• Exhaustion and Pain a year after stem cell transplant

    Asked by Ellie59 on Wednesday, February 27, 2013

    Exhaustion and Pain a year after stem cell transplant

    I had a stem cell transplant a year ago. I am still struggling with Brain Fog, nueropathy , fatigue and weakness. I was told by my oncologist that this is the new "normal". I spend a lot of time volunteering for organization that support cancer patients. I love being a peer support volunteer, I miss my old life.
    I eat healthy, walk a little, lift light weights and do some Yoga still my energy level is lousy. Anyone gone or going through this?
    Thanks much

    4 Answers from the Community

    4 answers
    • nancyjac's Avatar

      Yep. I finished chemo last March, multiple surgeries in April, radiation May through July. Still have chemo brain, peripheral neuropathy, tire easily and have lost most of my muscle strength. I miss my old life too, but not as much as I would miss having a life at all.

      over 3 years ago
    • katiecb's Avatar

      My aunt went through this, and she has been cancer free for 12 years now. She still has lower energy than she use to. Maybe you need to back off of your exercises some and increase them slowly. For my aunt, she had to retire from working, and had to accept not doing as much as she use to. It isn't an easy thing to do, but she took up hobby's that consume less energy (crafting and such)

      over 3 years ago
    • po18guy's Avatar

      While we may miss our old life, it is good also to remember that that "old life" had cancer in its future. I prefer to move on with my new life, which was not guaranteed in any form. I accept the neuropathy, poor balance, weakness, chemo-brain and all else as the cost of being alive. A generation or two back, both of us would be gone now. You are doing very well by volunteering, as the others really need the support, and it is helping you, too. As for me, I am delighted to be anywhere.

      over 3 years ago
    • dboland30's Avatar

      I am over 2 years out from autologous transplant. My energy level is not what it was prior but is much better. I exercise as much as I'm able and think that helps!

      I still have some chemo brain issues, and when taking classes/training, concentration can be tough.
      The neuropathy is mostly limited to my feet from about the ankles down, but I have been back to work almost a year and getting better

      almost 2 years ago

    Help the community by answering this question:

    Create an account to post your answer Already have an account? Sign in!

    By using WhatNext, you agree to our User Agreement, and Privacy Policy

    Read and answer more mantle cell lymphoma questions.  Also, don't forget to check out our Mantle Cell Lymphoma page.