• Folfox and hair

    Asked by fightforlife on Wednesday, May 6, 2015

    Folfox and hair

    Can anyone who has been on the Folfox chemo regimen tell me whether you experienced hair thinning or total hair loss on this drug combo. I have very thick hair so thinning would not be terrible if it occurs as long as it is uniform. I would also be interested in learning if it also resulted in hair loss or reduction in other body areas. Thanks.

    15 Answers from the Community

    15 answers
    • GolfGirl's Avatar
      GolfGirl

      I did not lose my hair on Folfox. Some people do, but it's rare. My hair thinned a little bit, but it wasn't noticeable to anyone else. The only complete hair loss I experienced was with radiation to my pelvis. I wish you all the best!

      about 5 years ago
    • hobbsm's Avatar
      hobbsm

      Hi I have just finished Oxelplatin and Folfox. My hair started thinning from the very first treatment. Thinning is what they describe it but constantly was having hair folicles falling and very noticable how thin it had got. pleased to say just finished 12 treatments and hair already starting to come back. Small price to pay for what good it will do.
      Wish you well.
      .

      about 5 years ago
    • PMB's Avatar
      PMB

      My hair thinned quite a bit on Folfox... It continued to grow because I never cut it during chemo. It started to thin after about my 3rd tx. So much fell out So fast in the beginning and then the hair loss slowed. My eyebrows disappeared and I never had to shave my legs or under arms during chemo. My hair starting to come back soon after my last tx. It still isn't as thick as before but I'm happy with how it's come back. I just started taking biotin and am noticing much hair growth. My eyebrows took the longest to come back. I was on Roswell Park for awhile and then Folfox. Peace and love to you, I remem being super concerned about what would happen to my hair

      about 5 years ago
    • lebel's Avatar
      lebel

      i too have thick hair..yes you do experience hair loss but when you have a thick head of hair it is not noticeable to anyone but you..much easier to manage..stay strong...hair is the least of our worries...

      about 5 years ago
    • alohadeb's Avatar
      alohadeb

      i have thin hair to begin with so i was a little worried... i did thin out more- but not noticeable to anyone but me & my hair dresser unless i moved my hair around to show someone! I usually went in once every 4 weeks for hair cuts- but during chemo- once every 2 - 2 1/2 months. you'll do great!!

      about 5 years ago
    • PMB's Avatar
      PMB

      Ps.... What ever happens to your hair.... It will be ok.... I had teeny teeny tiny braids during chemo.... But I rocked them!!! Go with the flow ... Be happy... Be crazy... Be sad... Be ANGRY .... Be whatever you are being!!!! Peace and let be and keep on keeping on!!!!

      about 5 years ago
    • WISmom's Avatar
      WISmom

      I had a bit of thinning, but did not lose my hair on Folfox. Best wishes to you!

      about 5 years ago
    • readingrocket's Avatar
      readingrocket

      I am so glad that I read all of your comments. My friends have been itching to cut my hair - I think I will wait and see what happens : )

      about 5 years ago
    • PMB's Avatar
      PMB

      Don't do it!!!! Rock what's ever you got!!!!!

      about 5 years ago
    • KPD1969's Avatar
      KPD1969

      Just had my 3rd round of Flofox and 5FU. Have noticed hair thinning but for the time being it looks great.

      about 5 years ago
    • weewon's Avatar
      weewon

      My oncologist told me from the beginning that people on the chemo drugs that you and I were on rarely lost their hair. He was correct and although I had lots of thick, long hair it did thin a bit, but not in patches. Leg hair mostly disappeared, and towards the end of treatment 12, so did my brows, and my once long eye lashes are now pretty thin and shorter. Make-up helps with the brows and lashes, and I actually like my hair better now. It's not frizzy and is very soft! I continued to have it colored during treatments, as the grey roots continued to grow. No adverse effects from that, and it felt great to be pampered at the salon. Hope that this info helps. I was so vain, and didn't want to lose my hair either, but it would have been a small price to pay to still be alive after being diagnosed with stage four colon cancer. We do what we have to do to survive! Bald head or not...
      Good luck with your outcome.

      about 5 years ago
    • shotgun's Avatar
      shotgun

      Hair did thin as well as eyebrows and eyelashes.Like others have said,less shaving of legs too.I am still on chemo,but no oxylaplaitin this time,so very little hair thinning this time.I have been doing this for over a year now and just happy to still be here.stage IV colorectal CA.Good luck and God bless you in your journey.

      about 5 years ago
    • abrub's Avatar
      abrub

      I didn't lose the hair on my head on FolFox, although it changed texture. (No one in my family EVER had straight hair, but I did, from chemo!) However, I did lose most of my body hair; eyebrows became sparse, I lost most of my eyelashes, and the rest of me - let's just say pre-pubescent. But the hair on my head stayed strong!

      about 5 years ago
    • fightforlife's Avatar
      fightforlife

      Thanks so much for responding. I don't think hair is that important in the scheme of things but I like to be prepared. I had friends recommending that I go ahead and get my hair cut short so it wouldn't be as traumatic but I look horrible with short hair. This is very encouraging, I could do with a thinning and I certainly won't mind not shaving!!

      about 5 years ago
    • abrub's Avatar
      abrub

      Keep your hair, and see what happens. You may not have any changes; it may thin. Very rarely does this chemo cause major hair loss. We'll keep cheering you on!

      about 5 years ago

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