,I say no

    22 Answers from the Community

    22 answers
    • IKickedIt's Avatar
      IKickedIt

      You have put your life in the hands of the doctor and the doctor is telling you what to do. After what you have been through, why question? As unpleasant as it is, I can't wait to have my next one done so the doctor can get the best possible view. Any sign of growth, take it out as soon as possible. I would never want a polyp to develop again into a tumor. I do not ever want to have to go through what I already had to do.

      almost 4 years ago
    • kathycompton's Avatar
      kathycompton

      I will tell you what I have been though after a year , Every time I turn around I see a DR for kidney stones which I was in the Emergency room, Then I hve to take a B12 shot every 3 weeks, because of energy , then I go see a Dr for yeast infection strip coccus group b , then I have to put up a front that I have to think possitive , and times I am not, Then I can go on and on about this situation after I had surgery colon 2 b ,promblems right after another, I am never out of a drs office ,It seems home away from home, I do give up ,I wont go though this again ,I am tired alot , and I dont feel I am going to find answers or be cured anyway, Its tired of being sick and tired ,is where ia m at, I feel that all the time,

      almost 4 years ago
    • ddkk3's Avatar
      ddkk3

      Why don't you want to do it?

      almost 4 years ago
    • kathycompton's Avatar
      kathycompton

      I do not like the stuff you have to drink , I have to go 40 miles for the test, ,I just say no because , I feel I am feeling good, no bowel problems now ,no stomach aches , just want to wait for a promblem if there is a promblem at the right time, if no promblems now why worry ?I always say dont worry about a promblem till the problem arises, .

      almost 4 years ago
    • ddkk3's Avatar
      ddkk3

      Well I've never had a colonoscopy myself but I have heard that the drink is terrible. However, you have to think about the bigger picture here. Wouldn't you want to prevent a problem from happening or getting worse if you can? That's what your doctor is trying to get you to do. If there is no problem, then that's fantastic and if you get the colonoscopy, you can be sure of that and you can have peace of mind. However, you won't know until you do it. I am no medical professional but if your doctor is suggesting it, then maybe it's a good idea. You can even get a second opinion if you'd like. But waiting until you notice a problem isn't always the best way to go. Catching a problem early is always best.

      almost 4 years ago
    • carm's Avatar
      carm (Best Answer!)

      Hello,
      I am an oncology nurse. Ask your doc for a virtual colonoscopy if you do not want anything invasive. It is just a scan and if nothing shows on the scan, then you will feel more confident in skipping the colonoscopy. Best of luck to you, Carm RN.

      almost 4 years ago
    • GregP_WN's Avatar
      GregP_WN

      I have had a colonoscopy and it may have saved my life. I had surgery on my neck to take out a malignant tonsil, 29 lymph nodes, and cut margins around my tonsil. It was a terrible surgery, two of them. My cancer was in my head and neck, then they wanted me to have a colonoscopy. I asked why too. Just because we need to check, they said.

      I had it done, they found a large pre cancerous polyp and removed it. No treatment was needed for that. The colonoscopy itself was no big deal, your made very drowsy with drugs, you don't really feel anything, and it's over very quick, and you go home.

      As for what you have to drink, big deal, drink it and get on with it. It's way too important to not do because you don't want to. We do lots and lots of things through the course of treatment that are much worse.

      You are at a higher risk that average people, and if you don't do it and wait until you feel or see something that would indicate a problem in the colon, then it's probably too late. Go get it done.

      almost 4 years ago
    • Peroll's Avatar
      Peroll

      Kathy, Isuspect that this is the wrong place to look for someone to give you an excuse not to have the colonoscopy. Most of us know how important it is to find problems early. As for the awful stuff you have to drink, I found that if you mix it 50-50 with clear juice (I use apple) it is easier to choke down. The bottom line is that a colonoscopy is much better than more colon cancer. I think I am about due again and will gladly do it. Good luck.

      almost 4 years ago
    • AlizaMLS's Avatar
      AlizaMLS

      Dear kathycompton,

      Hi, I'm Aliza. I'm a BC patient and a Medical Librarian (retired). I offer information, research and referrals for folks on this site as well as elsewhere. I cannot offer medical advice (according to Librarians' code of ethics [it's illegal {it's practicing medicine without a license}]), but I can speak from personal experience and the experiences of friends and family members who've had cancer.

      Besides being a cancer patient myself, there have been many cancer patients in my family, but none with breast cancer (I'm the first). I had them do the BRACA test (so I know there is no gene I'll pass down to my daughter). My family has had lots of people with Colon Cancer and I started to be screened starting at age 40 as a result (once my friend's G.I. doc heard me mention that when I took her in for a colonoscopy). I've had several since. He's snipped a few polyps from me a couple of times. A colonoscopy itself isn't uncomfortable for me (I'm completely asleep), but the prep is awful (I take the pills as I'm a Lupus patient as well and can throw up easily if something tastes bad), but I have hemorrhoids and going to the bathroom a zillion times, well, it's not my idea of paradise, that's for sure. But knowing what my Grandfather and all 3 of his brothers and sisters went through is a worse thought than that.

