I survive by taking an "it is what it is" attitude from the get go. Having said that, I still had a great deal of anxiety. Rather than talk about it with family, I chose to keep a journal.
As far as care goes, I am fortunate to be in the Kaiser Permanente system. They have top notch doctors. My GYN/Oncologist is a graduate of Harvard and focuses on gynecological cancers. Not only was my team chosen for me, they also easily communicated with my primary care physician and my neurologist. I went in for vaginal bleeding, was given the choice of an endometrial biopsy or a transvaginal ultrasound. I chose the former and found out I had an aggressive form of endometrial cancer. I was immediately referred to the surgeon who scheduled me for surgery a week hence.
I did not have an easy time with the DaVinci surgery. I passed out on the way to the bathroom in the recovery room setting off an emergency response team alert. I needed a blood transfusion. At home, I had a high fever and lots of bleeding, wound up in the ER where they found out I had a large blood clot near my bladder. I don't post this experience on the boards because so many women have had an incredibly easy DaVinci and I don't want to be negative.
Chemo was easy. I scheduled it for Fridays and made it to the Bark and Whine at the dog park in the evening and then went hiking on Saturday. No nausea whatsoever. VB radiation was easy as well. The hardest part of treatment was losing my eyebrows and eyelashes. i almost dressed up as Uncle Fester for Halloween. I am in a job search and I felt very self-concious when going on interviews.
I am through everything now, but with UPSC one never feels "cured" even though I am told that I am NED. It's like waiting for the other shoe to drop. I am not so much worried about a recurrence as much as I am worried that it will not be caught until it is too late.
I don't like to talk about my cancer with family and friends. When I am discussing it, I am thinking about it rather than enjoying the moment. I also do not understand why people I barely know think they have the right to ask me detailed questions. I do not ask them about their hemorrhoids.It is rude and spoils my day. I hike with large groups and when I did not have hair, strangers would want to discuss my cancer on the hike. I have gotten to the point where if someone brings it up, I just tell them my personal health is none of their business.
If someone going through this alone, I strongly suggest joining meetup.com and finding folks with similar interests. I would find cancer support groups depressing. I would rather get out of the house and hike, walk, discuss books or other activities that take my mind off of my cancer. My oncologist tells me that I have done all of the hard work with treatment and now it is time to live a normal life. I am trying to take his advice.