• Esphagael Cancer- is this normal????

    Asked by simplifylives on Sunday, December 11, 2011

    Esphagael Cancer- is this normal????

    Keith was diagnosed with stage 3 Esphagael cancer 9/24/11, since then he has gone from 180 lbs to 122 lbs, has had the 5 wks of radiation therapy and the two weeks of chemo while in the hospital... He has been hospitalized twice and stayed a total of 42 days all together, he is extremely weak and seems to be getting worse, he can't even shave without running out of breath and going back to bed, before getting sick just a few months ago he was very active and actually a body builder. We go next week to get another pet scan and hopefully schedule his surgery, but I'm terrified he is much too weak to undergo surgery:( He has a very hard time eating and forces the ensures down... Please tell me is this his reaction to this type of cancer normal?? He stopped the radiation/Chemo 3 weeks ago, shouldn't he be getting a little better not worse!??? Please help me understand what to expect next... We desperately are searching for hope... It just feels like I'm watching him die and I'm just helple

    6 Answers from the Community

    6 answers
    • danellsar's Avatar
      danellsar

      Simplify- If he is having trouble getting liquids down, then maybe it's time to ask about a feeding tube. I know it sounds awful, but many people with esophageal cancer need it. If/when he gets better, they can reverse it. At least then he'd get nutrition and liquids in each day.

      I don't think loosing that much weight in 3 mos is normal, even for this kind of cancer. My husband lost 30 lbs. between getting sick and his diagnosis. Then he lost about 10 more after diagnosis due to chemo. Since then, he's regained 5 lbs and is eating pretty well. The radiation shrunk his esoph tumor down to almost nothing, and the doctor gave him meds to help stimulate his appetite. When he was having the most trouble with eating, I made him high calorie shakes 3x a day with Scandi shakes, whole milk, fruit, and yogurt (=800+ calories per shake). Just having that amount of calories and protein really helped him keep going.
      Ellen

      over 5 years ago
    • mac101467's Avatar
      mac101467

      I agree with danellsar for the feeding tube. I have been treated for stage III esphogeal cancer in the neck area. I lifted weights and was pretty fit. at 5'6" and 175lbs. I started treatments and dropped to just about 150lbs. I had the feeding tube inserted and my level of strength was ( pardon the pun ) was still in the toilet for a while. But I did get stronger. It does take time, but even still, this may be something to mention to the Oncologist. Hope all goes well and never ever give up. I am beating mine and I am confident that Keith will muster the strength to beat his.

      over 5 years ago
    • simplifylives' Avatar
      simplifylives

      Thank you very much for your responces, we asked the oncologist about a feeding tube, in fact I practically begged, however we were advised that because of where his cancer was he could not have one because they were afraid it would cause scar tissue or interfere with surgery ect... I will be asking the surgeon though because I feel after surgery there may not be another option. We are trying not to give up hope and stay strong but each day is a struggle especially when each day isn't bringing anymore strength or signs of recovery:(. Again thank you so very much for your responces

      over 5 years ago
    • susie81610's Avatar
      susie81610

      HI:
      First I would like to say sorry about your husband. Losing that much weight is not uncommon I lost 125lbs gained back 25 thank God I was heavy. What type of surgery is your husband having? I had my esophagus removed due to the tumor blocking I was to the point also I could not even swallow water. They did the chemo and radiation to shrink whatever is there first before going after it. Even when you are done with radiation you are still getting the effects for up to a month after it is finished. Thats what I was told that is why you don't feel good right when you finish.
      If you have any questions please ask me I don't want to sit here and ramble I have been dancing with the beast since March 2010 had surgery Aug 2010. Keith is so far having the same type of treatments as I had. My husband and I did alot of research on the surgery before I would love to help you if I can. Good luck and God Bless.
      Susie
      p.s you come out of surgery with a feeding tube.

      over 5 years ago
    • susie81610's Avatar
      susie81610

      The more I read your post the more I would like to talk with you. Esp since Keith is only stage 3. I think I could be of help not trying to be pushy but I got pushed aside at first until my husband went after the Drs and got them moving. If you want to send email request that would be cool? I will check back on later this afternoon.
      Have a good day.
      Susie

      over 5 years ago
    • simplifylives' Avatar
      simplifylives

      Thank you very much Susie:) I'd very much love to talk to you and get as much info and insight as I could;) i very much appreciate it;) my email is my user I'd @ yahoo. Any information would be greatly appreciated;) thank you so much everyone

      over 5 years ago

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