      I'm more than willing to keep a trashy novel in the bathroom, a glass of water in the bathroom if I feel overheated/dehydrated, some nice music on in the background, and use some soothing oiintment on my hemorrhoids to get through it.

      It's much better to have a polyp removed than to wait and be told you have cancer because you hate the procedure and believe me I understand better than anyone!! I hate it, but I do it anyway! I think Carm gave you excellent advice - always does, but I think I'd be afraid that the virtual one might miss something that the real one would catch.

      Katie Couric's been interviewed by countless people re Colon Cancer because her late husband died from it-they have 2 children. She always talks about the importance of early detection. I'm sure if you Google her name folowed by Colon Cancer, you can watch many videos of her discussing the importance of this.

      I know how unpleasant it is. It upsets your daily routine. You don't get to eat for a day, but you can think of it as a diet day. When I was single (I live with my fiance now) I had my girlfriend come stay with me at my place, because since I'm also a Lupus patient, I would sometimes worry I'd get weak and pass out, so I didn't want to be alone. You can if that's your situation, try to ask a friend for the same arrangement. I'd take my girlfriend to her colonoscopies in exchange.

      You can promise yourself a reward afterwards whether it's a move or dinner out with a friend or new blouse or hairstyle. Anything that's fun that you'd enjoy! I bet as annoying as it is that you're tough enough to do this. Just get it over with.

      I have to self-inject B-12 weekly because I can't absorb it from food or vitamin pills. That's fine. I look forward to those days because I feel so much more energetic. If you hate going to the doctor for that, you really don't have to. Ask the doctor to write a prescription for the serum and syringes (they're usually not covered by insurance because it's a Vitamin) and ask her/him to show you how to give yourself an IM (intramuscular) injection - in your thigh, for example. It's really nothing when you get used to it. Then you get dressed, eat breakfast and go on your way, but you'll have energy and can skip those doctor's visits.

      I'm not sure how yeast infections are connected with a bacterial infection?! I'm wondering if you mean a vaginal yeast infection. If you are immunocompromised, you should ask your ob/gyn to write you a prescription for a vaginal antifungal with renewals - underline renewals. (Practically all women I know, know the signs of a yeast infectioon), this way when you have symptoms, you can go the pharmacy and fill the prescription. There are OTC products available (ask your pharmacist), but the ones your physician writes will probably be cheaper as long as you have insurance. If the symptoms are different than those of a yeast infection and you can google "vaginal yeast infection symptoms" to find out what those are, then you must see your doctor (ob/gyn). Most women who are immunocompromised are not strangers to yeast infections. You may want to search for a book for an "anti Candida diet".

      As both a BC and Lupus patient, I too see a lot of doctors often. I don't curl up and want to die. I'm happy for the most part. I wish I didn't have to have a mastectomy, but to save my life, I think it was a good decision (I have a tissue expander in place). It actually looks like a breast. My scar's fading. I want to wait to lose some weight before having implant surgery, and I've sprained my lower right back and hip recently so I can't exercise for 4-6 weeks, so it's frustrating. But that's life. It gives you lemons and you have to make lemonade.

      You sound like you're kind of overwhelmed. We all get that way -everyone of us on the site. I'd recommend giving CancerCare a call. They have Social Workers there that deal exclusively with Cancer patients and the angst they fact. It's not like "regular therapy". It's strictly related to the issues you face as a Cancer patient. They're really excellent. I'm in touch with them and wish I'd called them sooner for support.

      Another thing that's worth doing is to click on the purple box on the right side of this page for some personalized resources from The American Cancer Society.

      I hope that I've said some things that have helped you and maybe given you a different perspective. If there's anything else I can do for you or you want to ask me something, feel free to message me, or email me.

      Hope you feel better soon.

      Warm wishes,
      AlizaMLS

      almost 4 years ago
    • myb's Avatar
      myb

      Kathy, At my colonoscopy on March 6th which was 1 year from last colonoscopy, the gastro did indeed find a small hyperplastic polyp. I was diagnosed as stage 3 colon cancer last year with no symptoms after my 1st colonoscopy. It was just the colonoscopy at age 50 that saved my life.

      So my Onc wants me to repeat colonoscopy in a year. It doesn't serve you well to think that nothing can grow in a year.

