• Experiences after first treatment

    Asked by lovingwife on Tuesday, April 30, 2013

    Experiences after first treatment

    My husband is on the Folfox and he has been severely exhausted since he got his pump disconnected. I hear they give a steroid during the initial infusion that wears off and could be the reason why he crashed so bad. He's been in bed for about five days and feels wiped out. I expected the chemo to have this effect but it's just so hard to see him going through this and wonder if there's anything we can do for him other than wait until we see the doctor in a week for blood tests. Bless everyone in their fight.

    6 Answers from the Community

    6 answers
    • StrongSteph's Avatar

      Extreme fatigue seems to go with fighting cancer. CHEMO is brutal and I know resting was NECESSARY as I was EXHAUSTED most of the time! Actually, the chronic fatigue took me a long time to get over.

      over 5 years ago
    • Kathy's Avatar

      Maybe give the doctor a call? It's so hard to know what is or isn't normal. I remember I had a sheet of paper with a list of when to call the doctor and I don't have it in front of me but extreme exhaustion may be one of them. Take care.

      over 5 years ago
    • IKickedIt's Avatar

      Oh yes...I was fine when I was on the pump. Worked my regular schedule, barely slept because of the steroids and the sound of the pump. Then after I got disconnected, I had about a 2 hour window until I crashed. I would sleep 12-15 at a time for the first few days after the pump was disconnected.

      I also kept a journal of the side effects and when they hit. They were pretty cyclical for me, although not always, but it allowed me to schedule my "good" days and my "down" days. It also allowed me to prepare for the other side effects.

      I would write all of these things down and then discuss with the doctor.

      over 5 years ago
    • GolfGirl's Avatar

      His fatigue could be a combination of the chemo and recovery from surgery. My doctor told me it could take up to 4 months to fully recover. Hope he regains his energy soon. My best wishes to you and your family (I hope you"'re taking care of yourself too).

      over 5 years ago
    • alivenwell's Avatar

      I usually sleep a lot after Folfox. It's just the way that stuff works. When I skipped one treatment, I felt an incredible level of energy that I had not had for months. He may want to get a complete blood count and white platelet count.

      over 5 years ago
    • papabill's Avatar

      Hi LovingWife,

      Noted sometime ago you added me as :one you were "Following." Being a loving wife is the best medicince he can have as he goes through the ups and then downs of treatment, especuially post-surgery, blood test after blood test and months of FolFox. I noted that you also wisely selected a range of people to follow and garner input, which you have. All good. I wanted to wait a bit in responding in order that you have time to fathom all the overload of information and give you more time to see how his treatment was progressing - physically and mentally --in the event you now might have some new thoughts or questions that based on my journey I might provide my insight/experiences in that I was Stage III, colorectal cancer that began with six weeks of radiation/chemo, then two surgeries, followed by 12 rounds of FolFox with many experiences along the way.. If I can help, please do not hesitate to contact me - or others - as we all are in the same club - patients and caregivers - for the long haul.

      Keep the faith.

      over 5 years ago

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