• For the survivors, those that have finished treatments, or are on long term maintenance. How about an update on your daily life.

    Asked by GregP_WN on Wednesday, January 24, 2018

    For the survivors, those that have finished treatments, or are on long term maintenance. How about an update on your daily life.

    How are things going? What is an average day like for you? Have you gone back to work? Hobbies? Are things back to normal, or still all in turmoil?

    Let's hear it please, several people have asked to hear how we survivors are doing.

    7 Answers from the Community

    7 answers
    • cards7up's Avatar

      I'm a two-time stage IIIA NSCLC adeno survivor. Due to radiation, I have scar tissue in the pectoral muscle that can make doing ADL's difficult at times along with neuropathy. But let me say, I'm 4 years NED from my recurrence and happy to be alive! Would I do it again, you bet. But I also have more knowledge and would've had my SBRT somewhere else since they weren't even set up to do it on the lungs yet where I went, but didn't know that at the time. I was unemployed at the time and went on SSI then SSDI and now retired. Don't think I could work again if I wanted to, as I nap every day since I don't sleep well at night. Keep on keepin' on!!!

      12 months ago
    • Ejourneys' Avatar

      I was diagnosed and treated in 2014 for Stage I breast cancer: lumpectomy, chemo, and radiation. Since Dec. 2014 I've been on anastrozole to fight recurrence.

      The side effects I experience are:
      1. vertigo (began under chemo, continues with anastrozole)
      2. exacerbation of carpal tunnel syndrome (which I've had since the 90s; the worsening is due to anastrozole)
      3. tenosynovitis (tendon inflammation: began in 2017; oncologist says it's due to the anastrozole)
      4. severe fatigue (in spring 2017, worse even than chemo fatigue; treated with B-12 shots and now supplements, which keep it at bay; oncologist says it's due to the anastrozole)
      5. osteopenia (due to anastrozole).

      I continue to work from home, which I did prior to diagnosis; I also worked through treatment. What helps me is eating healthy foods and exercising regularly, which I also did through treatment (though at reduced intensity during chemo).

      I am also caregiver to my partner, who has MS and who has been losing mobility. Between my side effects and her health challenges, I spend considerably more time at home. Doing things with her take a great deal longer than they had in the past, so I must factor that into my day. I have adjusted to this as best I can and I still enjoy various creative and other pursuits. I also guard my energy reserves so that I don't overextend myself. I am active in local support groups, including my partner's MS support group.

      I've had to hire outside help for yard work, which had the biggest psychological impact on me during chemo because it meant I relinquished some of my independence. I'd gotten back to doing it myself after treatment, but last year it really had me flagging. So it looks like I'll need outside help for that from here on. (I live in Florida, where grass and weeds spring up if you look at them sideways.)

      Bottom line: Many of my activities have been curtailed, but I've found work-arounds that keep me active and fulfilled.

      12 months ago
    • Tomatogirl's Avatar

      Just had my last reconstruction surgery on December 11, and am now back at work. Grateful to be here, grateful to have my family and friends. Will probably be on Tamoxifen for another 8 years but hey, if it prolongs my life/keeps the cancer away then I'm all for it.

      Now if I could keep myself motivated to get enough exercise...

      12 months ago
    • Dkatsmeow's Avatar

      4 years out & hanging! Still can't eat or drink anything. I think I'll complain about that until the day I die. Don't like it at all! I have a mini me. He's 8 & looks just like me. He also likes most of the same things I do. His favorite color is even Red like mine. Bought a new car in November.
      guess I'll have to stick around to pay it off. Right now I'm getting Hyperbaric treatments so I can get my teeth pulled. They are crumbling. 2 rounds or radiation did it. I am no up 98 lbs from 68! Yeah! As I said I will complain until the day I die, but all thinkgs considered, Life is pretty good right now. Now if only SPRING!!!! would hurry up & come. I HATE the COLD! :)

      12 months ago
    • lh25's Avatar

      I'm 15 months out of treatment and mostly back to normal life. I'm working full time(and more some weeks) and doing much of what I did before. Still working on getting my strength back.

      The main issues I still have are digestive from the radiation. I can't do dairy and some raw veggies anymore.

      12 months ago
    • Created07's Avatar

      2011-Endometrial cancer-surgery/radiation-recovered and back to work...2014-Breast cancer/radiation-recovered....Melanoma-surgery-recovered...2016-Non-Hodgkins Lymphoma- chemotherapy...eight months out...amazing! I tell my husband I am a 1967 red Chevy convertible with white leather interior. When they are finished, I should be worth around $500,000.00. He,d better take good care of me or I will sell myself to the highest bidder:)) life is wonderful! I don't trust my body, but I Do trust the One who made it.

      12 months ago
    • Skyemberr's Avatar

      I've been ok. I just had my last scan at the end of December and the tumors in my lungs were growing, though not fast enough for chemo or radiation yet.

      I don't feel too bad generally, and will have another scan in March.

      This week has been tough because I had to get my port replaced and they moved it to my left side. It seems more painful this time but I realized I'm on a lot less medication this time! In a couple of days it will be better.

      Otherwise, I've been spending time with my kids, playing online games, going to the dog park and generally doing as much as I can.

      Usually my biggest symptoms are tiredness and leftover pain and issues from the cancer surgery and the reversal.

      12 months ago

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