      As to the prep, I agree my 1st prep was the nastiest tasting stuff in creation and I was holding my nose while I tried to sip it through a straw. My prep for surgery was a piece of cake. You ask for the Mirolax/Ducolax prep and I mixed the Mirolax in gatorade so basically drank gatorade. If you are a diabetic, then I hear you can use crystal light. The gatorade helps with rehydration too as the Moviprep got me dehydrated. The scans you might be doing won't show the level of detail that a scope can see. I am doing everything I can to not have to repeat my experience last year. Compared to chemo, the colonoscopy is a piece of cake.

      almost 4 years ago
    • nancyjac's Avatar
      nancyjac

      "I do not like the stuff you have to drink"

      I had a colonoscopy last month. My instructions were to mix the powder with crystal light and chill it. It didn't taste bad at all.

      "I have to go 40 miles for the test"

      You will need someone to drive you anyway, so take a book or just enjoy the scenery.

      "I feel I am feeling good, no bowel problems now ,no stomach aches , just want to wait for a promblem if there is a promblem at the right time, if no promblems now why worry ?I always say dont worry about a promblem till the problem arises"

      I had a huge polyp. It was benign but so large they couldn't remove it all so I need to have another colonoscopy in about 6 months to remove the rest of it. I didn't have any bowel problems, no stomach aches, I felt good. It didn't worry about a problem because I did what I needed to do to take care of it. Just because you don't feel a problem doesn't mean there isn't one. That is the whole purpose of diagnostic and screening procedures like colonoscopies to take care of problems before we feel them and when they can be resolved with much less invasive treatment.

      It is your body an you have every right to treat it or not treat it as you see fit. I just hope you make those decisions based on accurate information.

      almost 4 years ago
    • gwendolyn's Avatar
      gwendolyn

      I can relate to your strong need to say "no" to a medical procedure. Believe me I can. I went to my first mammogram (since breast cancer diagnosis) a couple weeks ago. Mammo is easier than colonoscopy, true, but my attitude was one of total resentment, very similar to yours. All the mammograms I had before my diagnosis didn't identify the stage 3, grade 3 cancer that has made the last year of my life a living XXX. What was the point in having a painful time-consuming test? When do I get to just relax and enjoy life outside the confines of a hospital?

      Even as I felt these very real emotions I could distance myself from them and realize that my anger and rebelliousness were displaced. I wanted to say no to something. I wanted everyone to realize how much I'd put up with in the last year. I was mad and I didn't want to face the cheery volunteer passing out pink ribbons in the waiting room. Is this how you feel?

      I went anyway. Fortunately, my mammo tech was very kind and empathetic to my situation. I managed to not "shoot the messenger" with my very real anger. In my darkest moments I need to constantly remind myself that doctors and hospitals, although they are key components of my misery, are not to blame for my situation. I hope you my experience helpful. I feel like many of your comments could have been written by me.

      almost 4 years ago
    • SueRae1's Avatar
      SueRae1

      I know how unpleasant the prep is, and how much anxiety having follow up tests can be. That said, this is part of your post op treatment and if that's what your dr wants I say take a deep breath and do it. 15 years ago a precancerous mushroom polyp was removed from my colon - I had a follow up the next year to make sure all was clear. BTW my brother-in-law has been getting a yearly colonoscopy since he was 40, because colon, liver and pancreatic cancer run in his family.

      almost 4 years ago
    • papabill's Avatar
      papabill

      Kathy, Please do not hesitate and do go for the follow-up colonscopy. As a fellow cancer survivor I can only reiterate what others here have posted as to the importance of the annual follow-up colonoscopy. As to me, I did not hesitate and had mine last October. After enduring onslaught following the initial cancer diagnosis of the pre-surgery chemo/radiation, surgery. including a temporary ileostomy and reversal surgery followed by months of post- surgery chemo, I endured the prep and its effects and had the colonoscopy without hesitation and was most glad I did. During the procedure the GI removed six -- yes six -- precancerous polyps (confirmed in biopsy). Hate to even fathom what the end result could have been if I said, "No" to the colonoscopy. After what I (mentally and physically) and my family went through, I did not want a repeat of that act...or what even could have been worse. So, please do not hesitate and go ahead with the follow-up colonoscopy...and every one thereafter You will not regret it, but might regret not having it. Keep the faith!

      almost 4 years ago
    • papabill's Avatar
      papabill

      Kathy, Please do not hesitate and do go for the follow-up colonscopy. As a fellow cancer survivor I can only reiterate what others here have posted as to the importance of the annual follow-up colonoscopy. As to me, I did not hesitate and had mine last October. After enduring onslaught following the initial cancer diagnosis of the pre-surgery chemo/radiation, surgery. including a temporary ileostomy and reversal surgery followed by months of post- surgery chemo, I endured the prep and its effects and had the colonoscopy without hesitation and was most glad I did. During the procedure the GI removed six -- yes six -- precancerous polyps (confirmed in biopsy). Hate to even fathom what the end result could have been if I said, "No" to the colonoscopy. After what I (mentally and physically) and my family went through, I did not want a repeat of that act...or what even could have been worse. So, please do not hesitate and go ahead with the follow-up colonoscopy...and every one thereafter You will not regret it, but might regret not having it. Keep the faith!

