• Fear of Cancer Returning

    Asked by Thedodiva on Monday, March 4, 2013

    Fear of Cancer Returning

    Do survivors count the days with uncertainity and worry?

    30 Answers from the Community

    30 answers
    • nancyjac's Avatar

      Can't speak for others, but this survivor certainly does not. I have way to many other things to do. "Counting days until" and worrying don't make my "todo" list, and it is a very long list. I have plenty of "certainty" to deal with every day. I just don't have time left over to "uncertainties".

      over 6 years ago
    • SueRae1's Avatar

      I am in active treatment, and I do worry about it not working. But I don't spend my days thinking about all the possibilities. You need to concentrate on the positives in your life and move forward. Yes worry will be in the background, but hopefully you will not hear it most days.

      over 6 years ago
    • SandiD's Avatar

      I am a two time Survivor and it does cross my mind sometimes, but less often as time goes by. But honestly, I could get hit by a bus tomorrow and cancer would not be an issue! I have decided not to worry about tomorrow because that would waste today. Right now is all any of us know we have, so try hard to live in the moment. Of course you want to do everything in your power to remain in good health every day by eating well, exercising and getting enough sleep. Now go make some happy memories and enjoy right now! Good luck to you.

      over 6 years ago
    • BuckeyeShelby's Avatar

      I completed treatment in January. Do I know when my next check up w/both my medical & gynecologic oncologists are? You bet. Do I spend everyday worrying about what my next CT will show? Absolutely not. I'm trying to get back to my pre-diagnosis life. Now if I can just make my hair grow faster.... Best of luck to you.

      over 6 years ago
    • ticklingcancer's Avatar

      Do I think about it from time to time? Sure. But it doesn't consume me. Why count the days? That's what I do when I'm looking forward to something. Like a vacation or a party. If it comes back, it comes back. I'll beat it into remission again. I'm too busy living to be worried about a recurrence.

      over 6 years ago
    • Miriam's Avatar

      I think that everyone who has faced Cancer has experienced worry about the uncertainity of life. You are not alone. There are two books I have used which have been excellent in facing life and cancer. They can be purchased from Amazon and each is under $10.00. "Praying Through Cancer: Set Your Heart Free from Fear" by Susan Soresen and Laura Geist. This is warm and refreshing 90-day devotional written by cancer survivors. The second is called "There's No Place Like Hope: A Guide to Beating Cancer in Mind-sized Bites" by Vicki Girand. I love this book. It is peices of wit and wisdom and hope rolled into one book.

      Hopefully you will be able to find peace and comfort through this unplanned and unwelcome event. Cancer takes us all by surprise.

      over 6 years ago
    • Clyde's Avatar

      I have seen so many people in my life, family, friends, etc., who were taken too soon, often for totally unexplainable or unexpected reasons and yes, I look both ways before crossing the street because there could be a bus (or falling snow, or the bull suddenly decides to play (and I'm no match for a ton of beef), or, or, or......that I don't see any profit in letting the worry take me down. Also, living on the farm and watching seemingly healthy animals die with no obvious reason (as with the calf this weekend who just couldn't figure out how to nurse and didn't respond to the bottle), death is something that isn't scary to me, just a fact of life. I live each day as if it could be my last, do everything I can to make sure it isn't, but face the fact that I really don't have the final word, just the choice to enjoy, prosper and make the most of every second until. There are so many things that could take us out that I see cancer as just one more to be subdued. I do worry about it, actually think of it every day (we need to to take the best care of ourselves as we fight), but I don't let it send me to bed with a pillow over my head. I've got all these lovely animals depending on me, things I want to do, places to see, people to date........ Can't do that properly if I'm too scared too move.

      ps--I also have a couple of rules about dating. Top of the list is: If they mention their mother, their shrink or their health problems more that three times without prodding on the first date---its a first and last.

      over 6 years ago
    • GregP_WN's Avatar

      I will jump in with everyone else, no I do not. And I say this even though I have had cancer 3 times. If you sit around and wait for it to come back it seems to me you will live a life of misery and worry. A very famous quote says that worrying does not take away tomorrow's troubles, it just takes away today's peace.

      For me, I will take today's peace and not worry about tomorrow.

