• First Fight

    Asked by JBarteaux on Monday, December 31, 2018

    First Fight

    I’m entering my first fight with the ‘Big C’. A Lytic bone lesion of left hip was found, and after CT Scans, MRI Scans and PET Scans the rumblings of the doctors are that it is cancer, possible bone cancer because my left hip showed up ‘bright’ as I was told. I had my 1st CT biopsy before x-mas, but it was not conclusive, so I am doing it again this Thursday, (1/3/19). Doctors do not think it originated in my hip. Why wouldn’t it show on the PET Scan? I’m exhausted, not hungry at all, and my back is very painful. I am Positive for Chek 2 and Lynch. I’m a 39-year-old married female with one biological child. My maternal grandmother had breast cancer, my mother had breast cancer, and my maternal grandfather had lung cancer. I’m confused, tired and angry. I need answers! I’m scared.

    11 Answers from the Community

    11 answers
    • po18guy's Avatar
      po18guy

      Sorry to hear of this. I hope that doctor mentioned that there are several non-cancerous causes of lytic lesions. A biopsy will be necessary to determine the final result. And no one - not doctor, nurse, oncologist - no one except a pathologist can determine which type of lesion it is. And this applies no matter how certain everyone seems to be. Until then, a couple of tricks to remain sane are to keep as busy with life as you can, and to memorize the slogan: "You do not have cancer until a pathology report says you have cancer."

      about 1 month ago
    • banditwalker's Avatar
      banditwalker

      First off you have found a wonderful place here. One of my tricks when I heard the C word was to learn all I could about my situation. It not only kept me busy but the more I learned the less stressed I felt. It also helped me gain the respect of my health care providers.
      As @po18 said, take a deep breath and wait for the final prognosis. Good luck to you.

      about 1 month ago
    • LiveWithCancer's Avatar
      LiveWithCancer

      Hi JBarteaux, welcome to WhatNext. I am sorry for what you're going through while they attempt to figure out what's wrong and the best treatment plan.

      My advice is to not believe much of what you read on the Internet, stay occupied with things you like to do, and know that they've come a long way wuth cancer treatments over the years.

      Best of luck and please let us know what you find out. Also, know that we're here to listen, offer advice, and tell you about our own experiences.

      I have lung cancer so am afraid my experiences won't mean too much to you at this point.

      about 1 month ago
    • GregP_WN's Avatar
      GregP_WN

      First, we are sorry for your diagnosis but happy to have you with us. We will help you along through this. It's hard to do, but helps to take a step back and a deep breath and just realize that there have been literally hundreds of thousands of people that have come before you that have been diagnosed with cancer and are doing just fine today. I've had 3, over 30 years and I'm still kicking. Get more information at your next visit and let us know. We wish you well.

      about 1 month ago
    • JaneA's Avatar
      JaneA

      The wait is tedious, and sometimes, the diagnosis process seems to take forever. Just remember that they have to be SURE what is wrong with you in order to treat you effectively.

      I'm sorry that you're having to endure this, but like everyone says, stay busy.

      about 1 month ago
    • KancerKiller's Avatar
      KancerKiller

      I had to wait for two months to see my assigned oncologist when I was first diagnosed. I know how fearful that time can be. I hope you manage to get some rest and peace during the wait. After you see the doctors and get the plan you will most likely feel better and be ready to get after it!

      about 1 month ago
    • cards7up's Avatar
      cards7up

      It sounds like you don't have a diagnosis yet, just a suspicion for cancer. Bone cancer is rare and this is why the doctor probably told you there is likely cancer somewhere else. It's also possible that it could be a cancer of unknown primary (CUP). Are you at a top rated cancer center? If not, after this next biopsy, I'd get a second opinion at one, if you're able to. They'll look at everything that has happened so far and go from there. Good luck!

      about 1 month ago
    • po18guy's Avatar
      po18guy

      My only caution would be not to give yourself cancer if you do not have it. Our minds tend toward the calamitous when things go the slightest bit astray, and we must rein them in from time to time. you have no fight with the "Big C" until and unless you actually have the big c (lower case). Funny thing about fighting it: the longer the battle or the more battles we (I) fight, the smaller that "c" becomes. I no longer fear it.

      Believing that humor heals, I often joke with my hematologist. I told him that I am willing to get another lymphoma if it would help his research. "No! You've had enough" he fired back. I guess this is one game where it's OK to be sidelined.

      about 1 month ago
    • BarbarainBham's Avatar
      BarbarainBham

      JBarteaux,
      I'm sorry you are confused, tired, and angry. You probably had your biopsy today. Read and learn what you can and make a list of questions for when you talk to your doctors. Take a friend with you to help you remember the info. You'll feel better after you learn more and have a plan. Hopefully it won't be cancer, but we'll stick with you if you need us.

      If you decide to get a second opinion, we usually recommend a National Cancer Institute-associated Comprehensive Cancer Center because they are very up-to-date and large medical centers. Here's a list by state with contact phone numbers:
      https://www.cancer.gov/research/nci-role/cancer-centers/find#South-Carolina

      I'm not familiar with your town's location in Georgia, but Emory University in Atlanta, or Medical University of South Carolina in Charleston are on the list.

      Please update us when you find out about the biopsy.
      Wishing you the best.

      about 1 month ago
    • JBarteaux's Avatar
      JBarteaux

      I got a call from my doctor yesterday, and he said his pathologist could not determine what the tumor was so they needed to send it to Emory in Atlanta. I will have to wait another week to find out what is growing on my hip. I'm really confused now. If it benign would it have shown up so bright on the PET scan? If it was cancer wouldn't the 1st pathologist know that relatively easily? They did do another blood panel, and my white blood cell count is up.

      about 1 month ago
    • BarbarainBham's Avatar
      BarbarainBham

      JBarteaux, because large medical centers see more patients, their pathologists have usually seen more types of cancer cells. Different types of cancer are treated differently, so it's important to be diagnosed correctly.

      Your doctor is doing the right thing for you by sending it to Emory, which I recommended to you in my other post. Emory is on the list of National Cancer Institute-associated Comprehensive Cancer Centers, so they will have pathologists that should be able to diagnose it. Please update us.

      about 1 month ago

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