      almost 4 years ago
    • papabill's Avatar
      papabill

      Kathy, Please do not hesitate and do go for the follow-up colonscopy. As a fellow cancer survivor I can only reiterate what others here have posted as to the importance of the annual follow-up colonoscopy. As to me, I did not hesitate and had mine last October. After enduring onslaught following the initial cancer diagnosis of the pre-surgery chemo/radiation, surgery. including a temporary ileostomy and reversal surgery followed by months of post- surgery chemo, I endured the prep and its effects and had the colonoscopy without hesitation and was most glad I did. During the procedure the GI removed six -- yes six -- precancerous polyps (confirmed in biopsy). Hate to even fathom what the end result could have been if I said, "No" to the colonoscopy. After what I (mentally and physically) and my family went through, I did not want a repeat of that act...or what even could have been worse. So, please do not hesitate and go ahead with the follow-up colonoscopy...and every one thereafter You will not regret it, but might regret not having it. Keep the faith!

      almost 4 years ago
    • booboo's Avatar
      booboo

      So, what is your question? If you say "no" then it is no. Nobody is going to force you to take care of yourself. On the other hand, if you decide to have the procedure, ask for the pills instead of the vile stuff you have to drink. You have to take a couple of large handfuls of pills but it is much better than drinking that huge container of the liquid.

      I see you are stage 2. You have no idea how lucky you are to have been diagnosed that early. But if you want to ignore the risk, you can do that. If you ever proceed to stage 3 you will look back on this and want to kick yourself because you had the chance to spare yourself and you threw it away.

      almost 4 years ago
    • Ydnar2xer's Avatar
      Ydnar2xer

      Kathy--I have survived THREE colonoscopies so far (I'm kind of an old broad!) While they're not my favorite activity (!), they HAVE kept me alive. I have had three polyps removed (non-cancerous). I have NEVER had to drink that gallon of icky stuff. There are many other preps you can do. Usually I take some laxative or stool softener pills plus drink that lemony stuff in a green pop bottle. The lemony stuff is FAR easier to drink if you refrigerate it and mix it with juice. It is totally DO-ABLE and there isn't nearly the volume of that gallon of icky stuff.

      I figure going for a colonoscopy (which I must do now, every 3 years) is like going to the gynecologist--Unpleasant but temporary, and it sure feels good afterwards when you hear the words, "Nothing wrong--you seem to be doing just GREAT!" Much better to KNOW than to WONDER!

      almost 4 years ago
    • cindywho's Avatar
      cindywho

      I myself would do what the doctor says. But I don't know what kind of cancer you have had??? But then it is up to you on what you want to do. So I hope you make the right decision. Good Luck Cindy Burnett Sherburn MN

      almost 4 years ago
    • kathycompton's Avatar
      kathycompton

      I want to thank you all for caring, I really am facing this alone, I dont have anyone to talk about this, I should find something here where I live to relax myself, Its just so hard to find people to understand ,where I am at, my feelings are so mixed up, I never had cancer in my life , this is so rotten , I DONT WANT PITY, I just want to crawl up and go out and end it, sometimes, But I dont , I will let you all know where my head and heart turns in time, you all have been so kind ,again thank you ,I had 11 polyps in me ,they cut out ,during surgery , 13 days in a hospital, may be i am just scared, but the pills and the other soltuions Iwill question it, you all have been so kind.

      almost 4 years ago
    • CrazyHarry's Avatar
      CrazyHarry

      Kathy,

      I'm just at the beginning of this and finished the first part of my treatment and I'm already sick of being sick. I just want life to go back to normal and have nice poopies again. In the mean time, I have the 2 surgeries and 4 months of chemo ahead. After what I have gone through, the colonoscopy may have been the best part.

      I'm surely going to keep on top of this when I'm done with my treatments. And I hope you can keep up your strength to do the same.

      If you need support or someone to commiserate with, please feel free to contact me directly. Although my wife says I really need to up my game on pity parties. I thought I was an expert, but as it turns out, I need work there too.

      Harry Butt (My Cancer Name)

      almost 4 years ago
    • BeckyTice's Avatar
      BeckyTice

      Kathy,

      By now I hope you are ok... I hope you bit the bullet and had the colonoscopy. I know the stuff you drink is not so excellent.... but it's much better than it use to be. I'm going in for one on Monday.... nope... I'm not looking forward to clear liquids.... or the taste of the minerals... but hey... it's not nearly as bad as it use to be....

      almost 3 years ago

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