My husbands been 100% tube fed since jan. turns out he tolerates walmarts and krogers version of boost the best!! The dr ok'd it and he's actually GaINING weight, more than half way through treatments!! Play with different formulas! Also, we found a regiment that works for him: 1 1/2 cans every four hours throughout the dAy, totaling 6 cans. Last, theres a liqudi that can be poured in a half hr before feeding which helps move the formula theough faster, easing the sensations in the stomach. Sorry about the Grammer/typos. No glasses and small screen. Best of wishes and let us know!
Invasive, Squamous Cell Carcinoma Questions
Eating and Using the PEG tube
Asked by jdcarolina on Sunday, May 19, 2013
Eating and Using the PEG tube
Bobby has been total tube feeding for about two weeks now. Mouth and throat are extremely sore. Every thing burns or hurts. Have used all the products recommended to him Muguard, Magic mouthwash, baking soda and salt. Everything we put through the peg tube either gives him indigestion or diarrhea. So far Ensure clear works the best but the most we can get in him is 4 bottles going slow at a rate of 200ml and hour. thats less than 800 calories. Any suggestions.
4 Answers from the Community
I had a feeding tube for ten months! They put me on Glucerna it worked well it is lower in surgar. I am not a diabetic though. I also got indigestion from it and they gave me a generic form of Prilosec.(the Purple Pilll you see on TV). It worked wonders, never had indigestion again. Just one pill before I started feeding! I also used Magic Mouthwash. I found out there is no one version of it! The doctor figures what should be in it! Maybe it can be adjusted by the doctor. I was also put on a low dose of oxycodan 5mg.this stopped the pain and it did not make you feel out of it. I was fed 5 8oz cans a day! I fed through the night as I slept this way I was free of the pump during the day! The cans of Glucerna were delivered to me from the company that brought me my pads to put around the tube opening and the plastic feeding bags. I went to Sloan Kettering in New York City! They are amazing, met people all over the country there! If he is put on Oxycodan that might help the diarrhea as narcotics tend to constipate. Hope this helps! Any other questions contact me! P.S. He should be sitting at a 45 degree angle when feeding if he lays flat and feeds that will add to indigestion.
Have you been seen by a dietitian? My dietitian managed my feeding tube (she actually suggested to the doctor that I have a tube) She ordered the supplements that were put into the tube. She ordered a suppliment from the Nestle company, that came in different nutrition levels. Before surgery she ordered a very high powered suppliment that I took the week before surgery. If your Cancer Care Center has a dietitian try to get an appointment.
I just finished the feeding tube! Was on it for six months! I also got indigestion s was given Prilosec one hour before feeding snd never had thst problem again! I was on Glucerna 2 it is lower in sugar snd I am not diabetic! I did five eight ounce cans every night as I slep! Be sure you sit at least forty five degrees or indigestion will come back! I slept in a recliner! Good Luck. JoeTEMT