• For those with ovarian cancer recurrence, how long was it from end of front line treatment to recurrence? How did you know you recurred?

    Asked by coopcrew on Monday, August 13, 2012

    For those with ovarian cancer recurrence, how long was it from end of front line treatment to recurrence? How did you know you recurred?

    I had a CA-125 of 31 in June, then 122 in July, and 243 in August. I was wondering how long it may be until I get symptoms.

    4 Answers from the Community

    4 answers
    • Carol-Charlie's Avatar

      Somewhere I posted an answer to this. I'll try again. Your CA125 suggests something is going on... What does your doctor say? Have you had a PET CT Scan? The scan could show the oncologist just what and where things are happening. I was told ovarian cancer likes to spread to the brain and to the lungs, but that this does not rule out other location.... The heck with waiting for symptoms... you're in charge of you.... (Sorry I feel strongly on this)... Please seek medical assistance. My oncologist monitors my CA125 every three months... and does an internal every six months. I was a Stage IIIC after surger, but he'd removed all he could see. My CA125 dropped to 3.... now hovers around 5-11.. If I'm in pain, bad knees, bad back... it will raise into the teens... He is a gynicological oncologist surgeon. Deals with ovarian cancer and has kept me cancer free since surgery in 2006. (February) I'll be praying for you. God bless you. Carol

      over 8 years ago
    • mysecondchance's Avatar

      I received my last chemo infusion on 9/16/2010 and have a recurrence which was confirmed after a petscan in June. The CA 125 I had in April was 23. After surgery it was 7 and had gone down to 3. In November 2011 it went to 5 and though I expressed concern to my gyn/onc at my yearly appointment, he said I was still in remission. The CA 125 in January went up to 8 and again I was scared but let it go. The 23 in April rocked me. My onc had me take another in June and that was 46, then the petscan. I have a tumor about the size of a walnut to the right of my liver. Or would it be left? In the middle of my stomach. I have no symptoms at this point which I wouldn't expect to since I had minimum symptoms before my initial diagnosis and I had three fairly large tumors plus other areas with cancer. I was diagnosed Stage IIIc.

      I am on Tamoxifen now. The CA 125 I had in July before I started the medication was 115. I am told the medication takes a while and it may or may not do the job. I opted to try it. My gyn/onc recommended this and I trust him implicitly. My onc concurs. If I had chosen chemo, they believe in waiting until there are symptoms so either way I would be waiting. I figure I may as well see if the medication works.

      over 8 years ago
    • Dmh987's Avatar

      I was Stage 1, but am BRCA1 Positive, so my oncologist/Gynocologist will be checking my CA-125 every 3 months when my Breast Cancer levels are checked (yes, I have had breast cancer as well). I am also getting a chest and pelvic Cat scan as part of my Breast Cancer follow-up, so that will also help my Oncologist/Gynocologist. As far as the CA-125 goes, the onc/gyn would look for it to swing form low to high in trends... and then do other tests based on that (like CAT scan or PET scan). I have not yet had my follow-up CA-125 as I just had my total hystorectomy in June which showed no sign of the cancer (after it had been found with just routine having my ovaries out last November, but then found that they had cancer in them).

      over 8 years ago
    • KnoxFam's Avatar

      My end of front line treatment was 2/16/12, with CA-125 at 192 at my 10/3/12 appointment. I knew it was back because of stabbing little pains throughout my lower abdomen (below the navel), constipation and diarrhea and bloating.

      over 8 years ago

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