• First day on what next. Anyone had proton therapy?

    Asked by chowhound on Friday, August 24, 2012

    First day on what next. Anyone had proton therapy?

    4 Answers from the Community

    4 answers
    • GregP_WN's Avatar

      Welcome to the site, I have not had that, but someone will answer you shortly.

      about 4 years ago
    • Carol-Charlie's Avatar

      Welcome to WhatNext! I'm sure you be as glad as I was to have found this helpful caring community. Since I had ovarian cancer, I haven't any knowledge of proton therapy. I'm sure someone will be along soon to give you the info you seek. I see you live in Florida.... batton down the hatches kid... It looks like you're about to have some wind and rain..

      about 4 years ago
    • WizardOfWesley's Avatar

      When I started this journey... There was not enough info for me to make an educated dicision... and my Insurance co . at the time did not seem to reconize it... It looks and sounds like a very plausable alternitive to conventional surgery and IMRT ... and it is available here in Fl. as well... as I said before in my hello welcome note to you... I'm here in the area... and would enjoy sitting down for a cup of joe or a cold one to chat... my cell is[phone number redacted]

      about 4 years ago
    • Ron_L's Avatar

      Hi Chowhound! I just finished Proton Therapy for Prostate Cancer last week so I am happy to answer any questions that you may have.

      I was treated at the CDH Proton Center in Warrenville, IL and my last treatment was on Monday, August 20th, so I am about a week and a half post-treatment. I went through a course of 44 treatments over a period of 9 weeks. My treatments were 5 days a week during that time. Each treatment takes about 20 minutes with most of that getting you placed properly on the table to make sure that you are in the same position each time. I spent a little over an hour at the center for each treatment since they ask that you arrive at least 30 minutes prior to your appointment to drink water so that your bladder is full. In my case I was told to drink 24 oz. of water and have it done at least 20 minutes before my appointment time.

      Overall the experience was very positive. The folks who work at the center are fantastic and go out of their way to make sure that you are comfortable and are getting the best possible care. The atmosphere is uplifting and encouraging. After my first couple of treatments everyone knew me and addressed me by name and I started to get to know some of the other patients who were there for appointments around the same time and became friends with several of them.

      One of the benefits of Proton Therapy is the quality of life both during and after the treatments. I experienced only minor side effects during my treatments. I had some reddening of the skin on my hips where the beam enters and they provided cream to help with that. I also had some minor burning and urgency when urinating and felt some fatigue i the afternoons during the last three weeks of the treatments. All of these are lessening now that my treatments are over. In talking to others undergoing treatment at the same time most had similar or less side effects.

      Now that I am done with the treatments I am scheduled for a followup appointment in three months. At that time they will check my PSA levels to see how they have changed.

      If you have any specific questions please let me know. I'm willing to talk on the phone if that is easier for you.


      about 4 years ago

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