• follow up

    Asked by CASSIEME1 on Wednesday, May 30, 2018

    follow up

    yesterday I went for a follow up with my oncologist. he asked me if I had considered another 5 years of oral medication. I told him yes iread the information that he gave me, I prayed on it , I talked to God and my answer is no. he precedes to say that there is no guarantee that the additional medication will prevent cancer from coming back or that it will or will not if I don't take the medicine for an additional 5 years. I than reminded him if it being a precautionary measure for stage 1 in the beginning of this journey. BUT GOD!!!!!!

    12 Answers from the Community

    12 answers
    • cllinda's Avatar
      cllinda

      Taking another five years of a drug that might or might not keep the cancer away is a serious issue to think about. For this who have rough side efgects, that makes the choice harder.
      There is power in prayer and God is always there for us.
      As for me, I will be taking it another five years but that is just me.
      No right or wrong answer. Just follow your heart and God on all matters in your life, not just medical. He will show the way.

      over 3 years ago
    • barryboomer's Avatar
      barryboomer

      Don't do it and start with the healing. The Pills cause all kinds of side effects.

      over 3 years ago
    • gpgirl70's Avatar
      gpgirl70

      What side effects are you having? I took anastrozole and was completely miserable. I got to the point where I could hardly walk due to the pain in my joints. I went off all aromatase inhibitors for one month and then started on exemestane. I have no side effects from exemestane after two years. If this continues, I would not mind taking for another 5 years. If you are having side effects, maybe ask about another drug. There is a reason they changed the recommendations from 5 to 10 years. Maybe look up the research so you are as informed as possible.

      over 3 years ago
    • banditwalker's Avatar
      banditwalker

      Until they come up with a miracle drug that guarantees cancer will not come back, I am going to take my Arimidex or another AI far into the future. I hope any way. Any side effects I am having with my drugs I am keeping under control with integrative medicine.

      over 3 years ago
    • Judytjab's Avatar
      Judytjab

      Cassieme1, my oncologist told me there is a new test out now that can tell you whether the benefits outweigh the risks of taking the medicine for 5 more years. He is going to test me at the 5 year mark. Ask your doctor about it.

      over 3 years ago
    • Lorie's Avatar
      Lorie

      Judyjab, do you know or can you find out the name of the test?

      over 3 years ago
    • gpgirl70's Avatar
      gpgirl70

      I'm going to ask my oncologist about this test too. Thanks for the info Judytjab.

      over 3 years ago
    • joyuss59's Avatar
      joyuss59

      I tried every drug they could give me ! My last drug Letrozole ! I finally Quit all of them when I get in the car and can't remember where i'm going ? That was all I could take ! Been off all drugs for a year and am doing ok so far and my Quality of life is way better !

      over 3 years ago
    • Judytjab's Avatar
      Judytjab

      Lorie, I don’t know the name of the test my Oncologist mentioned and I don’t see him until late July. I did look on breast cancer.org and found information that sounded similar if you want to check it out. It’s called Prosigna breast cancer prognostic Gene signature Assay. Again, I don’t know if this is the same test my dr. is talking about. I hope this helps a little.

      over 3 years ago
    • MaryAnn's Avatar
      MaryAnn

      It’s called the Breast Cancer Index. My cancer center doesn’t do it because there are no set protocols for what to do with the information. I am not continuing for the second five years, but everyone has to decide based on their individual circumstances.

      over 3 years ago
    • geekling's Avatar
      geekling

      Are you guarateed any percentage of reduction in risk by taking the pills?

      over 3 years ago
    • gpgirl70's Avatar
      gpgirl70

      There is a small gain from taking aromatase inhibitors or tamoxifen for 10 years approximately 3% reduction in recurrence and 3% lower death rate. I would be curious if there is any difference depending on initial staging. Is the reduction % the same for stage I and stage III? Is it the same for women who have had their ovaries removed vs women with ovaries? If I was having the same quality of life issues on exemestane as anastrozole, I would definitely not continue for the second five years. Three percent isn't enough to endure suffering. One must also consider the toxicity of taking these drugs for another 5 years.

      over 3 years ago

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