      We all, wish you peace for today and no more cancer, tomorrow or any other day.

      over 6 years ago
    • KarenN@StF's Avatar

      Bravo! What uplifting and inspiring responses!

      over 6 years ago
    • Queen_Tatiana's Avatar

      My husband has battled colon cancer for 8+ years now. After his first round of surgery and chemo I was elated for it to be over and really did believe he was in remission and life would go back to what it was before cancer. When IT came back I was shocked and even more scared than the first time and this time when treatment ended I sat on pins and needles waiting for it to come back, and it did. Now I don't give it a second thought and if it comes back it comes back (which it has). Life with cancer is better than no life at all and my husband has a great attitude in living with and fighting IT. While I do get plenty angry at the cancer I don't let it rob me of my mental health.

      over 6 years ago
    • Joachima's Avatar

      You all have written wonderful responses. For me, I do think about it now and then, but I don't allow these thoughts to stop me from the joy of living. I pray that you will find the peace and strength to live each day to the fullest... filled with love, laughter, and joy.

      over 6 years ago
    • IKickedIt's Avatar

      Nope. I've always been a firm believer that if it's not something I can control, why worry about it. Cancer already disrupted my life and the lives of my loved ones; I won't let it disrupt my life any more than necessary. I don't sweat the small stuff, I seize the moment and I certainly appreciate things more than I ever did.

      I'm not saying that I never think about cancer. I do. I can't believe what I've gone through. I am still upset over the damage the chemo has done to my body, but instead of complaining about it or feeling sorry for myself, I focus on what I can do to improve and prove to cancer that I am a survivor. I kicked it. And I'm using my experiences to help others and be an advocate for preventative screenings and awareness.

      What will be will be and I can't worry about it. The only thing I can control and be certain of is my happiness and the joy I bring to the lives of my loved ones. That's where I want to focus my energy.

      over 6 years ago
    • ddkk3's Avatar

      You all are so strong! I actually came on this site tonight because I was thinking exactly this thought. I was diagnosed less than 2 months ago and all I can think about is it returning. I have faith that I will be ok after I finish chemo and radiation now but I am absolutely terrified about getting cancer yet again later on in my life, whether it be a recurrence of my Hodgkin's lymphoma or a totally different type.

      over 6 years ago
    • SMT4's Avatar

      I think it is natural to have a concern about it, it means you’re vigilant in your care. The key is to not allow the concern to turn to controlling fear of what the future holds. Like many I have been on this road a couple of times. Each time I do as I did before put my focus on the task at hand and if it doesn't add positive thoughts, help to my healing, or assistants in my recovery I don't let it in.

      over 6 years ago
    • Beaner54's Avatar

      Cancer is life changing. It helps to keep a positive attitude but don't beat yourself up Thedodiva if you
      have an occasional day filled with uncertainty and worry. I totally relate to that and hope my post helps you
      to feel validated.

      over 6 years ago
    • Sunnydays' Avatar

      The further out from treatment I get the less I "worry" about a recurrence. But I also don't think it is worth my time to "worry" about. I'm busy regaining my health and trying to be active in my life, be a good wife, mother, daughter, friend, neighbor, boss, make a difference in the world around me in small ways. If cancer returns, I'll fight that battle then. When a little bit of worry emerges, I take a deep breath and say "yes, it might come back, but anything could happen, any day!" At least we can fight the cancer - as best as we can.

      over 6 years ago
    • CherylS@StF's Avatar

      I have never experienced a life threatening diagnosis had a list of physician checkups or tests that I needed to mark on my calendar for years to come but I do know that none of us are promised tomorrow and therefore must make every attempt to live life to its fullest each out of each and every day we are given. Some patients with chronic illnesses know that there is no cure for their disease and that there are going to be good and bad days ahead for the rest of their lives, but many, many of them have accepted that and know to make the best out of every good day, to enjoy and accomplish their lifes list on those good days because they will not be able to on those ruff days. If you are fortunate enough to be a survivor I know it is impossible to put that worry completely away and for your mind to not wonder but try hard to make it a daily pattern to worry a little less and enjoy that day, you are blessed!

