Have you gone to the Bonnie J Addario site and read the on line free material about LC?
You message is a bit hard to follow. The headachs at the same time every day may be related to something she is doing. But LC dose grow quickly.
Has she had mutation testing. I have posted a great deal of information about the importance of this testing.
If her Dr's cannot answer even basic questions then I think its time you consider a second opinion.