      over 6 years ago
    • cindywho's Avatar

      I myself is going on 4 years cancer free and it is always on the back of my mind. I have the fear that it will return. It will never go away. Cindy Burnett 4 years cancer free Rectal cancer survivor!!!

      over 6 years ago
    • cindywho's Avatar

      I myself is going on 4 years cancer free and it is always on the back of my mind. I have the fear that it will return. It will never go away. Cindy Burnett 4 years cancer free Rectal cancer survivor!!!

      over 6 years ago
    • papabill's Avatar

      For the most part now that I have most recently completed all the radiation sessions, surgeries, and ever-ending (it seemed) round after round of chemo, I do not count the days or have much uncertainties and worry. Yes, I am dealing with post-cancer treatment/cheno issues as to chemo-induced peripheral neuropathy (mild compared to many) and dealing with bowel issues, but for the most part feel I have arrived at a better place where I focus more on family and the little good things a lot more than ever and feel blessed. Yes, there are times when I still do have uncertainties, these are pretty much limited to when I am scheduled for my colonoscopies, CT scans and blood draws when I wait for what I anticipate with crossed fingers will only be good results...so far, so good. We who have survived must only look ahead and smell the roses. Too important to live now for you, I and everyone else who has been there and is now here. Good luck and keep the faith.

      over 6 years ago
    • papabill's Avatar

      Glad you liked. Hope it gave you needed perspective and realization that it is a natural feeling at times and overall you are not alone with such thoughts or you would not be human. Good luck

      over 6 years ago
    • Thedodiva's Avatar

      I just wanted to thank you all for your responses. They were truly inspiring and beneficial. I need to make a correction....my husband is a two time survivor of mestastized colon cancer. I joined this site for us. He is a worrier and I wanted to give him some inspiration from other survivors to ease his anxiety. You all helped so much...God Bless You All...Thedodiva

      over 6 years ago
    • Nomadicme's Avatar

      I did at first, the statistics of recurrence where a living nightmare.

      To cope. I turned to meetings within the cancer community. I also read a book called "Feeling Good". It's about Cognitive Behavioral Therapy (CBT), which states your thoughts create your feelings, not your circumstances. Boiled down, the message is think positive thoughts. The book gives some guidance on how to reframe and challenge negative thoughts.

      over 6 years ago
    • KendallHHC's Avatar

      I've found that focusing on being in the moment, focusing on today, helps tremendously. Today, this moment, is really all we have. No one can guarantee what the future will bring, so I just try to be happy in the moment. Love the quote Greg mentioned! It's true, worrying doesn't do anything besides make us miserable. Somehow I got really good at living this way after my diagnosis - all I could do was focus on "right now" - anything more was too much. The more we practice that, the easier it becomes.

      over 6 years ago
    • alivenwell's Avatar

      Take this one day at a time. Worrying about yesterday or tomorrow would take away living in the present moment.

      over 6 years ago
    • kimpiper's Avatar

      i have uncertainty because i had a spot on my lung not found before surgery it has grown and i have gotten 3 more spots. i have lynch syndrome, where my cancer comes back and fear due to being in my early 40,s. another dr put me off work permanentlt due to another chronic condition. i am depressed, friends i had dont come around no more. my support system is little to none. i always worry when i get mt ct's done and labs-am hyper sensitive to them times always. i had stage 2s colon cancer almost 2 years ago. my tumor in my pelvis was the size of a baseball, and was at 1st misdiagnosed with gastritis by a dr in th ER, different hospital than the surgery

      over 5 years ago
    • dhall's Avatar

      "I'm Not That Kinda Guy" Just saying to each their own!

      over 5 years ago
    • Kristy728's Avatar

      I'm a 3 year survivor & I don't worry nearly as much as I use to. The more time that passes, the less & less I worry. I would alway say to myself " in 20 years I don't want to look back & think I wasted my precious life worrying!" So, I don't! The further out you get the easier!

      over 5 years ago
    • Lisamarie65's Avatar

      I wonder the same thing like asking myself with my anxiety how will I.deal going every 3 months for 5 years for scans stressfull

      almost 5 years ago
    • Reggi's Avatar

      the fear of cancer returning having melanoma on the neck, treated having tests every 3 months.

      over 4 years ago

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